Hoping that all went well yesterday Ferry (while also worrying a bit because you've not updated us ... are you ok?)
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AIBU
AIBU - Is it fair for me to live like this?
(420 Posts)Some of you will know my health problem from my thread in Health about a paractice nurse not reading my notes and administering treatment against my wishes.
I'll not go back over the whole thing but suffice to say I've been living with a wound to my leg since before Christmas which just won't heal.
I do have a referral to the Vascular Unit but no idea how long that will be.
We are starting a new treatment today of trimovate cream which has to be applied every day for the first 5 days so I have to get to the surgery every day (about 3 miles away).
I've been going to the surgery initially twice a week since January and three times a week since beginning of June.
Lots of troubles with dressings slipping away from wound and bandages falling down or unravelling.
Although I'm told they're using the most absorbent dressings, within hours of a dressing change, fluids from the wounds have seeped through 3 layers of dressings and pads & the stockinette. .The volume is so great that it starts to pool around my ankle and the weight pulls the dressings down my leg. It look like I've got a tyre around my ankle - if this makes sense.
Once I get dressed it seeps through the trouser leg and often onto my shoe. If I get the angle slightly wrong, than even getting my knickers off can mean the knickers get pulled over the wet bandage and I then have wet knickers for the rest of the day. I can't go out as everything moves down my leg and anyway, it looks as if I've wet myself as the fluid seeps through my trousers.
I've just entered the next three weeks appointments with the nurse in my calendar and out of interest, I looked back to see when I actually went out socially. I've been out twice since the end of February.
Despite agreeing with one of the senior practice nurses that continuity of care and treatment by qualified nurses only is number 1 priority, I will be seeing 4 different people over the next couple of weeks, one of whom is a Health Care Assistant.
So I'm basically stuck at home staring at the walls sitting with a wet, cold, soggy mess of dressings and bandages around my leg and ankle. In considerable pain as the fluid is toxic and burns my skin as it collects in the dressing and rests on my leg for two or three days. I haven't been able to shower properly for months. The leg cover that you can get for showering is no good for my dressings.
I've now got to go through the rigmarole of trying to get myself dressed and into the surgery - having to go via the chemist to pick up the trimovate cream as they didn't deliver it to me on Friday and can't deliver until late this afternoon.
So my question is, am I being unreasonable to expect a better quality of life? I'm quite down in the dumps about it this morning as I've had this soggy mess of dressings, pads and bandage bunches up around my lower leg and ankle since Friday lunchtime. I'm not sure how much longer I can live like this.
Honest opinions please, if you think I should just suck it up then please say so. I genuinely would like to know if I really am being unreaonable.
How did the appointment go yesterday ferry?
Was the hospital transport reliable?
I hope the wound is continuing to heal.
How did your appointment at the wound clinic go today,, ferry? Hoping all went well, with the transport too. 🙏
Good luck tomorrow Ferry 

newnanny I agree, it is not rocket science, but that GP surgery appears to be totally useless. Ferry is no longer 21 and this experience would age anybody.
I think it is disgraceful that ferry is expected to cover taxi fares so regularly. The odd one in an emergency, maybe.
Some surgeries, like my previous one, had volunteer drivers, but not for me because I lived in a different postcode!
Surely you should have a district nurse come each day to change the dressing and in the meantime keep your legs elevated as much as you can. Ask your GP if district nurs can come to you as getting in 3 miles is probably making it worse.
I have been keeping up with this appalling story ferry! Haven't responded much because there are people here who know far more than me about your situation. My heart is warmed by the support and genuine concern you have received on GN . I am so relieved that at last you are able to feel a little more positive - you have and are experiencing
such trauma and have and contine to be strong. Thinking of you and wishing you well.
So pleased to read this update Ferry, at last! Hope all goes well on Tuesday. 🤞🏻
Charleygirl5
ferry it is an absolute disgrace a year of your life has flashed by and you were unable to do much.
How did you get the wound? I only ask because the surgery will be telling you that ulcers can take many months to heal and some never quite get there.
There is light at the end of the tunnel and wowee, hospital transport. Better late than never.
How did I get the wound - well, stupidly really.
I got up from a new dining room chair which was a very different shape from old ones. I must have knocked it with the back of my legs- it went to fall backwards, I went to stop it but I was too late - but managed to scrape the bottom of one of the legs down my shin. It didn't seem that bad - put a plaster on.
Next day I thought it needed a larger plaster but found a large adhesive dressing which I thought would do the trick. Pulled that off a couple of days later and ripped all the skin from the side and back of my leg...and so the saga started. And I can't even blame anyone else!
That is such encouraging news ferry, and about time too. All the very best for Tuesday. 😊💐
ferry it is an absolute disgrace a year of your life has flashed by and you were unable to do much.
How did you get the wound? I only ask because the surgery will be telling you that ulcers can take many months to heal and some never quite get there.
There is light at the end of the tunnel and wowee, hospital transport. Better late than never.
This sounds much more positive ferry 

Phew. It’s been a long journey ferry. I’ve been following it from the start but thankfully you now seem to be getting somewhere with the logistics and with the obvious improvement in your condition. Onwards and upwards now 🙏🏻
Good ferry may your healing continue, then the sorting out.
Sounds positive ferry. There seems to be a tunnel and light. I’m just so sorry and crosd in your behalf that you’ve had to fight for adequate care.
Great news! I hope you go from strength to strength now ferry23.
I'm so pleased to read this update. Thank you ferry.
Such a relief for you to know that, at last, it appears to be healing well.
This really should have happened months ago!
Hope all goes well on Tuesday.
Ferry23
Having had a friend who suffered as you have your story brought me to tears.
I have told several people your sad/ less sad 😉 story.
That's heartening to read, ferry23, wishing you all the best for Tuesday.
As I thought, my surgery hadn't referred me for weekend dressing change with District Nurse.
However, that left me speechless (but not surprised!). 😡
So pleased to read that. You must be relieved progress at last. Have a lovely sunday.
Hi everyone.
Just a little update so as I don't bore you all to tears!
As I thought, my surgery hadn't referred me for weekend dressing change with District Nurse. I phoned myself and a lovely DN has just been out. She said it's definitely healing well. It wasn't dry but very little discharge, especially since dressing wasn't changed yesterday.
I mentioned to her that I'm hoping to get an appointment at the wound clinic which she said was definitely the best route for me. As luck would have it (which is unusual for me lately!) one of the wound specialist nurses is on the District Nurse round today and within minutes of DN leaving, I received a phone call and I'm booked at wound clinic for this Tuesday.
. Along with hospital transport. 

DN couldn't understand why weekend dressing changes hadn't been requested months ago - not at this late stage. She seemed a bit shocked when I told her that I had to find out and push for a referral myself. Surgery doesn't seem to be at all clear about referrals to other services - another issue to be bring up a little down the line.
I'm still in some pain but less frequently and not so intense. Haven't taken any morphine since Friday evening, just relying on paracetamol now with another 5 days of antibiotics to go.
I'm cautiously seeing a little chink of light at the end of a long tunnel.
I’m so glad to have your update Ferry and really hoping that having been reassured by this competent and sympathetic nurse has made things easier in your mind. I would have been climbing the walls. I really hope you’re having a good (ish) weekend, it’s been awful for you. Take care.
Good news, but the negligence factor can’t be forgotten, it’s a wonder you don’t have sepsis.
A relief that at last you’re getting the right treatment.😃
Yes, hope you have a relatively pain free weekend..and catch up on some sleep that you’ve been missing…💐
Sounds so much more positive ferry. Sleep well
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