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My brain hurts!

(41 Posts)
Luckygirl Tue 27-Mar-18 11:05:23

I will be there on Easter morning raring to go - I desperately want to know what the cause is and whether anything can be done about it. I am finding the uncertainty very difficult to handle. The symptoms are a bit of a mystery - I have no gall bladder, and it could be bile duct/pancreas etc. (some blood results hint at this) - I have constant pain in that area. But the pain that precedes the loss of consciousness is entirely different and has only occurred on these two occasions.

The worry is that OH will not be alert or fit enough to deal with getting an ambulance if I conk out again. On the two occasions that this has happened I have managed to get through to him but I do feel anxious that he might not hear. This time he rang 111! - I have told him to go straight for 999 next time - to be fair, that is what 111 did, but it just another step in the process, and delay is not good.

It is very bizarre - it is as though something just switches my blood pressure off; it is not remotely like a faint, when you get warning that it is coming on.

Thank you for all your kind wishes.

Lilyflower Tue 27-Mar-18 10:43:08

Have the scan whenever they offer it.

My DH had a prostate cancer scare and was immediately offered an NHS MRI scan at 7.30 in the morning two days after Christmas on his birthday when we were just about to head off to family in the West Country.

It was a massive inconvenience and yet we were very grateful the system was up and running and that the staff were there to help us. The relief of a quick diagnosis was very great too. It made us realise that the 'NHS in crisis' narrative was much exaggerated.

We are very lucky in this country. Have the scan and be reassured as quickly as you can.

Cherrytree59 Tue 27-Mar-18 10:29:05

It may be Easter and All fools day (my sil birthday)
But more important It is your day Lucky, to get your treatment sorted and set your mind at rest.

Good luck
I will be thinking of youflowers

ReadyMeals Tue 27-Mar-18 10:20:21

You could have a type of epilepsy, or an autonomic disorder. It doesn't sound like dissecting aorta or it wouldn't just come and go and come back again, you'd remain seriously ill until treated.

knspol Tue 27-Mar-18 10:17:18

Agree with Maw Broon, keep all options open, NHS apt may get cancelled at last minute. Hope all goes well for you.

Iam64 Tue 27-Mar-18 09:24:56

Goodness Lucky, what scary experiences and what shocking delay.
MawBroon's advice is good - keep all options open x

Liz46 Tue 27-Mar-18 09:17:53

I had a CT scan over four weeks ago and don't know the result. I finally got through to the consultant's nurse yesterday but she couldn't find it!

MawBroon Tue 27-Mar-18 07:58:20

Keep the private appointment in case I think. “A scan in the hand....”
It is a reminder that the NHS does function 24/7 at least in hospitals, Paw had a colonoscopy and gastroscopy booked for Easter Saturday last year. The hospital car park was deserted, the M1 and roads to the Royal Free deserted ( well it WAS a Saturday when Golders Green is almost entirely free of traffic) and the easiest visit I have ever done. (The fact that their admin had yet again cocked up and they had no record of the colonoscopy referral another matter, but the less said about my frustration that day the better)
I hope it shows nothing that can’t be fixed and puts your mind at rest.

cornergran Tue 27-Mar-18 07:50:21

Blimey lucky what a muddle. Hope the MRI is agreed to be the best option. Not long to wait. No wonder your head hurts with it all. flowers.

Nana3 Tue 27-Mar-18 07:10:58

Thinking back to the pain I had before I eventually had my gall bladder removed and sending my sympathy and best wishes lucky. flowers

Billybob4491 Tue 27-Mar-18 06:51:13

You are in good hands, hope all goes well for you.

morethan2 Tue 27-Mar-18 06:11:34

I hope you get this sorted quickly, it must be a worry. Fingers crossed and all that here’s hoping you live up to your user name. Xx

OldMeg Mon 26-Mar-18 14:28:42

Also glad that you’re having a scan in the not so distant future. Hope you get the results quickly too.

kittylester Mon 26-Mar-18 14:21:03

Flipping heck, Lucky!

Glad something (anything?!) is happening - it must be very scary! flowers

hildajenniJ Mon 26-Mar-18 14:16:52

Four weeks wait for something that is urgent. That's dreadful!! Easter day is okay , and it seems that an MRI scan is better than a CT scan. I can only wish you luck, and hope that the cause of your malady is easily treated.

Luckygirl Mon 26-Mar-18 14:02:01

After a second episode of epigastric pain followed by a plummet in blood pressure and losing consciousness (OH said I was grey and drenched in sweat and out of it for a ,long time) and a trip to A&E in an ambulance, GP referred me for an urgent CT.

I rang hospital and they said the referral had to be triaged and, if agreed as urgent, it would be about 4 weeks. Talked to GP and referral was sent to private hospital (I know, I know) for CT, which is booked for 6th April - they only do them on a Friday! Mega-bucks involved.

Heard from NHS hospital today - it has been agreed as urgent and that an MRI is more appropriate, and it has been booked for 8.30 am on Easter Day!!! - which just happens to also be April Fools' Day!!

Waiting to hear back from GP as to whether I should cancel CT - I assume so. That'll save me a bit of dosh from my savings!! Hoorah!

I am happy that they are cracking on with it, because I am having trouble sleeping - on both occasions the problem has occurred as I lay down in bed; as I lie down now I keep getting flashbacks to the last incident and it jolts me awake. I will be glad to know what is going on here.

OH (a doc) thinks I will die and there will be no-one to look after him - hmm.