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Post Covid face and tooth pain

(22 Posts)
kittyhawk Tue 05-Dec-23 16:46:48

Hello, I had Covid at the end of October for the first time. Not especially ill but dramatically lost taste and smell on about day 4. That has largely ( but not completely) returned but since about a week in I've had pains in the teeth and some face and jaw pain. Pain seems to travel about and hasn't really gone away. I'm wondering if this weird symptom has been experienced by anyone else? Approached GP and was given pregabalin which didn't make much difference. Any tips or advice? I don't know anyone else who's had this!

fancythat Tue 05-Dec-23 20:42:39

I havent heard of anyone else having it either.
I was waiting to see if anyone else replied, before putting forth my rather lame idea.
Could it be that you are clenching your mouth in some way?
But you have been to a GP so I would have thought he might have suggested that, if it was a consideration.

Did the GP mention contacting your dentist?
The pains and covid may not be connected?

M0nica Tue 05-Dec-23 21:08:17

I have had a wandering neuropathy since having a mild, but long lasting attack of COVID a year ago. At times it has included, face pain.

Neuropathy, genralsied pain seems to be quite a common side effect of COVID.

kittyhawk Tue 05-Dec-23 21:50:27

I haven't been to the dentist yet about it but I will. V regular with checkups, xrays and hygienist so I don't think my teeth are the source but dentist might have other ideas. Its v weird. Thanks for your reply

kittyhawk Tue 05-Dec-23 21:52:24

My laywoman's research has shown this to be the case. Inflammation. Another of Covid's gifts. Sorry to hear of your own neuropathy; are you on meds for it?

growstuff Tue 05-Dec-23 22:14:49

People (even doctors) confuse neuropathy and neuralgia. Neuropathy is usually unremitting, whereas neuralgia is episodic. They are treated with different families of pain killers.

If I were you OP I'd try a different painkiller.

Incidentally, I have debilitating diabetic neuropathy, but my GP told me that he wouldn't prescribe pregabalin to his mother, which was enough to stop me trying it.

M0nica Wed 06-Dec-23 08:55:22

My neuropathy, after a year does seem to be fading, but it has triggered carpal tunnel syndrome in my left arm and led to a reoccurance in my right arm, which was operated on, not entirely successfully, 5 years ago.

I am currently waiting referral to a specialist for carpal tunnel treatment. The wider neuropathy is largely self-diagnosis, doctors having been going off down all kinds of rabbit holes, imagining symptoms I do not have, and in fact they have shown little or no interest in the pain, just the reason it started, yet the one question none of them has asked me is 'Have you had COVID.?'

I have been talking it over with a medical friend and doing considerable academic research, which I am trained to do, not relying on social media. I intend to raise the COVID question at my next encounter with the NHS.

growstuff Wed 06-Dec-23 22:16:58

MOnica I'm by no means an expert on pain (apart from being a sufferer of all sorts of pain). A few years ago, I was referred to a pain consultant, who explained quite a bit, including the differences between neuropathy, neuralgia and another kind of pain, the name of which I've forgotten.

I know for a fact that I have diabetic neuropathy, which is the result of nerve damage. The damage can't be repaired or reversed; the best I can do is try to prevent it from getting worse and taking appropriate painkillers, which belong to a specific group.

I also have neuralgia in my hip, which is not related to neuropathy, but flares up occasionally. The painkillers I take for neuropathy don't touch it, so I have to take painkillers from another group, which do work for the pain but (together with the neuropathy painkillers) leave me feeling like a zombie for much of the time.

My GP told me that many patients take the wrong painkillers, which unfortunately don't improve the pain, but do leave people feeling like zombies.

I'm currently starting investigations for the hip pain and have been referred to a consultant, although I have no idea when I'll be seen. I've had tests for vascular issues, which were negative (thank goodness), have a DEXA scan booked for next year because I have been diagnosed with osteopenia and take an aromatase inhibitor after breast cancer treatment, which is known to affect bone density.

It's important to know what kind of pain a patient has, so that the appropriate medication can be prescribed. All medications have side-effects, so it's important that people are at least taking something which will be effective and not suffer the side effects in vain.

BlueBelle Wed 06-Dec-23 22:37:12

Interesting kitty I had my second dose of Covid in September with very little effect slight cold but nothing more…. however I ve had two tooth abscesses since but both times the dentist has said there’s nothing wrong with the two teeth involved lots of pain, neck pains which I thought was connected to this mysterious tooth problem
I would never have connected the two things in a hundred years now I m wondering.?

growstuff Wed 06-Dec-23 23:37:27

BlueBelle

Interesting kitty I had my second dose of Covid in September with very little effect slight cold but nothing more…. however I ve had two tooth abscesses since but both times the dentist has said there’s nothing wrong with the two teeth involved lots of pain, neck pains which I thought was connected to this mysterious tooth problem
I would never have connected the two things in a hundred years now I m wondering.?

It's known that Covid affects the body's immune response. Usually, the body would fight off a minor gum infection, but I guess it's possible that it could become more serious if somebody has a compromised immune system. All variants of Covid are not just respiratory viruses. They affect the whole body in multiple ways, many of which haven't even been researched yet.

HelterSkelter1 Thu 07-Dec-23 04:54:16

I like that term "wandering neuropathy". I think that is what I have 18 months after finishing chemo for Non hodgkins lymphoma.
Pains come and go all over my body. I have decided to try and put up with them as I do not want any further medications especially ones which are zombifying....which I have tried.

OP could br clenching her teeth and a dentist could make a nightime mouth guard for her which could help.
My daughter has Long Covid and the effects are many and varied and very debilitating. Research needs to be done. It is not "just a cold". Or Long Covid is Bollocks as the buffoon says. I can foresee him today saying his loss of memory and loss of 5000 Whsts apps is down to Long Covid.

sassysaysso Thu 07-Dec-23 06:43:04

Now this may not be at all helpful but I experienced episodes of general tooth and jaw pain unrelated to Covid. I had been suffering from sensitive teeth for some time previously. Mentioned it to dentist and he prescribed Colgate Duraphat toothpaste. Have not had a problem since, that was a couple of years ago.

Oopsadaisy1 Thu 07-Dec-23 08:41:14

DDs friend is a dentist and has seen many many people who have had Covid and now have toothache and face pains.
DDs own friend had Covid in the very first weeks of the pandemic and some of her teeth have fallen out.
The dentist also noticed that some people who have toothache and face pain have recently had a Covid booster.

Oopsadaisy1 Thu 07-Dec-23 08:45:57

PS afte x raying their teeth they have been fine, no tooth problems at all, as he is a Private Dentist and they have to pay for treatment I’m sure they aren’t making up their symptoms.

Esmay Thu 07-Dec-23 11:04:46

Have you got trigeminal neuralgia ?

I have it sporadically .
If I feel tense , I exhibit bruxism - tooth grinding at night .
If it gets worse , I have to get a bite guard made .
Cold weather and ice cream also can set it off .
Warmth and pain killers relieve it .

Covid seems to be causing long term effects .
One of my friends -apart from having memory problems has bitten through her crown and cracked her molar .

maddyone Thu 07-Dec-23 11:30:40

I’m very interested in this kittyhawk as I have been suffering from horrible nerve pain for two years plus now. I had Covid in January 2021 and was hospitalised with it. A while later I had a UTI which failed to respond to the usual antibiotics and I was given a very strong antibiotic (sorry I can’t remember the name of it) and along with all of this I started to develop pains in my fingers on one hand. Gradually the pain became worse and has moved into my hand and arm and also my left arm too. I’ve had a variety of investigations, the latest being an MRI on my neck/upper spine. Although a narrowing has been detected which maybe causing the problem, it is not certain. I take paracetamol four hourly every day, and a small dose of Pregabalin. I can’t take Ibuprofen unfortunately. I rub Voltarol into my arms and right hand and fingers throughout the day. The pain never goes away, is merely more or less throughout the day. I’ve been told that there is emerging evidence that Covid causes nerve damage and nerve pain. Also the antibiotics I took can cause nerve pain.
I’m at a loss as to what to do. After my latest appointment I’ve been told the spinal team may take me on for an epidural into my upper spine which may help with the pain. No one can give me a categorical reason for the pain. I’ll know in about a week if I’m to get the epidural and then there’s a four month wait for the treatment. I’m going to New Zealand after Christmas for six weeks so hopefully that will distract me a bit from the pain.
So I really sympathise kitty with what you’re going through. It may possibly be to do with Covid, as may your pain, but as yet, we don’t know anything for certain.

growstuff Fri 08-Dec-23 03:45:42

sassysaysso

Now this may not be at all helpful but I experienced episodes of general tooth and jaw pain unrelated to Covid. I had been suffering from sensitive teeth for some time previously. Mentioned it to dentist and he prescribed Colgate Duraphat toothpaste. Have not had a problem since, that was a couple of years ago.

My (NHS) dentist has coated my teeth with something (not exactly sure what) every year for about five years, which has eradicated generalised, unexplained tooth and jaw pain which occasionally flared up.

M0nica Fri 08-Dec-23 10:03:30

maddyone have you been investigated for carpal tunnel syndrome? Your symptoms sound very like mine, except mine started very suddenly and were attributed to a minor stroke although they were nothing like stroke, except they were left sided, and at the time it happened I checked the symptoms of a stroke and deliberatly did and said and looked at myself to confirm I was not having one. Multiple scans and tests show no evidence of me having had a stroke. However the main doctor is convinced I had one despite the absence of evidence and several other doctors expressing severe doubts.

However I had had carpal tunnel in my right arm previously which had been operated on, not entirely successfully and whatever triggered it, it is clear I now have a serious carpal tunnel problem inboth arms together with tendonitis and RSI. Yet I cannot get any doctor to investigate it. The problem is one gets stuck with the diagnosis the lead doctor gives, even when it is wrong, and no one will investigate anything else.

In the end I made my own arrangements to see an appropriate specialist, who confirmed that I had a quite severe carpal tunnel problem and needed an operation on my left arm and a repeat one on my right arm and that this was the cause of most of my problems - but of course carpal tunnel syndrome is a neuropathy.

However separately, I developed an all over nervous pain that washed over me, caused waves of cramp, sciatica, round my face and general pain. I tried to see my GP, but without success. She just dismissed it and told me to come back if it got worse!

The thing that amazes me is that no one through out this saga has asked me whether I have had COVID. Even though, my considerable academic research has shown me that neuropathy is a very common side effect of COVID up to three months later and that it is not related to how severe the attack of COVID was.

kittyhawk Sat 30-Dec-23 20:50:46

Thanks for this. I looked up the Duraphat. I didn't know that fluoride can make teeth less sensitive!

travelsafar Sun 31-Dec-23 00:03:29

I had covid this time 3 years ago, the Delta virus kind. I swear it made all my joint issues worse. I took the occasional paracetamol or ibuprofen tablet if I was in pain. Since having covid I take two meds for heart issues, a blood thinners, pregablin fir nerve pain and codi par. I stopped taking the codi par as caused big issues with my digestive system and now take just paracetamol, although they don't take away the pain completely. But having said that the codi par didn't either. As others have said no one seems to take note of me having had covid and was in hospital for treatment. I do wonder if I have a form of long covid now😮‍💨

harrigran Sun 31-Dec-23 09:45:41

DS has long covid, he had cardiac symptoms, was hospitalised, but also suffers from facial pain which resembles trigeminal neuralgia.

bridgetharrisnyc Thu 11-Jan-24 15:22:37

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