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Post cataract op complications

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shabby Thu 12-Jul-18 18:31:50

I have had problems from day with my left eye following a cataract operation. My eyesight is ok but I have terrible problems with light and glare and I have a dark shadow in the temporal portion of the vision in this eye. I mentioned all of this at my follow up appointment and was told it was probably caused by my astigmatism and that once I got new glasses it would be fine. After going backwards and forwards to the opticians for several months, new glasses, various tests etc, it wasn't 'fine' and eventually I was referred back to the hospital. Eight months after the op I was finally diagnosed with negative dysphotopsia which apparently is quite rare (my optician hasn't even heard of it). My dilemma is do I continue to live with this condition or have the lens replaced. Lens replacement is tricky and the longer the lens is in place the more difficult replacing the lens becomes and it is not without possible complications. Also there is no guarantee that the new lens will be any different/improvement as the consultant said they have no idea why this condition occurs and who it might effect.

My questions are:

1. Has anyone else had this condition post cataract op and have you continued to live with it?

2. Has anyone for any reason whatsoever had their artificial lens replaced and was it successful?

I would be grateful for any feedback. It is so hard trying to make a decision when even my optician hasn't heard of this condition and my consultant says he only has to replace 1 in a 1000 artificial lens post op.

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grandtanteJE65 Sun 15-Jul-18 14:34:51

I'm sorry I cannot help with the main problem, only with one of the more minor issues.

You say you are troubled by light and glare: the best thing for that is a pair of yellow sun glasses. They can be difficult to get hold of these days, as pale yellow lenses are not in fashion, but if all else fails a shop selling equipment to hunters is likely to have them, as some use them when out on a duck shoot.

They used to be sold too, as fog glasses for drivers.

I do hope some-one can advise you properly on whether to have another operation. Could your doctor not refer you to a specialist with experience of this rare condition?

Best wishes for a good solution.

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MawBroon Sun 15-Jul-18 14:41:16

I can offer no advice, but lots of sympathy.
I do however think you should not just “put up with it”.
Can you get a second opinion or even better, get to
Moorfields Eye Hospital in London?
I know DH had his lenses ( or maybe just one) replaced when it became scratched after his cataract ops, but dot know the details.

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shabby Mon 16-Jul-18 12:05:12

Thank you grandtante and MawBroon for your response and kind words. I do still need prescription lens in sunglasses and will ask my optician about pale yellow lens.
My operation was at St Thomas's in London which has a very highly regarded ophthalmology department. My consultant has said he would be happy to exchange the lens and has promised that he would do the operation himself but he has emphasised that he cannot give any guarantee that the replacement would be any better than my existing lens because they just do not know who might be affected by this condition or why it happens. The consultant actually told me to go on the internet and do some research on the condition. He hasn't suggested that I 'put up with it' those were my words but he did say that I have to weigh up how bad my discomfort currently is versus the uncertainty that the replacement lens could be an improvement.

This is why I am reaching out to try and find any other suffers or anyone who has had an IOL replaced.

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