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cancer

(312 Posts)
etheltbags1 Tue 28-Apr-15 21:41:14

I have on many occasions asked for advice on these forums but this time it is really serious, my cancer is not responding to chemo and has not been killed in my lymph glands. Any advice how to cope with this situation, I don't feel ill or weak or ready to depart this life and will fight with all guns blazing but what can I say to myself in the small hours when I am scared.

whitewave Sat 30-May-15 19:58:33

Yes ethel of course it is! It seems at first that you will never recover but you will and this time next year!!! Well much before that really, think of the sun that is forecast for June and sit around and enjoy. I felt exactly like that after my cancer op and so did DH after his heart and virus jobby, but now we are back in action - so be patient and go with the flow - let your body do the talking.

etheltbags1 Sat 30-May-15 19:44:36

groan, its about now I start to droop. I feel great in the morning and now Im tired, my mother hs been twice to help with the house and Im ready for bed.Is it normal to feel soooo tired after a day of minimal activity and how long does this last. I feel like 90 years old.

merlotgran Sat 30-May-15 19:28:40

Glad to hear you are back home and beginning your recovery, ethel

Take it easy.

annsixty Sat 30-May-15 18:59:18

Your spark is back ethel and you are all the better for that. Just go with the flow, the garden will wait and as for now being on your own at night ,respect, most of us would be expecting bells and whistles in the "being looked after" department.

Mishap Sat 30-May-15 17:58:48

Well done for coping ethel - like old age, you need to be fit to cope with hospitals!

I never bothered much about noisy patients, as I guess some are too ill, either mentally or physically, to be in control of their actions. And as to the paper on the toilet floors, I can understand that if you miss the bin, some patients might be too sore to bend over and retrieve it.

But there have been occasions when it has been nurses chattering at the nurses' station that have kept me awake - I found that impossible to excuse.

Falconbird Sat 30-May-15 15:50:20

When my son was ill with a kidney stone and had to be hospitalised he said the same thing. Some of the patients were very very demanding and left the toilets in a terrible state especially just throwing paper towels on the floor.

It's a side of hospital life we don't hear much about.

You are doing great Ethel, Hope you are having your egg on toast, or at least lots of toast. I love toast especially with marmalade. smile

Gagagran Sat 30-May-15 14:49:08

I am so pleased you have got through what must have been a real ordeal for you ethel and I feel sure that you will start to feel more like yourself once you catch up on your sleep and can eat a bit of what you fancy. I always think you need to get home to recover from hospital stays and I agree that the noise at night is horrendous. Especially if you are a light sleeper. And I agree also - there are some disgusting and dirty patients.

Anyway they didn't quell your sparky character thank goodness! grin flowers for your wild flower meadow

etheltbags1 Sat 30-May-15 14:28:16

another thing that annoyed me was the inconsiderate patients, if they soiled a toilet they never reported it, they would throw paper towels on the floor when there was a perfectly good bin nearby, but this comment does not just apply to hospitals, everywhere there are people who soil and dirty public places, they are just dirty pigs.

etheltbags1 Sat 30-May-15 14:25:36

falcon, The staff were excellent I have no problems with them, they were kind, caring and professional, more so than I had expected. The fact that they were so busy was the hard part, trying to do several things at once for several patients and Im not the most patient patient, but I had no complaints.
The ward was clean but being me with a phobia, I did extra wipes of my table etc with anti bac spray where I could, just in case.
The really hard thing was the noise, not just the noise of patients maybe crying in pain or nurses feet and trolleys etc rattling around , this was understandable but what annoyed me was the noise of inconsiderate patients, shouting, screaming and rattling things during the night. There were violent patients too grabbing at the nurses as they did their jobs.
There were patients who must have had mental problems who were screaming during the night, I got little sleep.
The food was atrocious, I was on a diet and had no main meals so cannot comment on those but the soup was powdered and tasted dry and the light desserts were not tasty, I was glad to get home to get decent food. I realise it must be impossible to cook for many people and please everyone but I just could not stomach what I had. I longed for toast and maybe a poached egg but was told they did not do that.
However I survived and have had toast everyday since.
I had some hypnotherapy to help me cope with hospitals and that helped but I hope I do not have to go back.

Falconbird Sat 30-May-15 10:34:50

Ethel - when you feel like it or feel up to it - do tell us what it was like in the hospital - it's something we all need to know for the future. flowers

Stansgran Sat 30-May-15 09:56:25

You have to be fit to survive hospital. Waitrose sell a roll out wild flower sheet. Send DD off to get one or get your DM to negotiate for a sheep. Well done to get this far and the nurses and doctors weren't that bad really were they?grin

bikergran Sat 30-May-15 09:38:19

a meadow sounds great! I have a friend who has a big photo of her sons when they were young sat in a meadow full of buttercups smile ethel the bees and butterflies will love it! smile

annodomini Sat 30-May-15 09:27:37

The lawn can wait! A meadow sound like a good idea. smile sunshine

Falconbird Sat 30-May-15 09:14:21

You're doing great Ethel - I admire you flowers wine smile yes don't worry about the lawn. Keep up the good work you are a star.

loopylou Sat 30-May-15 07:53:19

We've all been rooting for you ethel!
flowers and sunshine (I hope!)

Agus Sat 30-May-15 07:48:19

So pleased to hear it's all over and you are home again etheltbags. Welcome back. flowers

etheltbags1 Sat 30-May-15 07:30:54

Didn't think I would have so many friends to give me all these good wishes.
I stayed on my own last night and as its fine this morning, I will just relax, maybe sit in the garden which now looks like a wilderness, I asked DD if she maybe could cut the grass one day and she looked blank and said 'Ive never cut grass before'. Oh dear Ive never trained her very well have I.

I guess I have pampered my little lass over the years, my fault. Will just have to ask someone else or maybe see if I can find someone with a spare goat/sheep etc. Having said this I might just let it grow into a meadow, throw some wild flower seeds and leave it, DGD will love romping in the long grass and Ive never been fond of well tended park like lawns (no disrespect to anyone who takes a pride in their lawns but its just not for me).

annodomini Fri 29-May-15 22:57:24

Glad to hear it all went according to plan and sending good wishes for your recovery. It's good to be at home in your own bed. flowers

Lynker Fri 29-May-15 22:42:25

Great news Ethel! Well done...get well soon!flowers

soontobe Fri 29-May-15 21:52:23

Lovely to hear from you again flowers

Iam64 Fri 29-May-15 20:32:21

Same for me, good wishes and speedy recovery ethelbags flowers

grannyactivist Fri 29-May-15 20:28:57

Adding my good wishes to all the others etheltbags. flowers

Ariadne Fri 29-May-15 20:19:52

Hello, ethelt and welcome back. Try to rest, listen to what your body tells you, and take care of yourself. Glad it's over for you! flowers

Eloethan Fri 29-May-15 20:13:18

ethelbags Now that you're back home, I'm sure you'll feel more relaxed. Hospitals do a wonderful job but the continual noise and activity isn't conducive to a good night's sleep.

Wishing you a speedy recovery.

rubysong Fri 29-May-15 19:02:16

Glad you are safely home ethelt. I hope you are able to rest and make a good recovery. flowers