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Lymphodoema

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pensionpat Tue 04-Jul-17 07:50:54

Not diagnosed yet. Waiting for X-ray results to rule out bone cancer. It's likely that I have lymphodoema in my lower leg. I have had breast cancer 6 years ago,but the lymph nodes were clear.

My concerns are the effect on the rest of my life e.g. Elastic stockings???? Do you have to wear them all the time? My greatest pleasure is gardening. How could I kneel down ?

Can anyone give me some idea of the implications please so I can start to imagine how I can absorb it into my life with the least impact. I want to ignore it as much as possible- do whatever is required, without it being a major issue.

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Alima Tue 04-Jul-17 08:21:36

Sorry, heave no knowledge of the condition but I am sure someone else will. Just a thought, if you cannot kneel down in the future what about having some raised beds created? They can look lovely and no kneeling!

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annsixty Tue 04-Jul-17 08:29:31

I have lymphodema in my right arm after having all the lymph nodes removed during surgery for breast cancer.
I used to wear a very tight and uncomfortable sleeve but gave it up as it was really restricting.
Unless I do something very repetitive and vigorous it doesn't bother me. At times it is larger than the other arm but I don't think anyone notices. Good luck with the diagnosis and the leg.

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silverlining48 Tue 04-Jul-17 09:36:21

A difficult time for you pat. Good luck and hope the xray results are clear.flowers

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whitewave Tue 04-Jul-17 09:43:07

pension very best of luck. I'm also a breast cancer recoverer, and was sent off for a bone cancer check after having a lot of pain in my leg, but no cancer was found. So fingers crossed. Don't do what I did though. I was due to go on holiday a day after my results, but I was so frightened that it would be cancer I put off hearing the news until after my holiday - result -a miserable holiday. But brilliant news when I got back!

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Teetime Tue 04-Jul-17 09:47:45

pensionpat I'm sorry to hear about this but hopeful that it will all turn out Ok for you. There are a number of other causes of lymphodoema. Many areas now have highly experienced lymphodoema nurses who I am sure will help you to continue to do the things you love. flowers

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Charleygirl Tue 04-Jul-17 10:05:55

Good luck re the results. I have PMed you re treatment options.

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pensionpat Tue 04-Jul-17 13:40:38

Thank you everyone. I have heard today that I don't have bone cancer. That's great, but am really annoyed to probably have L. I won't give it the respect of typing it in full!

I have had exactly the kind of detail I needed from Charleygirl.

Isn't GN great for things like this!

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Charleygirl Tue 04-Jul-17 14:03:52

Delighted to be able to help.

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hulahoop Tue 04-Jul-17 14:57:42

Glad to hear your news of no return of cancer it's what we all worry about isn't it .
I'm glad charleygirl was able to give you information you needed . Hope you can continue doing things you enjoy .?

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whitewave Tue 04-Jul-17 15:06:36

Well done!!!! What a lovely relief.

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Nandalot Tue 04-Jul-17 15:50:54

So pleased it has turned out ok. Sorry about the L.

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