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feel like giving up!!!

(16 Posts)
travelsafar Sat 21-Sep-19 11:50:32

Starting to get so down with being in constant back pain. I have had so many different types of painkiller which after a few days do nothing. Even worse my GP more or less said there is nothing they can do i have to learn to live with it. I have tried various types of exercise, done physio, been to gym and had spinal nerve block injection but still it gets worse. Now i have pain down the front of my thigh when walking and i know my gait is all wrong and my knees now hurt. Dread to think what i will be like in a few years time. I persevere with walking and bowling and pottering in the garden but some days i just want to give up and just sit but i know that is sooo bad for you. Never throught i would be like this as i was so pro active with my health and physcial well being, running, cycling, aerobics and generally on the go all the time. dont want to sound sorry for myself but some days it just gets too much to bear!!!

Sussexborn Sat 21-Sep-19 12:03:47

So sorry you are feeling so down. Until you experience year after year of chronic pain you have no idea how much effort it takes to keep putting one foot in front of the other. So much easier to pull the curtains across, shut out the world and slump in front of the tv all day.

I hope you can dig yourself out of the black hole once more and start to find pleasure in life. Do you have any walking football or cricket nearby? Perhaps less strain on your back?

SueDonim Sat 21-Sep-19 12:05:14

Constant pain is utterly draining. flowers I've had back pain now and again but only once severely. I didn't know what to do with myself while I had it, nothing relieved it except osteopathy and even then only for a short length of time. Thankfully it eased off, though I never discovered why it started in the first place.

I'm probably teaching granny to suck eggs(!) but have you looked at alternative therapies?

Sussexborn Sat 21-Sep-19 12:15:47

painsupport.co.uk/forums-clubs/

This is a truly supportive forum set up by a patient and full of useful information and helpful shared knowledge.

Have you tried relaxation/hypnosis tapes? Even if you are sure they won’t help you it’s well worth trying. Lots of free help on YouTube. Even 5 minutes zoned out can help you get through the day. A psychotherapist told me you only need to be intelligent and open minded for it to help.

farview Sat 21-Sep-19 20:37:40

Also .. periodically suffer horrendous back pain...i.e right now..had twinges on Friday...then woke at 2.30a.m today...cried with pain trying to get out of bed, took me about ten minutes to get to the kitchen (bungalow so shouldn't be hard!) Took painkillers..but couldn't sit or lie down..so had to stand in the kitchen holding onto the worktop until about 5.30a.m...struggled all day albeit probably about 25% better...but actually feeling scared of going to bed..... because once am lay down...it is so so hard to get up.... crazy thing is...when back is okay..am fit&supple& agile

M0nica Sat 21-Sep-19 21:07:05

Has your doctor referred you to a specialist? If he hasn't get him to do so and also ask for a referral to a pain clinic.

Dee1012 Sat 21-Sep-19 21:08:55

Can I suggest you speak with your GP and get a referral to your local pain clinic...
My son suffered terribly and this option has opened up some new doors in terms of treatment.

Urmstongran Sat 21-Sep-19 21:59:02

Chronic pain must (understandably) drag you down. I cannot imagine what it must be like for you, bless. Agree with others, referral to pain relief clinic. Maybe some physio.

Your quality of life is suffering. How come we can put a man on the moon yet pain control is so elusive?

Hope you find help soon. x

Grammaretto Sat 21-Sep-19 22:17:02

I know you have tried everything but a good osteopath can really make a difference and can tell you if there is something out of alignment which is causing the nerve pain.
I describe mine as toothache in my spine or buttock when it is acute.

I found a book at the library which was really good and explained why we get back pain and how to deal with it.
I think it was just The Back Book. There was no magic cure but ways to deal with the pain. Actually a quick google shows so many books devoted to back pain if there was a cure wouldn't it be wonderful.

I also find yoga helps.

Luckygirl Sat 21-Sep-19 22:28:52

A friend of mine was in this situation and she was referred to Oswestry Orthopaedic Hospital for a pain management course. www.rjah.nhs.uk/Patient-Visitors/Films/Oswestry-Pain-Management-Programme-Film.aspx
It is a 3 week residential course. You need to be referred by your GP.

My friend went into it very reluctantly and with no hope of any positive outcome - but to her surprise it resulted in a massive improvement for her.

Maybe you could look into this. I wish you lots of luck with this - back pain is just awful.

paddyann Sat 21-Sep-19 23:04:15

ry an Actipatch ,even as a temporary measure .My daughter used these for her fibromyalgia pain and they were a great help.Unfortunately nothing works for longer than a few months with fibro so she's been trying loads of other things.CBD oil being another that did help .You can buy a trial size Actipatch online and it lasts for around a week .Its worn 24/7 and I think its worth a try .

GabriellaG54 Sat 21-Sep-19 23:14:59

Have you tried seeing a professional sports physio?

pinkquartz Sat 21-Sep-19 23:21:37

Travelsafar
You have my complete sympathy as I too struggle to live with constant pain in many parts of my body.
Some of the pain is osteoarthritis on both knees. I can't have replacements because my overall health is too poor and I have been refused help by two hospitals.
I can't walk I use a wheelchair but not because of the OA. But from another condition I don't want to write it all out in a forum I just wanted to say that I understand.
I have to take it a day at a time.

I really do not understand why the Govt won't let us try the Medical Cannabis. I have friends in Canada and US they tell me that survive their pain with that help.
Our Govt says they want more proof but one of the MP's husband is making huge amounts of money from growing and selling this abroad? They know it helps.
Why do they let us suffer?

Don't get too down about losing your mobility though. It is awful But you can still have a rewarding life from a wheelchair. I also used to be superactive like you and I nver had a car (I walked or used buses).
This life is my nightmare but I cannot let it beat me. If that makes sense? I am more than just a body in pain. I have a heart and brain.
I have many bad days because of the pain though. Again I do not understand why the govt thinks it is acceptable.

And any doctor who tells you to live with it doesn't know what pain is.
I am trying to learn about how the body experiences pain from a book called Explain Pain.
There are a number of websites I am trying to look at. I find the pain really drains my brain though and progress is small.

If you go to a Pain Management Clinic you can get advice and support. It might be worth starting there.
Best Wishes

quizqueen Sat 21-Sep-19 23:22:35

I found that just being in a swimming pool gives such relief from back and knee pain. If this works for you then I suggest you buy a hot tub for your garden.

newnanny Sat 28-Sep-19 01:45:51

I know just how you feel. I get back pain. Some days it is so bad I can't walk around supermarket. It can be excruciating for a few days then it eases off. I have finally seen the specialist and had mri scan. He thinks pinched nerves but waiting for scan to confirm. If it is this there is operation that can cure it. My mom and sister have had it and another sister waking in queue for operation. You should demand GP sends you to specialist. I have had several different painkillers but nothing helps. If it is pinched nerves operation eases them lose and widens route they take. Try not to lose heart.

cornergran Sat 28-Sep-19 08:33:41

Yes, it’s just overwhelming at times travelsafar and being told to just get on with it is oh so unhelpful as chronic pain. can impact every area of life. As others have suggested referral to a pain management clinic would get you to a consultant who understands the debilitating nature of chronic pain and also understands that we’re all different. It’s not a one size fits all approach. There are a whole raft of techniques out there that can help. If there’s even a small improvement it’s better than none. Please ask for a referral even if the clinic isn’t on the doorstep it could be worth it. One other thought is a hydrotherapy pool if there’s one in your area, warm water and understanding staff who can tailor gentle movement to the individual. Please don’t give up, if necessary see a different GP and always but always focus on the very worst days while you explain the issues.