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chemo

(162 Posts)
etheltbags1 Fri 09-Jan-15 19:24:06

I am starting on chemo soon, I would love to hear from anyone who has gone through it, any experiences (if anyone is still talking to me from the 'betting oneself' posts).
I am having one dose via intravenous and tablets for three weeks.
any advice welcome

etheltbags1 Thu 19-Feb-15 13:46:54

I have asked macmillan for advice but they were just a helpline and they gave me a nurses phone number. I don't need practical help would they just give advice over the phone.?

Mishap Thu 19-Feb-15 13:46:17

Good to hear from you and glad that the side effects have not been too onerous. I would guess that the doc is aware that you need all the sessions and wants to let it take effect before scanning again.

loopylou Thu 19-Feb-15 13:37:14

Hello ethelbags, I was wondering how you were getting on, good to hear from you!
I would imagine that it's difficult to tell the effects on the tumour after only one course and it's the cumulative effect of the drugs that impact on the cancer.
I definitely wouldn't think he was hiding anything from you, just that perhaps the impact after one course may appear disappointing to the patient.
I'm purely guessing here and am sure other GNs can be more helpful.
flowers, still keeping everything crossed for you x

etheltbags1 Thu 19-Feb-15 13:29:25

I am getting a bit scared now, Im on second batch of chemo, apart from feeling a bit sick I have nerve problems in my fingers but they halved my dose and its a little better. I asked if there was anyway to tell if the chemo was working and the tumour is shrinking and the doc said no, I cant have a scan until the end of sessions (4-6) he said and now Im wondering if the stuff is working. apparently you can tell from the blood tests but the doc said he couldn't find the results. I realise he would nt keep me on the stuff if its not working but I thought he might be keeping something from me. anyone else had this experience.

rosequartz Sat 31-Jan-15 09:38:55

Well, the illness may not necessarily make you feel ill if it is discovered before it has a chance to do so. The treatment could make you feel ill in the short-term but will treat the illness and make you better in the long-term.
A bit more long-winded than deeda's quote!

Ana Fri 30-Jan-15 21:55:00

Shouldn't that be 'the illness that is making me ill...'?

Deedaa Fri 30-Jan-15 21:36:09

Here's a little quote for you ethel Chemo is the drugs that make me ill that I take to stop the illness that isn't making me ill from making me ill in the future. Certainly rings a bell in DH's case!

loopylou Thu 29-Jan-15 13:49:33

At least he was well preserved albeit not through taking mistletoe!

Galen Thu 29-Jan-15 12:52:52

Aka PETE Marsh and Lindow man

Galen Thu 29-Jan-15 12:51:05

Mistletoe was what they gave pete bog just before sacrificing him!

Ana Thu 29-Jan-15 12:10:35

Not as poisonous as I thought!

mistletoe.org.uk/homewp/index.php/medicine/cancer-therapy/

But I agree with rosequartz, don't take anything without consulting your consultant first - besides, the majority of the research seems to have been done on patients who were given an injection of mistletoe extract and I can't see that being available on the NHS!

rosequartz Thu 29-Jan-15 11:53:36

Don't even buy it from Holland and Barrett or any reputable health store without thorough checking with your doctor and nurse first.
You have to be extremely careful as some natural products will cause a bad reaction with drugs.

I am all for trying to boost your immune system but would only recommend Vitamin D and perhaps a general vitamin ethel - or nothing at all if you feel uneasy about taking supplements.

amarmai Thu 29-Jan-15 00:30:11

Hi Ethel, I also had the same reaction , but I read that some chemo patients have benefitted from an extract of mistletoe. Perhaps worth checking ?

Deedaa Wed 28-Jan-15 22:05:48

You will feel very tired ethel DH is amazed at how much time he spends in bed. Just go with it and do what you feel you can. You are sounding much more positve now smile All the best!

soontobe Wed 28-Jan-15 22:04:53

I suspect that your mother managed to take some assertiveness out of you etheltbags1, if you dont mind me saying.
She sounds like a formidable person.

etheltbags1 Wed 28-Jan-15 21:07:53

btw, if I had lived in the 2nd world war like my mother, I would have been a GI dolly and gone for the nylons and chocolate. Taken the line of least resistance.(no assertiveness like my ma)

etheltbags1 Wed 28-Jan-15 21:05:43

amarmai, yes I thought mistletoe
was poisonous too. Much to the dissapoinment of some gnetters, I will not be testing it unless I can buy it from trusty Holland and Barrett or such like.

loopylou Wed 28-Jan-15 20:51:25

So did mine annodomini - he nearly shot an American GI snogging a girl under a railway bridge Dad was 'guarding'!

Ana Wed 28-Jan-15 20:49:40

I thought mistletoe was poisonous! shock

annodomini Wed 28-Jan-15 20:48:24

My dad was the captain of the local Home Guard. He always said that Dad's Army was very like the real thing!

amarmai Wed 28-Jan-15 20:47:10

ethel, i read an article regarding mistletoe extract being used to boost the immune system after chemo. maybe worth checking?

rosequartz Wed 28-Jan-15 20:17:06

grin

etheltbags1 Wed 28-Jan-15 20:16:01

rose, her dad was in the local 'dads army', the volunteer defence force, or whatever they were called and he was just as forceful as she is now. (churchills secret weapon).

rosequartz Wed 28-Jan-15 20:09:56

Well done ethel, glad you had a better day.

Who needed Dad's Army if your mother was around? grin

loopylou Wed 28-Jan-15 20:03:11

Really good to hear Ethelbags grin!