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Please hold my dear GD in your heart for a few days.

(60 Posts)
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Wyllow3 Wed 19-Aug-26 10:41:35

My lovely DGD age 12 has multiple disabilities.

She can not see beyond 6/8 inches, she has severe epilepsy, cerebral palsy, learning difficulties. Its getting worse not better as she gets older, the epileptic fits very 2 hours mean she is exhausted all the time (not to mention parents, 4 children) and so her learning disabilities get worse and willingness to move around (crawl). In Covid she had to be intubated for 4 days the worst days ~I can recall but it was precautionary as it turned out. But it made me feel, "take me, take me", its not right.

She is a happy soul and sings along to her favourite songs and carries around a yellow shark (protection?)

But today Dad and L set out on the train (she loves trains) to go to Great Ormund Street H to see if she can take part in a trial. this small and fairly safe brain operation would take away 90% of the epilepsy - and give her the chance to be less tired and more mobile and improved learning abilities.

Prayers, and warm thoughts most welcome.

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V3ra Wed 19-Aug-26 11:45:00

What brave parents. Let's hope that L can take part in the trial and be helped by this procedure 🙏🏻

Great Ormond Street Hospital is featuring a lot on Gransnet at the moment.
The NHS at its finest.

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Melanie61 Wed 19-Aug-26 11:32:42

I hope all goes well today. My thoughts are with you all

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Spinnaker Wed 19-Aug-26 11:31:30

🙏 😇 🙏

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AGAA4 Wed 19-Aug-26 11:28:21

Hoping for the best for your granddaughter 🙏

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Nannee49 Wed 19-Aug-26 11:23:37

Prayers, good wishes, every and tons of love to your special dear granddaughter

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Grandmabatty Wed 19-Aug-26 11:22:00

Wyllow your dgd is in my thoughts. I'm wishing her all the best.

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Elusivebutterfly Wed 19-Aug-26 11:21:31

Thinking of you

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SueDonim Wed 19-Aug-26 11:19:57

Wishing your dear GD the very best result from the appointment. It must be so hard to see her struggle. flowers

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TerriBull Wed 19-Aug-26 11:16:02

Sending best wishes to you and your family with a hopeful outcome for your GD. flowers

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Visgir1 Wed 19-Aug-26 11:13:48

They very best of wishes to her and her family.
She's going into a amazing place to investigate/treat this dreadful condition I wish her all the love in the world.

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Franbern Wed 19-Aug-26 11:12:42

So hope that GO Street can accept her, and their wonderful work will give her (and you all) a better quality of life. Thinking of you - it must be so heartbreaking for you. All my good wishes.

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Icandoit Wed 19-Aug-26 11:06:29

Of course I will - I wish your DGD all the best and pray that something comes out of it.

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Nannytopsy Wed 19-Aug-26 11:06:01

🙏 for you all

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Bellanonna Wed 19-Aug-26 11:05:00

wyllow. 🙏🏻. Please let us know how it went today.

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Wyllow3 Wed 19-Aug-26 11:04:06

Oh, I'm overwhelmed by your responses - so many thanks. 🎶🎶

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baubles Wed 19-Aug-26 11:00:07

Thinking of your DGD and family today Willow 🙏🏼

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Sago Wed 19-Aug-26 11:00:02

I pray for your little granddaughter.
🙏

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LizzieDrip Wed 19-Aug-26 10:59:36

She is in my heart❤️

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merlotgran Wed 19-Aug-26 10:59:06

My very best wishes to you all. 🙏

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Shel1951 Wed 19-Aug-26 10:58:10

My prayers are with you

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Cossy Wed 19-Aug-26 10:53:00

Very best of luck today at GOSH thanks 💕🙏🙏

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kittylester Wed 19-Aug-26 10:51:26

Sending lots of love and hopefully thoughts. 🥰🥰

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Cossy Wed 19-Aug-26 10:51:21

Oh Wyllow how heartbreaking g for her and all of you thanks

I will 🙏 and hold her in my thoughts.

💕

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aggie Wed 19-Aug-26 10:50:52

Wyllow praying 🙏🏼 for your granddaughter

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Usedtobeblonde Wed 19-Aug-26 10:49:51

Sincerest good wishes today for your DGD and her family.

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