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Chronic pelvic pain in males

(16 Posts)
harrigran Sun 02-Feb-14 23:38:49

DS, 42, has been suffering pelvic pain since October. He has had all sorts of investigations, blood, cystoscopy and prostate check and they all come back negative. He has had courses of antibiotics and is on pain killers and Amitriptyline yet the pain persists. He believes that physiotherapy may help but apparently it requires someone who knows exactly how to treat pelvic floor muscle in men. This condition is causing a lot of anxiety as he is unable to sit for long periods and his job requires sitting at a computer. I would be grateful for any thoughts on locating a specialist physiotherapist or if anyone has a male relative that has had the condition and they have found anything that helps.

LizG Mon 03-Feb-14 00:49:39

I am no medic but have sat at computers for a great many years. I wonder if his work station is set up to suit your DS ie type of chair, chair height, footrest, etc.To my mind a visit to a chiropractor or osteopath could help as all the other checks have come back clear (which is good). I do hope your DS gets sorted soon, chronic pain can be so depressing.

harrigran Mon 03-Feb-14 01:01:54

I think he has asked for his working conditions to be reviewed, he is very tall and I think this should be taken into consideration.
We need to get him better as it is causing urinary and bowel symptoms and the stress is exacerbating his eczema. With a young family to support prolonged sick leave is not an option.

tanith Mon 03-Feb-14 08:43:24

Just a thought have they considered spinal nerve compression or hip problems? I had this ten years ago and it came with groin/hip pain and problems regarding urinary and bowel. I wonder whether pelvic pain could be referred pain from his back. I had nerve compression of L4/L5 which caused sciatica and the other problems and after a small spinal surgery the problem was cured.

Good idea though to check out his work station situation , I hope they find the cause of the problem soon.

mollie Mon 03-Feb-14 12:47:51

I have heard of this and read an interesting article written by someone who suffered. I think he's also written a book about his experience of trying to find the cause and cope with the pain and he described a form of meditation (I think) that helped him in the absence of a medical diagnosis and treatment. Sorry that's not helpful but I will try to track the article down and come back...might be worth googling or searching on Amazon.

mollie Mon 03-Feb-14 12:53:25

Tim Parks - Teach Us To Sit Still was the book I read but having googled and Amazoned I can see there are lots of ideas and suggestions out there. I hope your husband finds some relief soon.

gillybob Mon 03-Feb-14 12:54:58

Has your son considered Pilates Harrigran? I attend an evening class once a week and there are a few men there too. One older man told me that he was in agony with back, leg and pelvic pain and is seeing a remarkable improvement with the stretching techniques that he has learned in class.

grannyactivist Mon 03-Feb-14 13:04:40

Harrigran this sounds a really grim state of affairs for your son. Can't offer any recommendations, but more information about the condition below:
www.patient.co.uk/health/chronic-prostatitis
en.wikipedia.org/wiki/Chronic_prostatitis/chronic_pelvic_pain_syndrome

harrigran Mon 03-Feb-14 17:29:35

Thanks ga have read all the literature on chronic prostatitis, DS more or less arrived at this conclusion from research himself. Doctors did routine tests but then more or less shrugged their shoulders.
Thanks gilly Pilates is a possibility, he is doing yoga and meditation but no improvement yet.
tanith I considered nerve compression but I think that has been eliminated too, thanks.
mollie, will look into Tim Parks book, thanks for suggestion.

harrigran Sat 08-Mar-14 13:01:48

Update to DS's pelvic pain. He continues to suffer and now has to work from home one day a week as a full week + driving is too painful.
He has an appointment with pain consultant and possibly a Neuro consultant.
mollie he bought and read the book you recommended and found it extremely helpful, many thanks for your help smile

mollie Sat 08-Mar-14 14:35:52

Glad it helped...hope he gets some relief soon!

Soutra Sat 08-Mar-14 14:49:46

Not a solution but do you remember those " chairs" where you sort of kneel astride a backwards sort of stool/kneeler? They were very popular in architects' and design offices and designed to take pressure off the lower back while providing a good working position.

Soutra Sat 08-Mar-14 14:52:55

harrigran flowers there is not much worse than DC with a medical problem.

harrigran Mon 31-Mar-14 23:49:22

Thank you Soutra DS now has one of these chairs in his study.
Today DS got results of x-rays, they found that he has a congenital deformity of the head of one femur. They have assured him it is not the cause of the pain and is just an anomaly that surfaced while doing the investigations. Six months on and we still don't really know what it is.

GarrettHnatiuk Mon 28-Apr-14 11:33:09

It could be so many things, including sciatica. (the low back and leg pain.) There is no reason for anyone to live with chronic pain. Keep getting opinions from various kinds of doctors, until you obtain the right diagnosis.

I had to see over 60 doctors. I've horrible chronic optic nerve pain. I saw specailists from coast to coast. Opthalmologists, acupuncture, chiropractic, neurologists, you name it! Finally all decided drug therapy was the only method to go, So I'm totally hooked on MSContin and Fiorinal w/Codeine, but I can laugh and revel in my family. It's well worth it in my experience.

Good luck to you. Don't quit! Get at least three opinions from ob/gyns. Get referrals towards the best. Good luck to you, my pal. smile

harrigran Mon 28-Apr-14 11:48:44

Not much point in consulting obs/gynae, the clue is in the thread title MALE chronic pain.
DS has seen Neurologist and is having MRI this week.