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I am a Mutant!!

(27 Posts)
Doodle Fri 07-Aug-20 18:17:45

Hi Hazbeen. Yes the same thing has happened to my DH except in his case it’s his red blood cells not platelets. I think it comes in three forms where the bone marrow produces excess platelets, or red cells or white cells. He has been on treatment (chemo tablets) for some time now as is feeling fine. Hope things go well for you too. It’s a bit of a shock I know but just think of yourself as being in a unique group of people. ?

HAZBEEN Fri 07-Aug-20 18:06:58

For the last 4 years my GP has been monitoring my blood count and has noticed my platelet count is getting higher. Just before lockdown he referred me to a Hematologist. My first consultation was by phone in April. She wanted to have some more in depth blood tests done and then I had another phone consultation this week.
She has said from what she is seeing my DNA has mutated and my bone marrow is producing to many platelets so we have agreed a form of treatment which will only start after I have been sent a consent form and information sheets and attended the day clinic.
I was wondering if any on GN have come across this before and what the outcome was. It seemed such a strange thing mutating!
Hope someone out there can help!