Thank you for your piece, I empathise with your comments Nannyah and would offer a few thoughts from my recent experiences, with a different condition. Do not despair. Do not aim for the unachievable. Look to very close friends for initial emotional support, they can be a real comfort.
Once the initial shock recedes you will need specific support to find reliable information about the condition. The amount of information on Google is immense. It can be overwhelming - so many results will give worse case scenarios or will be unfathomably technical. Ask your GP to point you to the right place to start your researches. Ours was most helpful and she said that by going to her we were avoiding a lot of personal stress.
There are some excellent organisations/charities for different conditions that can help. But a caveat here, do not assume that a condition specific support group or organisation will actually help you. Many will, but be wary of those that are run by people with their own agendas or are emotionally damaged themselves. Support your child, he/she'll look after your granddaughter, but may constantly turn to you for emotional support. Stay strong. There are folk on GN that will do what they can to help you too.
LucyGransnet (GNHQ) Thu 13-Mar-14 15:59:55
Granniepam Thu 13-Mar-14 19:15:46
Aka Thu 13-Mar-14 19:41:19
nannyah Fri 14-Mar-14 09:15:04
Granniepam Fri 14-Mar-14 09:35:34
nannyah Fri 14-Mar-14 09:57:10
PRINTMISS Fri 14-Mar-14 15:05:29
susieb755 Fri 14-Mar-14 21:17:23
nannyah Sat 15-Mar-14 08:40:19
annsixty Sat 15-Mar-14 09:12:30
PRINTMISS Sat 15-Mar-14 17:05:07