Update
At last, I saw dear sweet Henry again yesterday.
We (other granny) and I drove the girls to Homerton, (after they’d collected their keys to new home 👍👍🥳🥳).
The (lovely kind and quite funny) nurse was changing his nappy when I went in for my visit.
Henry woke up and was very “cross”, he screwed up his tiny face and kicked his legs and waved his arms around.
The nurse told him she was sorry she’d made him cross, and spoke to him in a very calming and soothing voice. She’s Caribbean and had such a lovely way with him and a lovely big smile. She encouraged DD to open the incubator “doors” on the opposite side and just gently cradled his head, she did this, but it seemed to make him “crosser” than ever.
The extubation and move to CPAP or nostril based oxygen is going to take a fair bit longer than planned, due to him yanking out his tube last week, having another infection and him simply not being ready.
He’s gained some of the weight he lost and is around 2lbs now and just over 6 weeks old and that’s just over 30 weeks in gestational terms.
He’s still on morphine and I think this is the last day on steroids.
Despite our concerns, he’s clearly being well cared for and we are very optimistic he will make the much needed progress, given time.
Enjoy your weekends, thinking of you all with your own “challenges”, and thank you all so very much for your kind, positive, hopeful, thoughts, prayers and messages. All so very gratefully received.
🩵 🌻🌼
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