Hi everyone.
Months ago I posted about her but I don't know how to find the original, so sorry for that.
She's 39 and been ill for all this year. It started with a swollen ankle, then other swellings in wrists and fingers. Red hot joints turned freezing for no reason; pain in limbs then in neck, shoulders, back; unable to use a keyboard, chop vegetables, handle a spoon; falling asleep at 10 a.m.; unable to sleep at night; sometimes no feeling in feet so dangerous to drive; hair falling out; unable to think straight; the list is endless and new things appear all the time. Pain is barely manageable even with strong painkillers and make her drowsy.
She's seen a rheumatologist, neurologist; cardiologist and dermatologist - the latter cos the others all blamed him for prescribing a particular drug for her chronic acne. She hasn't taken that in months. All this was private and when she ran out of her allowance I've paid the last £1,000 of tests.
She's had blood tests, CT and MRI scans, x-rays, nerve tests and more. Several issues have been discovered such as slightly loss of kidney function (now resolved), slightly low blood pressure (ignored), a positive P-ANCA level (ignored) and some evidence of brain deterioration not usual in people of her age (ignored).
On Monday the consultants were had a multi-disciplinary meeting but the Secretary can only tell her "not to worry" about the outcome and a report will be sent soon.
We suspect this will tell us nothing new (i.e. no diagnosis and no suggested treatment).
Can anyone suggest what she does next? She will try anything as she is desperate to get back to work and be able to look after her children properly.
Meg
What were the first ever records that you bought and when?
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