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Cystitis problems again and again

(43 Posts)
mrsgreenfingers56 Mon 01-Jul-19 15:21:52

Know this is a medical problem really but any help or advice would be so much appreciated. After intimacy with my husband I am having cystitis type problems again and again. I go to the Drs. and take a water sample and always showing the same being no infection. Then sample sent to hospital for further testing and again no infection. I am having stinging, urgent need for a loo, uncomfortable feelings down below and generally it's miserable. We both have a daily shower, I pass water after sex and wash with cold bottled water. Always wipe from back to front. It isn't as if we are doing this constantly and not rough in any way but and still have this problem. The Dr. gave me antibiotics just in case and advised use of a vaginal lubricant and said HRT would be the answer but as had breast cancer out of the question. This has now gone on since March and my life is around the loo, hard when you go out and mix socially. It's so miserable and really getting me down and of course we are on a sex ban now which isn't good for a marriage. Any help or info or advice please. Maybe I need to go back again to the Drs and ask for further tests. Thanks.

EllanVannin Mon 01-Jul-19 15:26:13

How about your H using protection to see if that works ?

janeainsworth Mon 01-Jul-19 15:28:52

Always wipe from back to front.
It's the other way round, so that you're not introducing faecal bacteria into your urethra.

crazyH Mon 01-Jul-19 15:30:53

Drink lots of cranberry juice.....make that your go-to drink.

mrsgreenfingers56 Mon 01-Jul-19 15:54:02

Sorry I meant front to back

Septimia Mon 01-Jul-19 16:04:24

Is your doctor certain that it's cystitis? I had symptoms that seemed like that but it was actually vaginal atrophy. The doctor gave me tablets (can't remember what but they might have involved hormones). I didn't want to continue them but read that sage tablets are good for that problem. I got them from a well-known health food shop and they seemed to help.

MiniMoon Mon 01-Jul-19 16:16:08

My sister is having similar problems. She saw a new young lady GP who told her it was probably a menopausal symptom. Uncommon, but not unheard of. I'm afraid, if it's to do with the menopause, there is no easy solution.

mumofmadboys Mon 01-Jul-19 16:35:28

Condoms and KY gel may help. Could try occasional vagifem pessaries - hormonal but low dose and work locally. Risk regarding breast cancer very low indeed. Hope things improve

Missfoodlove Mon 01-Jul-19 17:05:58

You have described exactly what I went through for many months. I did often have a UTI and took antibiotics but frequently tests were negative.
I now use D Mannose. I buy from 5 greens via eBay. I have been fine for months and normal activity has resumed?.

SalsaQueen Mon 01-Jul-19 18:28:58

Is it an overactive bladder? I suffered for several years with it (it's not so much of a problem now), and I was weeing 40-50 times a day!! I needed to wee all day (and night) long, and had awful bladder pain. My test results were always clear. I was on Tolteradine tablets, but there are others.

The cranberry juice idea might work for some people, but plain water is best - 4 pints a day, if you can.

aggie Mon 01-Jul-19 18:31:58

Cranberry juice has been disproven as an aid , it is full of sugar

mrsgreenfingers56 Thu 04-Jul-19 11:56:52

Thanks everyone for their feedback. Certainly will give the sage tablets and D Mannose a try, anything is worth it.

annodomini Thu 04-Jul-19 12:24:23

I used to have cystitis all too frequently. Eventually, I put two and two together and realised that it was worse after I'd been drinking gin and tonic. I didn't blame the tonic and since then, having been gin-less for at least 30 years, I have had far fewer attacks of cystitis.

Lynker Thu 04-Jul-19 13:57:46

A friend had had exactly the same problem.....her last urine sample was clear but she still had frequency and pain in her kidneys and bladder. She has now been diagnosed with interstitial cystitis. She has been told to avoid tea, coffee, alcohol, spicy foods, citrus fruits etc. Her symptoms have now improved without medication. She had also been prescribed oestrogen cream which didn't help. She found lots of info online.

Lazigirl Thu 04-Jul-19 14:21:43

Take a look at this interesting article from the Guardian I think December 2018 mrsgreenfingers UTI test often fails to detect infection say researchers. Am so sorry can't do links on iPad.

Dawn22 Thu 04-Jul-19 17:06:12

Anytime l infrequently have a vaginal itch l hold a warm shower on it until it abates. And it does and it has. Also l try and use mind over matter.

I hope this helps. Dawn.

Bordersgirl57 Thu 04-Jul-19 19:21:25

Message withdrawn at poster's request.

mrsgreenfingers56 Sat 06-Jul-19 11:17:01

Have now ordered the D Mannose tablets and some sage tablets and just hope this helps and I can get back to normal with my physical problems and my marriage. I have heard that the jury is still out on the Cranberry juice and not proven really to be of any true benefit as Bordersgirl57 seems to think. Thank you for your advice on the Bladder Health UK and the specialist physiotherapist. It has helped doing a blog and know ladies are wanting to help. Thanks.

Floradora9 Sat 06-Jul-19 14:54:43

Septimia is right I thought I had countless attacks and now realise it was not cystytis . Vagifem cured it .

Ironmaiden Sat 06-Jul-19 15:05:15

I am in the same boat mrsgreenfingers56 except I don’t have sex because I am not in a relationship! I am on HRT and now on a reduced dose so I think there’s a correlation. I was prescribed Yes VM but now they’ve stopped allowing it on prescription and it’s since I changed brands the bladder symptoms have returned with a vengeance. I am speaking to the doctor on Monday and hoping they will consider prescribing estrogen gel for me. It’s miserable isn’t it? I never had cystitis in my life before I hit the menopause.

NotAGran55 Sat 06-Jul-19 18:05:37

Vagifem was the answer for me .

mrsgreenfingers56 Sun 07-Jul-19 16:52:14

Thanks NotAGran55 for the info on Vagifem and I am so glad it has worked for you but I am a breast cancer success by 10 years and this product contains oestrogen which is out of the question as my bc was fuelled by oestrogen.

Regards Ironmaiden I thought I had read recently in the Daily Mail health pages on a Tuesday that Yes lubricant was now available on prescription? I have been buying Boots own make as cheaper than the others, you don't get much in it though. Just kept my husband away from me for months now, I'm still not right. I have a good few days and then it seems to come back, I have been to and fro to the Drs. with this. You are so right, it's miserable. Up and down in the night, waking up feeling so tired and then "having a try" as my mother used to say before going out and working out where the loos are.

Would say ladies that the breast cancer was obviously far worse, but I have had more pain with this than the mastectomy and I'm not joking. Please do all go for your mammograms. Thanks everyone.

clementine Sat 13-Jul-19 18:25:59

You can still take Vagifem if you are a breast cancer survivor . I suggest you look on Face book , there is a brilliant closed private group committed to helping people with VA. The group includes GP's who are very helpful. My VA was picked up after going to the GP with recurrent cystitis . A year on Vagifem is equivalent to taking one HRT tablet .

clementine Sat 13-Jul-19 18:27:11

Also recommend Yes VM for daily moisture and Yes OB for sex. You can use both for this if you need to. Olive and Bee do a good vaginal moisturiser as well .

mrsgreenfingers56 Sun 14-Jul-19 13:22:06

Found out that Yes VM is now available on prescription so been back to the GP who has given me a prescription. Also she has sent me to the hospital for blood tests complete with my water sample (yet again) and has booked me in for a more detailed internal and examination. Have started to take the D Mannose which I ordered. Very interested clementine to read that Vagifem is only equivalent to taking one HRT tablet and thanks for info on Yes OB, Olive and Bee for their moisturisers. Again thanks everyone.