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AIBU

To think DD's oncologist was insensitive?

(169 Posts)
merlotgran Wed 03-Apr-19 20:07:09

As many of you already know, DD has been diagnosed with a rare gall bladder cancer and sadly the prognosis is poor. Up until now she has been under the excellent care of the Hepatobillary and Gastrointestinal team but is now in the hands of Oncology. Her first appointment to discuss chemo was yesterday afternoon. Oncology outpatients was very very busy and we were relieved not to be kept waiting as DD has to use a wheelchair and the waiting room was packed.

The oncologist swept into the consulting room and with the briefest of introductions launched straight into the bleakness of the case, using words like 'terminal', 'slim' and 'palliative' before we hardly had a chance to sit down. In short, they will attempt chemo in two weeks time but she was almost certain that DD would not be able to tolerate it due to her poor liver function in which case they would stop!! Any questions were answered by being handed a leaflet to read at home. DD was then instructed to get measured and weighed on the way out.

The HGB team had been encouraging using words like, 'hope' and 'positive'. When on the ward DD was treated with kindness and compassion. This encouraged her to do things like get her hair done, go out for lunch with us last Friday and even make a short trip to Tesco with her son. Now she's at rock bottom, deeply depressed and scared. It's been an awful day.

I know the NHS is stretched to the limits and an oncologist is not responsible for emotional support but I drove home fighting my anger at the damage done to DD's emotions.

Maybe I'm just oversensitive. We're all scared.

Patticake123 Fri 05-Apr-19 12:37:28

Dear Merlot this is a despicable experience for you and your daughter. I can’t imagine you’ve got much spare energy in your tank but if you have I would suggest you write to the Chief Exec of the NHS trust and tell that person what you’ve told us. This will not help you or your daughter but it may help other patients in the future. Your daughter could also make contact with her oncology nurse and perhaps she may get some help from them. ?

luluaugust Fri 05-Apr-19 12:43:50

Merlot my thoughts are with you all, absolutely everything all wrong with what happened, in fact plain cruel.

Nanabanana1 Fri 05-Apr-19 12:47:39

So sorry Merlot my thoughts are with you and your family in this terrible time.??

anitamp1 Fri 05-Apr-19 12:50:48

How absolutely awful for you all. Nothing I can say to help. But I did work in a hospital for years and most Consultants I came into contact with were caring, sympathetic human beings. I am sorry you have had such a dreadful experience. I wish you the best in an impossibly sad situation.

hulahoop Fri 05-Apr-19 12:54:47

So sorry to hear about your poorly daughter and how she was treated by the oncologist I hope the team you see in the future have more compassion my heart goes out to you and your Dd, take care of hyourself ??

GabriellaG54 Fri 05-Apr-19 13:06:32

I think the words cruel, despicable and heartless to describe the manner of the oncologist are a bit OTT.
Who knows what news she has had to give out all day.
Tho knows whether she had had time for lunch (if it was an afternoon appt)
Who knows what hours she'd worked during that week.
I'm perfectly sure that we, in our working lives, sometimes fell short of sympathy, empathy, expertise, kindness etc.
We often get pushed to our limits and beyond, suffer stress and anxiety and low moods but expect others not to fall short.
Why?
Cut the medic some slack instead of reporting her and writing to the hospital to complain.
That's exactly why they are leaving the NHS in droves. Pressure to be 100% day in day out.
You aren't and nor are they.

GabriellaG54 Fri 05-Apr-19 13:07:29

Tho Who

Willow10 Fri 05-Apr-19 13:16:23

Merlot - words fail me. Insensitive beyond belief. flowers

JMitch Fri 05-Apr-19 13:18:07

Merlotgran - you need to contact your nearest Maggie's Centre, or Macmillan team as soon as possible. They are not just about helping people with Cancer but they help all people affected by cancer. They may not be able to do anything at all for your daughter's treatment plan, but they will help YOU get your head round what is going on, how you can help her and her family, and also help her with any and all issues around her life with cancer. pick up the phone now . . .

Newatthis Fri 05-Apr-19 13:22:10

How awful for you and your daughter. I cannot imagine what you are going through and hope I never will. Please try to put this awful experience at the back of your mind (very difficult) and concentrate on time spent with your daughter. Blessings to you both xx

llizzie2 Fri 05-Apr-19 13:24:24

This is why no other country in the world would have an NHS like ours. It is the cheapest way the government can keep tabs on the whole population. It started during the war when the then government wanted to know the 'psyche of the people'. Doctors had to fill in report forms on everybody. When the war ended it was made permanent, which is why our doctors emigrated across the pond. It also ensured that the labour party won the election. Every election since they have said ''lay off our free NHS''. They know that it cannot be free now. Hospitals are few and far apart. It costs a lot to travel and park the car if you have one. The control is so oppressive it is doing nothing for our 'psyche'.

It should never have been completely free in the first place. A small contribution would have ensured our privacy. Until almost into the 1980's we were not even allowed to know what we had or what medicines were prescribed. Prescriptions were in code in awful writing. Now if political parties want to win elections they promise to keep the service free, but we all know surely that it will never be free. It may be AVAILABLE at the time of need but it will never be free.

The treatment of the elderly is so bad now. They blame us for taking up beds whenever they get the chance.

alchemilla Fri 05-Apr-19 13:44:18

OP So sorry for your daughter. Perhaps you could draft something for her to send to PALS so she feels she is doing something to help the next person along? In the meantime do go to MacMillan or any of the other cancer charities for help and support for her - they can speak to her in a way which is at least helpful and optimistic and help her do the things she wants and needs to do.

alchemilla Fri 05-Apr-19 13:50:34

llizzie2 I don't know really why you felt this was helpful on this thread.

The NHS didn't start until 1948, not during WW2. There was no use of hospitals during WW2 to observe the "psyche" of the people - no one had time to fill in report forms and it's not measurable. The only report forms they would have done would be the usual death/cause form every civilised country employs. Our doctors didn't cross the pond in the Fifties particularly.

Kalu Fri 05-Apr-19 13:54:10

No excuse for any medic who has had it clearly and regularly explained the importance of putting all patients at ease.

Some consultants do become very full of their own importance and I have had to have a chat, as a ward sister re being too blunt and unsympathetic in explanations to patients

Re being a medic, no matter what your day has been you stay professional and do your job even more so when relaying negative news. Such a consultation as Merlot has described, to my mind, adds salt to the wound.

I’m so sorry to hear what your DD is going through at the moment Merlot my thoughts and warmest wishes are with you both.

Camelotclub Fri 05-Apr-19 13:59:28

Speak to your GP about who to complain to. This person can't go on doing this.

I had an awful doc two years back when I broke my wrist. He actually grabbed it and started bending it forwards! No word of apology or explanation. But this was relatively minor, not cancer.

Don't let him get away with it.

Gonegirl Fri 05-Apr-19 14:04:23

That's very strange about the layout of the room merlot. I can only imagine they try to keep this initial appointment quite impersonal and business-like, as much to protect themselves emotionally as much as anything. It must be a hard job to give bad news out to patients day after day. Let's hope that her next appointment with actual treatment will be different. A bit of kindness and compassion should have been factored in.

Kerenhappuch Fri 05-Apr-19 14:24:36

Merlot, dealing with patients and families in a humane way s part of the job. If the oncologist can't be kind and empathetic, that's on them, not on you for being oversensitive.

I'm sorry you're having such a terrible time, and sorry that someone who's meant to help has made it more difficult.

flowers

minxie Fri 05-Apr-19 14:31:48

When Martyn has his bladder cancer, we nicknamed one Dr, Dr Death. His beside manner wasn’t the best.
He said a few things that weee abit iffy but we managed to brush it aside.
Having said that your consultant needs to go and stack shelves somewhere as she has lost all compassion for the people she treats

grandmac Fri 05-Apr-19 14:44:17

flowers and cupcake. Merlotgran and prayers.

Mamo Fri 05-Apr-19 14:59:58

So so sorry to read of your beloved daughters illness, Merlot, so difficult for you too and all the family. My thoughts and prayers are with youflowers. I hope every other medical person she meets on her journey is much kinder

Madgran77 Fri 05-Apr-19 15:05:32

I am in remission from cancer. The insensitivity of one consultant oncology specialist too my breath away and caused great pain. I requested moving to another consultant and that experience was so different. You are NOT over sensitive! flowers

Mapleleaf Fri 05-Apr-19 15:11:22

I'm not sure what you are trying to say in your post, 1lizzie2, but this thread is in response to the treatment the first poster and her daughter received at the hands as a somewhat insensitive oncologist.
If you want responses on the pros and cons of our NHS ( which didn't start until 1947, by the way), then you would be better off starting a new thread.

BlueBelle Fri 05-Apr-19 15:17:17

Oh Merlot I am so very sorry Positivity can prolong lives Im sure I can only say as others please make a formal complaint it can’t help you or your daughter but could spare others
It’s brought a tear to my eye as when my Dad got taken into hospital suddenly after being a seeming fit and well 91 year old he was starved for three days each day expecting a endoscopy and each day being taken off the list at the last minute and having nothing to eat until a sandwich (I requested) at the evening visit On the fourth day he was taken for the endoscopy and told there and then with no one with him that he had terminal stomach cancer and there was nothing could be done He was in shock and I believe the shock killed him 3 weeks later that was in March he had paid for all his grandkids and families to come over for a family reunion in June I KNOW he would have hung on for that if he hadn’t had such a shock
I made a formal complaint and got nowhere but I just hope the specialist thought about it a bit more for any successive patients
Complain to PALS as well it’s horrendous

Jaye53 Fri 05-Apr-19 15:32:41

There's the patients charter etc.each hospital has one for feedback from patients and families.

Day6 Fri 05-Apr-19 15:34:42

Merlotgran I am so sorry you and your dear daughter received such awful treatment.

Surely part of a doctor's training is tact and being able to cushion news in a way that is honest but sympathetic.

I had to get test results from my GP last week and nothing was clear, but a scan was ordered for me. The trainee GP was a monster! She was really aloof and terse and when I asked about what certain results indicated she was snappy and dismissive - really off-hand. All she saw a pensioner who knew nothing. I was insulted and angry.

Fortunately, on my way in the receptionist handed me a questionnaire regarding "Your GP's performance today" and obviously the training University wanted feedback.

Oh I answered with all cylinders firing! I mentioned she needed to adopt a decent bedside manner, some care for the people she was seeing, if only feigned, and the way she spoke to me was not only dismissive and unhelpful but very bad-mannered.

I do hope your DD has better feedback along the way and is treated by professionals who are helpful and caring. It's a very difficult time for you all and I send you warm wishes and hopes for treatment that helps your dear daughter.