dec 2016 I had major surgery for colon cancer, with the recommendation from the surgeon for follow up colonoscopies for "suspicious lesions"(in hard copy)
11 cycles of chemotherapy until august 2017, followed I assumed by the necessary further procedures to detect any remaining cancer.
despite many oncology appointments and the usual scans and despite us as a family requested the follow up procedures our concerns were dismissed or ignored.
by 2018 still no follow up despite requests, even contacting the cancer co-ordinator line many times asking what was happening ,why hadn't I had the further procedures, there was never any conclusive answer.
receiving the usual answer of "we done know"
even admitting that I had "fallen through the net"
by 2019, I was feeling poorly so had to make the decision to do the government bowel screening programme which not surprisingly showed abnormal results.
1st colonoscopy was done, only to be referred to a more specialist surgeon.
2nd colonoscopy was done, (which he asked to film as it was large)
3rd colonoscopy was done to see if the cancer had gone into the bowel, all this in a matter of weeks, so I was feeling totally exhausted and emotionally drained.
yet I have asked so many times for someone, anyone ,to tell me why the original surgeons recommendations in 2016 hadn't been followed through as he instructed.
now in 2020, no one is informing me of why I endured these 3 colonoscopies in 2019, when they should have been done in 2017, when perhaps the cancer hadn't been so large.
not sure what I am asking here, or am I being obsessive with my cancer stress.
Good Morning Friday 19th April 2024
