Epilepsy

I really feel for you 4lyndon6.
I personally haven't experienced it but my nephew ( brother's son ) suffered during his " growing-up" years, and I know it knocked the stuffing out of both his parents in dealing with his seizures. The boy/youth was 6ft to begin with and both parents had to help ease him to the ground if he showed signs of a " fit ".

I know all kinds of research and investigations were carried out on him initially but I don't know what the findings were as my brother would never speak about it. In all honesty, he couldn't hack it and in the 1990's the couple divorced----other reasons too.

However, with medication it seemed to keep him on an even keel until while in his 40's about 3 years ago he had a couple of bad seizures and at 6ft 6ins, I don't know how he fared except that he wasn't allowed to drive for 12 months.

After these fits/seizures he doesn't remember a thing nor does he recollect them happening. I imagine he's been given a different medication ( sad to say I don't have contact with him, and my brother very little ) I got to know through a letter from my ex-SiL so don't know to date how he's doing. He'll be 50 next February.

I do know that the condition has had an impact on " normal " family life, he's an only child. Nephew has lived with the same partner for years----she's a lot older than him too which to me speaks volumes. I feel sorry for him but he's never attempted to contact me.

My daughter developed Epilepsy (first Grand Mal seizure) out of the blue at 25 she had many tests but they never found out a cause. It turned out she had probably suffered abscences since her school days which was probably the reason she never did well at school but no one including me noticed she was having abscences.
She is now 45 and over the years she’s had a few seizures when under severe stress but with med adjustments she lives an ordinary life, has 3 children and works part-time she’s never let her stopped her doing things.

My son, then aged 30 developed epilepsy quite out of the blue. His was the nighttime / sleep type. He was in denial for quite a few years but eventually saw a specialist.
With ( life time) medication he is ok now.
It was tough.
Has your grandchild been given medication and is this helpful? It’s more common than I realized, just that people don’t usually broadcast it.
With love xx

I posted a few weeks ago as my DiL was just diagnosed.She is now on medication and doing O.K Apart from not driving her life goes on as normal.The medication and care is so good now.It is scary at first but hopefully your GC will be able to lead a more or less normal life,I wish you and your family well.

i have epilepsy result of a birth trauma. my mum was told to forget she had me and put me in an institution but thankfully she did not. i was told i would never work i run my own shop never have children have two and really never have a life i am glad to report at the age of 54 i have a perfectly good life and all the misconceptions re epilepsy are total rubbish

4lyndon6
Although not suggesting it would be a cure but has diet ever been considered.? With so many foods available and who knows what some of these contain it would not be unusual to have an allergy to one of these that could trigger a seizure?