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Benign Brain Tumour

(8 Posts)
NanSue Sat 23-Jan-16 21:40:34

You have certainly had a lot deal with health wise in your life Perdita but I think a positive attitude has served you well. Good luck for the futureflowers

annsixty Sat 23-Jan-16 21:25:30

You were lucky in those circumstances Perditabut you have been very unlucky generally in your life. I wish you well in the future.

Perdita33 Sat 23-Jan-16 18:27:07

Hi NanSue
I had a benign brain tumor in 1988 when I was 33.
I had surgery to remove it and have been ok since.

The first symptom I had was a seizure - I can remember being unable to speak, then blacked out. I had several funny turns over the next few months, and was taking anti convulsant drugs. I eventually had a CT scan and the tumor was diagnosed. The surgeon said it was probably benign, which it proved to be. It was completely removed by surgery.

I remember it being a pretty horrible experience, I was in intensive care for several days and in hospital for 2 weeks. I often wonder what the treatment would be like now, perhaps lasers would be used. I have holes in my skull from the operation, but luckily they're mostly covered by hair (top of my skull). I had breast cancer 4 years ago and lost my hair, so it was very distressing to have the holes exposed.

I consider myself to be very lucky to have survived my brain tumor and had 100% successful treatment. I think I must have 9 lives - 3 weeks ago I had a heart attack and my life was saved by Devon Air Ambulance and Exeter hospital staff.

NanSue Fri 08-Jan-16 21:11:15

*Nelliemoser. I am sorry that your OH has had these problems. It must be equally as difficult, If not more so for you flowers

NanSue Fri 08-Jan-16 20:51:50

Thank you. Nelliemoser.
Luckygirl it is an occipital tentorial menigioma.

Luckygirl Fri 08-Jan-16 18:16:32

The crux of the matter is where the tumour is, as nellie says. That dictates the potential problems it might cause. It sounds as though you are getting good advice and goodcare from your consultants - every person is different, so please do not read anything into the thread of the Eastenders story. I am very glad to hear that it is benign.

Nelliemoser Fri 08-Jan-16 15:10:09

Nansue My OH was eventually diagnosed with a mengioma in the right temporal lobe when he was 61. this was in 2010. This was after about three years of increasing failures at work. The main symptoms then were sleeping a great deal and the only real sign of something wrong was about a year before he was diagnosed when he had a very bad headache one weekend (very unusual for him.) We had a visit to a/e which was inconclusive. The headaches did not happen again but he did appear to be having "absences" in concentration.

(As well as the above he has always shown all the signs of Aspergers) Some of his existing anxieties oddities of that seem rather worse since surgery.
It was removed but I think the effects of the tumour and the surgery did cause some damage. He became more impulsive before surgery he was buying things he did not need. His decision making seems affected, planning anything etc. The effects of any potential brain damage etc will obviously depend on the part of the brain is affected.

I hope all goes well for you. It must be very worrying for you! flowers

NanSue Fri 08-Jan-16 14:10:23

Some years ago I was diagnosed with a menigioma (benign tumour) at the base of my brain. This was only found when an MRI was carried out due to a much more serious problem i.e. a haemorrhage in my spinal cord.
I have 2 MRI scans a year, one for each condition and the last scan showed minimal growth in both. After a trip to a London hospital, the Consultants and I came to a mutual agreement that they would apply a "watch and wait" approach. The tumour at the base of my brain is slow growing and not symptomatic, it has grown to 3.5cms, I really don't know if this is considered to be large or not. I think the growth is likely to lessen as one gets older. I can honestly say I don't really worry about this, however, watching Eastenders story line last night with Alfie being diagnosed ( I wasn't taking much notice at first so not sure if it's benign or not) it got me thinking how would it affect me if I were in the future to have it removed. This must be a fairly common condition and wondered if any Grans out there has had one removed or know of someone that has.
Any info or experiences would be gratefully received and I will add that I'm not easily scared! smile