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Coeliac Disease

(35 Posts)
Sugarpufffairy Mon 04-May-15 19:22:09

My two daughters have said that they will get tested when they show any of the same symptoms that I had. I have pleaded with them to be tested and to have my 5 grandchildren tested. I have discussed this with my Gastro consultant and he advised testing my daughters and grand children but I can not force adults and I cant have the children tested.
It is such a nasty disease which sneaks up while you are so busy with other things i.e. mine was after the death of a person who was important to me but not a relative and 8 months after that my dad died. At first it was assumed to be the shock and stress of it all. I wish there was more testing.
Sugarpufffairy

petra Mon 04-May-15 18:46:03

Sugarpuffairy. I wish your 'nearest and dearest' could have seen my friend when she collapsed and was hrs away from death because of Coeliac disease. Then they might think again. I know this sounds alarmist, but as you know it's very very serious.

MiniMouse Mon 04-May-15 18:32:36

Thanks for the useful link nannieroz111 smile

rosequartz Mon 04-May-15 17:07:38

So many people these days (encouraged by slebs and faddy diet proponents) go around saying 'I'm gluten-free' that people who do have the condition are in danger of being thought 'faddy' unfortunately. However, many restaurants and hotels are much better at catering for coeliacs, and also
on the plus side, there is a lot more gluten free food available in the shops.

nannieroz111 Mon 04-May-15 15:52:15

I think to have the disease must be bad enough without having to explain over and over again that this is NOT just a faddy diet!!!!!!

TriciaF Mon 04-May-15 14:38:15

It is indeed a horrible disease, with a strong genetic component.
When I was first married and having children we had some friends whose first 2 babies were diagnosed with coeliac.
They divorced, remarried and had healthy children.

nannieroz111 Mon 04-May-15 14:36:36

You're welcome GNers. smile

rosequartz Mon 04-May-15 09:16:26

Thank you for the link nannieroz.

Sugarpufffairy Mon 04-May-15 01:01:12

I have Ceoliac Disease and it is absolutely horrible. I was diagnosed over two years ago.
I had never heard of it until after diagnosis which took place in the Rheumatology dept. A smart Dr noticed some marking on my legs and ordered extra blood tests and this was how it was found.
There are a variety of symptoms and many complications. Even my nearest and dearest are not aware of everything and they are refusing to be tested.
If more people understood this disease it would be easier for those who suffer from it. There are so many people with it now. As soon as I mention it almost everyone knows someone who has it.
Thanks for highlighting this Nannieroz111
Sugarpufffairy

nannieroz111 Fri 01-May-15 17:31:38

Coeliac UK are launching a diagnosis campaign during Awareness Week, 11-17 May 2015

They know they have a job to do in helping to improve awareness of Coeliac disease amongst healthcare professionals. Getting this right, will help to reduce the time it takes to get a diagnosis and tackle misdiagnosis of other conditions, such as irritable bowel syndrome (IBS).

Coeliac UK wants people to share stories about their symptoms and diagnosis. The bigger the online community, the more widespread the message.

You can find out more about Awareness Week on their website at: www.coeliac.org.uk/awarenessweek2015