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Is anyone out there on SIPONIMOD for MS ?

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Serendipity22 Sat 19-Mar-22 14:25:18

Happy Saturday everyone smile

I am just wondering if anyone has started taking SIPONIMOD for their MS?

I have bee given the chance to begin this new drug ( only been out 15 months ) and i am more ? than thumb .

I am researching and researching and would appreciate anyone's experience.

Thank you smile

On a different note entirely, WE HAVE PURE sunshinesunshinesunshine today, yipeeeeeee.

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Serendipity22 Sat 19-Mar-22 14:26:12

Meant to say I AM MORE ? THAN ?

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Shelflife Sun 20-Mar-22 09:35:01

Serendipity,
Do hope someone in your situation is able to discuss this with you . I am not in a position to do that but wish you well in your research regarding Siponimid. It can appreciate how difficult it must be trying a new drug , has your consultant been able to try put your mind at ease? Good luck in whatever you decide.

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Serendipity22 Sun 20-Mar-22 16:42:40

Thank you Shelflife. Yes i have had an appointment with a neurologist ( not seen 1 for 7 years but there you go...) and I have had an appointment with my MS nurse, both haven't pushed me into taking it, they have talked about it and outlined the pros and cons, BUT i had been doing lots homework previous to these appointments. I voiced my concerns about the side effects ( the worst being SKIN CANCER, HEART TROUBLE and SEIZURES!!!!!! It was suggested that I might 'just' get the mild side effects ( runny nose, headache, diarrhoea) my reply was " Yes and I might not!"
Sooooooo, i am getting as much feedback as I possibly can.

Ohh and the list of medications that SIPONIMOD does not mix well with are as long as 3 ARMS nevermind 1... and I'm taking 2 of the medications..... soooo as i say, i am more ? than ?......

Thank you for your reply.... x

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