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We're at wit's end from lack of sleep!

(33 Posts)
Granny23 Wed 14-Mar-18 09:24:49

In the short term - Is there a relative or friend who could sit with your DH for a few hours during the day time while YOU get some sleep? It will be easier to cope if you have had a decent sleep yourself flowers

Luckygirl Wed 14-Mar-18 08:57:15

All is not well indeed - poor chap; and poor you.

My OH has AF sometimes and always sleeps sitting up. He has been issued with a hospital bed that you can alter using a switch. He also has PD and this helps him to move around in bed, which he cannot do by himself.

But being able to angle the backrest so he can sit up and lie back at will has improved his sleep. He also takes a lorezepam at night to help him sleep.

Hope that there will be some improvement for you.

OldMeg Wed 14-Mar-18 08:17:59

I’d go back to your GP, both of you. I’d put it to her/himin very strong terms that despite what they say or test results show all is not well.

You need to stand your ground and insist your DH gets help as this is not doing his health any good. Be polite, strong and insist. Don’t be robbed off.

silverlining48 Wed 14-Mar-18 08:16:12

Phone the secretary of the consultant at the hospital and explain the situation, s/he will be able to discuss and get back to you probably with an appointment.

Oopsadaisy12 Wed 14-Mar-18 07:58:45

Try and bring your next hospital appointment forward, preferably this week. Hope your DH gets well soon.

Nannarose Wed 14-Mar-18 07:55:56

Quick reply:
You need proper medical and / or nursing advice about the medication
Can you afford any help, cleaner or carer who can help you through this? If not, request an assessment (try through your GP at first as the organisation varies geographically)
Can you afford a bed with electronic risers? I have one from when I had joint replacements done.
I hope you can sort something out

kittylester Wed 14-Mar-18 07:50:43

What a horrid situation. I think you need to talk to the medics.

willa45 Wed 14-Mar-18 07:37:43

Please forgive this long post, but I am in desperate need of advice from health carers out there:

In early January, DH had pneumonia which affected his heart and likely triggered Atrial Fibrillation (we spent New Year's Eve in hospital). He was also having trouble breathing when he lay down flat and could only sleep sitting up.

In hospital, we were told he suffered a very mild heart attack and that there was minimal damage to his heart. He did have a blocked artery that needed a stent.

When they lay him flat in the Cath lab, DH suffered what they referred to as a "flash pulmonary edema" and Cardiologist aborted the procedure altogether. He was in hospital for twelve days after that; first to recover from pneumonia and subsequently to have the stent put in (successfully despite being in A-fib).

During all that time he still couldn't sleep lying down without developing a gurgling/rattling in his chest and trouble breathing. He was sent home (in A-fib) with blood thinners and a prescription for diuretics (water pills) to help dry out the fluid (presumably residual fluid from his bout with pneumonia).

He's since also had two Cardioversions (shock to the heart) and one Ablation (radiofrequency) procedure to get rid of the A-fib. Currently he's out of A-fib, but what is driving us crazy is that he still can't sleep lying down and most nights he can't sleep at all with this chest congestion.

His cardiologist wants him on a water pill even though he doesn't have congestive heart failure...a blood test confirmed it's NOT in chf. X rays confirm his lungs are clear and there's no pneumonia. Our family doctor also reassured us that he doesn't have congestive heart failure.

Issues: Water pill helps but it makes him feel very poorly and could also be affecting his kidneys. A well meaning friend suggested that water pills can affect heart rhythm (dehydration? low potassium?, low blood pressure?) and put him back in A-fib. This new information makes me nervous.

During the day he's fine but he's exhausted from the water pills and lack of sleep (we both don't sleep). The (crackling) congestion in his chest and difficulty breathing seems to happen only at night and only when he lies down. I thought about allergies, but antihistamines like Benadryl don't seem to help.

All I know is that DH manages to sleep only in a chair and very poorly at that. He is miserable to say the least. Most nights, we have lights on and off at all hours. Sleep deprivation is ruining our lives and we need help!