I've been looking on the net too.
There's a doctor called Goldstein in America who is considered to be one of the best gynaecologists in the Doctor's Who's Who. He has done a lecture called Lichen Sclerosus: The Unspoken Pain.
To find it type lichen sclerosis lecture dr goldstein into your search engine. Hopefully, the first item you see will be a site called theitchybits.wordpress.com. The blog (by a sufferer) is quite long but halfway down there should be a recording of the lecture by Dr. Golstein. It lasts about an hour, but I found it very helpful and reassuring.
Let me know what you think.
Can’t stop dwelling my problems - obsessive thoughts
I'm now seriously missing out - feeling miffed
I hate the name they're giving her - have to bite my tongue