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dementia is just the worst

(57 Posts)
Luckygirl3 Sat 01-Apr-23 15:56:46

My late OH's conversation and behaviour became inappropriate and T times quite scary.

The only blessing was that there was sufficient control to not do or say these things to our DDs - as far as I know - but they would have spared me that information I am sure.

He also became very paranoid and threatened me, as he thought I was trying to poison him.

It was all hell.

Blondiescot Sat 01-Apr-23 15:48:34

It is indeed a horrible, cruel illness. I watched my mother slowly deteriorate over a period of years, and now we are going through it all again with my MiL. And it affects different people in different ways - some are very passive with it, others can become very argumentative or even violent. You really do lose the person twice - firstly as the disease robs them of everything which made them 'them', and then finally when they pass away.

LRavenscroft Sat 01-Apr-23 15:10:46

I recall watching a TV programme once about a gentleman with dementia who became really quite crude with his female carers. It did embarrass his family to the extent that they got a live in male carer so that the behaviour stopped.

nanna8 Sat 01-Apr-23 11:40:53

It is a horrible, horrible illness robbing people of their dignity. I saw it with a friend of mine who is now in a care home. She went from being an independent free thinking clever woman to being an inane airhead saying some very inappropriate things indeed. I hate the disease.

Georgesgran Sat 01-Apr-23 09:54:53

Incredibly cruel. This happened to my friend who became very amorous towards complete strangers. I won’t go into any detail, but it was so undignified and out of character. Thankfully it was a phase that quickly passed as she descended into that awful illness.

Shelflife Sat 01-Apr-23 09:23:49

Dementia is indeed a cruel disease. It often takes away inhibition. Not much you can do about that other than try and explain to other family members why she behaves as she does and speaks out character. Don't feel awkward or embarrassed just try and accept, it is what it is - easier said than done , I know that. I wish you all well.

anonymose Sat 01-Apr-23 04:03:06

We've just had the most delightful few days with my husband's sister visiting - a few years since we saw her & I was really looking forward to it.
But the mild confusion we remembered her with has worsened & although she was very cheerful & wanting to help do stuff (everything actually smile ) I was a bit sad to realise that a lot of her conversation topics revolve arond men (previous boyfriends & current friends) & what she wants them to do to her. Not at all like she was - which was a bit straight laced & proper. But still doing fun & silly things with her late husband).
Doesnt life take unusual & sad turns sometimes. We chatted lots, had lovely talks about the old days when our children were all young etc, but often when it was just me & her she would talk about how often all these other men are contacting her. I dont know if she was speaking a reality but I really didnt know what to say, I found it quite awkward.
Have other Grans coped with such a personality change in someone they have loved as dementia takes over more. I definitely dont want to distress or embarass her older children & my DH, her brother got quite embarrassed too.
Darn. smile
PS - her family arranged travel for her to come & stay so this was all with their support & arrangement, she cannot manage public transport alone or drive safely any longer.