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Data sold to Amazon says The Guardian

(13 Posts)
ayse Tue 10-Dec-19 16:26:58

Firstly, apologies for not putting in a link but if you search for Amazon and the NHS the article will come up.

How dare they sell our private health data to anyone!

I seem to remember some time ago that I received a letter (from government or health care provider) that unless I opted out there were plans to sell data for research and names would not necessarily be protected. I opted out following the procedure outlined in the letter as I just didn’t want this to happen to my medical records.

Does anyone else remember this letter? I remember quite clearly going to my surgery to ensure my wishes had been followed and checked again with my doctor during my next appointment

I’m now very glad that I did this, although at the time I was in two minds but precaution prevailed.

I think this current information is linked to the letter. Am I just being a conspiracy theorist?

Nandalot Tue 10-Dec-19 16:32:59

‘Sold’ is a misnomer. They gave it away for free!

ayse Tue 10-Dec-19 16:36:23

How dare they? I thought we were supposed to keep our data private! So much for data protection

jenpax Tue 10-Dec-19 16:50:36

I remember receiving a letter from my GP, or it might have been an email🤔 I can’t recall. But I too registered that I was NOT willing for my health information to be passed on in this way!

Doodledog Tue 10-Dec-19 16:53:28

I remember a letter about data being shared with other NHS facilities, so that, for instance, if I were run over in another city the doctors would be able to look on the computer to see if I had allergies or existing conditions that had to be taken into account.

I was happy with this, but would not be happy for any info to fall into private hands. Is this definitely what is happening? It seems most unlikely to me.

ayse Tue 10-Dec-19 17:01:55

I might still have the letter. I’m sure it said you could opt out of the “medical research’ aspect but could give permission to share with other NHS bodies only.

Unfortunately, I don’t think it’s unlikely. Have you seen the discussions about accessing 111 via Alexa, that’s been around recently? I do not wish to discuss any health issues with Alexa (Amazon) or any other of these things. Basically, I have no trust in what is or isn’t shared, despite reassurances. How often have reassurances turned out to be false?

ayse Tue 10-Dec-19 17:10:43

Apparently the whole thing came to light after a freedom of information request.

I’m very sceptical about any reassurances given by private global companies

Daisymae Tue 10-Dec-19 18:25:03

Now, I wonder why American big pharma would want to pay millions for this data?hmm

Missfoodlove Tue 10-Dec-19 18:27:30

amp.theguardian.com/society/2019/dec/08/nhs-gives-amazon-free-use-of-health-data-under-alexa-advice-deal

FlexibleFriend Wed 11-Dec-19 10:54:30

I'm confused as to what use my Nhs data would be to anyone .
I don't have Alexa so can't see how she'll give me any advice either.

Ginny42 Wed 11-Dec-19 11:07:23

This is alarming and I don't recall opting for my data not to be shared. I will write to the practice and ask whether I registered against sharing.

I don't have Alexa and won't be getting it either, so any advice will be of little use to me. Is this a stage in the feared NHS sell-off?

notanan2 Wed 11-Dec-19 11:16:17

Most of our anonymised health data is in the public realm anyway, and rightly so!

If you go to a surgeon there will be stats on all of his or her operations, the equipment and implants used, the demographics they are used on, failure rates etc..

Uptake of vaccines amongst different groups

Rate of medication use amongst different demographics

Lengths of stays, adverse affects and incidents.

Its all public anyway and so it should be!

notanan2 Wed 11-Dec-19 11:20:17

said the issue with the partnership was not about “data sharing” but about “transparency” (from above link)

You can already access data about every operation and hospital admission and about GP services if you know where to look. Its all public already. Because if your local hospital is operating on fewer over 65s than national averages, questions can be asked etc. Its not a bad thing.