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GP Data Collection: How to Opt Out

(34 Posts)
MaggieTulliver Sun 06-Jun-21 08:11:47

Why would anyone opt out? All the data is anonymised. Sharing this data will help in providing improved healthcare in the future and might even help the cash-strapped NHS too (perish the thought). I think it’s selfish and petty to opt out and wonder why people don’t have more important things to concern themselves about.

ayse Sun 06-Jun-21 08:03:18

Shelflife

I am worried about this ! Can't decide if I should opt out and time is running out! This has been kept under wraps , many people are unaware of what is going to happen on July 1st. Advise please ! I read that individuals can not be identified , is that untrue?

The letter has to be with your GP by 23rd June.

All records with have a code. Access to the code will allow you to be identified.

If it’s not ‘a big deal’, why has it been kept virtually secret with no information on the BBC or mainstream media? I’m very suspicious of this lack of information.

A conspiracy of silence?

ayse Sun 06-Jun-21 07:58:58

medconfidential.org/wp-content/uploads/2021/05/Type_1_opt-out_letter.pdf

A link to the letter you need to take to your GP.

inews.co.uk/opinion/nhs-data-shared-third-parties-weeks-opt-out-gps-worried-1028042

A link to an article in Inews

I’ll be doing this letter tomorrow

boat Sun 06-Jun-21 02:51:36

I've opted out.

I looked at the website and thought it had been very carefully worded.. It denied that there was any intention to share data with third parties but left out the words, "At the moment".

I would prefer to live in a country where I could happily allow my data to be used for research without the risk of the government selling it on at a bargain price to whichever friend/donor is next in line for payback but sadly I don't.

Also I am aware that, on this government's whim, I could lose my right to protect my data. It seems that that is a step too far even for them as things stand so they have resorted to going ahead with setting up the data base without actually making it obvious to the public.

allium Sun 06-Jun-21 01:22:07

I've opted out, don't trust them!

Shelflife Sun 06-Jun-21 00:43:37

I am worried about this ! Can't decide if I should opt out and time is running out! This has been kept under wraps , many people are unaware of what is going to happen on July 1st. Advise please ! I read that individuals can not be identified , is that untrue?

jusnoneed Sat 05-Jun-21 08:37:30

You can also opt out online via NHS website.

Ro60 Sat 05-Jun-21 00:19:44

I've already got my daughter to print the form off for me.

I'm also concerned with what the data could / will be used for in the future.

As they look to privatise the NHS who knows what will be allowed or not - insurance, treatment, work, social benefits, mortgage risk assessments?

annodomini Sat 05-Jun-21 00:05:21

The measure to collect data about NHS patients has been kept very quiet. You might have heard from your GP that they have been ordered to had over your records to NHS Digital so that they can be made available to third parties for commercial gain. I have strong objections to this and have opted out. Here is some information for you:

"From 1 July 2021, and every day thereafter, the Government has Directed NHS Digital to take from your and your family’s GP records:

^data about diagnoses, symptoms, observations, test results, medications, allergies, immunisations, referrals, recalls and appointments, including information about physical, mental and sexual health” (more details)
“data on sex, ethnicity and sexual orientation”
“data about staff who have treated patients”
You can opt out if you wish.^

Here is how to opt out if you don't want your health details to be sold for profit to pharmaceutical companies or research organisations.

medconfidential.org/