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Dementia husband

(33 Posts)
kittylester Thu 29-Aug-24 22:57:21

Screen shots of contacts for Talking Point and Admiral Nurses.

And, please remember that you are only human so give yourself a little leeway.

I help deliver Carer's Courses for AgeUk so please pm me if I can help.

Juniper1 Thu 29-Aug-24 22:51:41

No diagnosis. Brain scan still not interpreted.
Memory clinic appointment deferred from early October to mid November.
Suspect there is no help, just describing.
Still hoping for a magic bullet ….."

kittylester Thu 29-Aug-24 22:49:32

The Alzheimer's Society have a brilliant forum called Talking Point.

As someone else mentioned, there are Carer Courses for people caring for someone with dementia. They are often run by the Alzheimer's Society but, her, they are run by AgeUk.

Admiral nurses are brilliant sources of information and there is a National Help Line for them. I will post links.

Freshair Thu 29-Aug-24 22:35:57

Try singing therapy, there are groups where the sufferer and carer can attend together..its something to do and you may discover a new friendship.

Mt61 Thu 29-Aug-24 22:29:30

How long has he had dementia & what type was diagnosed?
My Pa just started before Covid but because of the rules ( I stuck to) didn’t go over their doorstep- I feel so much guilt that I didn’t notice.
Yes it can certainly be a very trying disease. We are looking after dad at home but he has become much worse keeps waking up in the night, thinking he’s going to work or school. I help where I can & stop a couple of nights to give mum some sleep..(shes 80). Because technically mum is housebound too
Do you have plenty of support? Have tried social services?

silverlining48 Thu 29-Aug-24 22:06:11

Have you been in touch with the Alzheimer’s society. They have all sorts if information about the many issues involved in this cruel disease. You can ring them and talk to someone.
A friend has started a training for carers which is helping her cope better with her situation and she gets support from other carers who understand her situation.
When my mum was diagnosed with Alzheimer’s she was discharged at the same appointment and we were on our own.
It’s a horrible feeling. Please dont beat yourself up about being impatient, its hard for you to but its not his fault. You need to have some support.
Sorry I dont have the number but you can google,

,

Babs03 Thu 29-Aug-24 21:58:42

Am afraid I don’t know enough about dementia to advise, am sure others will be along to do that. But would just like to say that you are being a bit hard on yourself. You are allowed to feel frustrated and short tempered for I can imagine this is one of the hardest things to cope with on a day to day basis. Be kind to yourself and try to find time to think of your own well-being which matters every bit as much as the well-being of your DH.
So sorry this is happening to you.
All the best.

Juniper1 Thu 29-Aug-24 21:50:16

Recently diagnosed. I am trying really hard to help and support, but I am so frustrated. He cannot hold conversations or contribute anymore to what used to be our lives.
I am so lonely on a day to day basis. Some family support, but intermittent.
So many infections and illness that put him on a further downward path.
I find myself getting short tempered , unreasonably I know.
Is there light anywhere, any advice to help me navigate this?
Thank you