Gransnet forums

Health

Thyroxine and underactive thyroid

(62 Posts)
SueDonim Wed 15-May-19 14:36:07

There's an article on the BBC about this. It seems to be talking about minor levels of underactivity and not about everyone with an underactive thyroid. I've been on thyroxine for over 30 years and my dose has only change once, to a slightly lower level, in all that time.

www.bbc.co.uk/news/health-48265023

jura2 Wed 15-May-19 14:02:46

and the brain, memory, etc, and put at risk of dementia, Alzheimers. Been on increasing doses on thyroxine for 20 years.

GracesGranMK3 Wed 15-May-19 10:06:22

Not treating it can affect other organs.

etheltbags1 Wed 15-May-19 09:59:27

Its a horrid condition. Both myself and dd have to take thyroxine. I am getting more and more tired but maybe its old age. Yes i got free prescriptions before i was 60 but i couldnt have afforded the prescription otherwise. I was unaware it can affect bone density. I take 150 mcg.

Pittcity Wed 15-May-19 09:32:39

That's interesting. I found that once I started taking thyroxine I felt a lot better. I am still unable to lose weight and have cold hands and feet....so maybe it's not effective at helping all the symptoms.
I have often wondered at the randomness of conditions that make you eligible for free prescriptions though!

GracesGranMK3 Wed 15-May-19 09:10:09

I can't find the report. Where did you see it please terribull

GracesGranMK3 Wed 15-May-19 09:06:33

As I understand it we do one less test than many countries, so actually prescribed for fewer people already. I would be very worried if they were to take it away but I can see that, as those on long term thyroxine get free prescriptions it would be a great saving to the NHS. Of course they wouldn't make us suffer to save money, would they?

TerriBull Wed 15-May-19 08:52:41

aah! but higher doses can compromise bone density marye., I was told this by an endocrinologist soon after I was first diagnosed. My mother had osteoporosis in the final decade of her life. That endocrinologist suggested I take a lower dose, I was on quite a high one at the time and do load bearing exercises, which I do at the gym to maintain bone density.

maryeliza54 Wed 15-May-19 08:41:49

The thing about thyroxine though is that there’s no harm in taking it so I’m happy to carry on and not risk feeling worse.

TerriBull Wed 15-May-19 08:31:42

Oh that's very unfortunate Marelli. Of course 53 is an age when most women are experiencing some sort of menopausal symptoms which blur the lines, but maybe not in her case.

Marelli Wed 15-May-19 08:28:13

One of my daughters was born without a thyroid gland, Terribull, and has been on thyroxine from birth. Perhaps the fact that this completely replaces the hormone is different to being prescribed it for an underactive thyroid, though.
She's now 53 and does get very tired at times. Her thyroid levels are checked regularly, though.

TerriBull Wed 15-May-19 08:12:17

Apparently there has been a report in the BMJ that suggests that there are no significant benefits in taking Thyroxine although the advice to GPs is that patients should continue taking it.

I was diagnosed with an underactive thyroid, probably about 20 years ago, I thought Thyroxine would prove to be some sort of silver bullet but I never felt it did much to alleviate my symptoms, particularly tiredness.

I'd be interested to know, if you have this condition, have you found Thyroxine beneficial.