paddyann, I have the same with my DD. Lots of urinary infections as a child with unexplained urinary incontinence but otherwise healthy kid with plenty of energy. She hit puberty and things started to go down hill a bit; they thought she had M.E. after a chest infection but she managed to go to school everyday before getting a brilliant high powered job. I remember the podiatrists looking at her feet and pointing out lumps protruding from her feet where the muscles were lax and she had the most dreadful stretch mark which were bright purple. However, it was only when she got pregnant she just crashed with joints dislocating, dysautomnia, etc. We thought she would bounce back afterwards like I did but it just didn't happen. Her life is just awful. Even her rip if she opens them too quickly in the morning so now her sight is defective. Ehlers-Danlos Hypermobility Type rarely kills but it shuts your life down. When we look back at previous generations, we realise that they suffered it too but nobody realised. Her grandmother had all of her children put in care for periods because she couldn't cope after their births. Her Aunt lost custody because she couldn't cope after the birth of her 2 children. People just thought they were lazy, they didn't realise that the chronic fatigue was just all encompassing. That's why I step up to the mark for my daughter.
Alphabetical girls and boys names January 2024