Update
Sorry I’ve not updated before.
Baby Henry is still in Homerton NICU, the girls are remaining very positive, if not a bit frustrated.
Henry has lost weight, is no further forward with anything. Morphine was totally removed on Saturday, as a result after the girls had left to come home, he was so agitated he managed to pull out his breathing tube.
This has set him back, he is back on morphine, still on a ventilator, sometimes taking a breath on his own, but many letting the ventilator do all the work.
Mum’s don’t seem to know if he’s had any X rays to check lungs are drying out still, or whether Homerton are going to do brain scan or heart scans.
They have met some nice friendly nurses and a really nice doctor, who today had a consultation with GOSH about Henry.
Tbh, it’s a bit of a nightmare and I’m so anxious. Henry was physically sick last night, so no milk now for 24 hours and he may have to have some extremely high fat formula milk, as he’s just not growing atm.
Let’s all hope it’s a rather long blip and that things will improve so I have some lovely positive news next update.
In our household we also now have our youngest DS being fast/tracked with some potential internal bleeding issues, very low BP and extreme fatigue.
