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Autism

(16 Posts)
Bankhurst Tue 28-Dec-21 22:15:12

Having struggled all my life with social situations, making friends, reading other people’s feelings etc, I recently did further research and now believe that I am autistic. At 76, is it worth doing anything about it? Does anyone have experiences they are willing to share?

silverlining48 Tue 28-Dec-21 23:02:12

A family member in mid 40 s recently had a diagnosis of autism. The diagnosis helped a little in explanation to their young children who sometimes get confused about parental reaction in some circumstances.
It was done privately as nhs list is so long, took a while and cost well over £1000 so not cheap,
The psychologist needed to speak to close family members preferably parents who knew their behaviour as a child.
It may not make much difference to you now but having read about it yourself that will help and there will be a lot of information online about managing situations. I am
Sure there is as Autism support organisation online.
We are all a little bit autistic please don’t worry about it.

Hetty58 Tue 28-Dec-21 23:23:19

silverlining48, it's 'allowed' now, thank Heavens, whereas back then, I was just the awkward, know-it-all child with temper tantrums and sulks.

Only in my forties/fifties, when I was teaching, was it suggested that I may be on the spectrum. I knew I was different, very good at some things, pretty hopeless at others.

I had great success with teaching three subjects, could easily explain things in several ways - yet was shy in social situations, noise intolerant and claustrophobic.

I have no face recognition whatsoever, so often don't know who I'm talking to - or whether I know them. I use pattern recognition instead, so I'm lost if you change your hairstyle or make up.

Still, I'm familiar with my difficulties now and practised with coping strategies - so I manage just fine. I've never wanted to change as I love being me.

CafeAuLait Tue 28-Dec-21 23:32:12

Some people find the ability to understand themselves liberating. If it would help you, go for it.

VioletSky Tue 28-Dec-21 23:38:04

I have one diagnosed autistic child, one who is positive they are autistic but happy without one and I am certain I am on the spectrum. I work in SEN too so that opinion has also come from educated colleagues.

I do have a few issues that I can't hide very well. I am not good at eye contact which means I tend to stare at people's mouths or ears which makes them uncomfortable (something in teeth or on face?) or I do too much eye contact.

I'm socially anxious but brilliant with children.

I don't need physical affection but fine with my own children/any children (educated well there and know how important it is).

I don't get sarcasm unless it's the right sarcasm tone, type goes over my head.

I don't get jokes easily but I do have a very dry sense of humour.

I sometimes fixate on something, like a topic that interests me or something I am doing and cannot stop.

You can join support groups etc undiagnosed, I don't know if being diagnosed really does much at our age, we are who we are smile

Deedaa Tue 28-Dec-21 23:39:23

At our age (I'm 75) I don't think you need to do anything about it, it just makes things more understandable. I haven't been diagnosed but, once my grandson was, it became obvious that DH was on the spectrum and so was his mother. I realised that it would explain the problems I had as a child. Social events were always a nightmare, even now I have trouble sitting and eating a meal with others. Even in the 50s our GP had realised that I could only manage a few weeks of school without a break and was happy to confirm my regular mystery illnesses

VioletSky Tue 28-Dec-21 23:42:31

Oh and rubbish awareness of personals pace, social anxiety, general anxiety and similar to Hetty I recognise faces but people look fine and attractive to me with or without makeup, hair done etc. The only time I notice haircuts etc is on my children and I generally won't like it and have to shh

Hithere Wed 29-Dec-21 04:02:57

There are test you can take online.

You would be surprised how many adults are in the spectrum and undiagnosed

Hithere Wed 29-Dec-21 04:03:02

There are tests you can take online

You would be surprised how undiagnosed it is in adults

CafeAuLait Wed 29-Dec-21 07:35:19

The online tests are often biased towards a stereotypical male presentation of autism. We were advised that they are very limited in usefulness.

The autistic community is very accepting of self-diagnosis. It can cost a lot of get a formal diagnosis, so doing so depends on how important it is for you to do so.

BlueSky Wed 29-Dec-21 09:05:14

I recognise myself in Hetty and Violet’s posts, two younger members of the family have been diagnosed, so I guess I’m there somewhere. Anyway I’m fine with it.

M0nica Wed 29-Dec-21 09:17:17

Some people find the ability to understand themselves liberating. If it would help you, go for it. Cafe-au-lait

I absolutely agree, In my 40s I was diagnosed as having dyspraxia, followed up by some physiotherapy, which did help, but mainly, it was just understanding why I am so cack-handed, have such dreadful writing, struggle using a mobile phone, physically, not the technology, and other problems.

The diagnosis, has given me so much peace of mind, knowing why I have problems doing some things and being comfortable with what I know I will never be able to do or be good at.

It has also been suggested for some decades that I have ADHD, and every online test I have ever done, and they are many, over the years, confirms that suggestion, and, at 78, I am thinking of going for a full assessment. I have no intention of taking medication, but, again, just to know, with certainty I have a problem that makes rational sense and explains so many of the problems I have had since childhood.

I too will be going privately and the price silverlining quoted - £1,000 plus, seems to be par for the course.

Galaxy Wed 29-Dec-21 09:46:58

One of my friends was diagnosed in her late forties and I cant tell you what a difference it has made to her. Not particularly in terms of impact on her life but in terms of explaining her life if you see what I mean. She went private and the figures quoted above are similar to what she paid. I know someone else (adult) who is about to be assessed via NHS I think he has waited approx 2 years but obviously that has been in the middle of covid.

henetha Wed 29-Dec-21 09:52:03

Me too. It's very likely that I am, I've been told, but at 84 I don't feel inclined to do anything about it. I've managed so far without help.
I have an autistic grandson too. He is quite wonderful and I am very close to him. We have so much in common.

annsixty Wed 29-Dec-21 15:37:53

I have long suspected that my 51 year old S is on the spectrum.
Now that his S 12 was diagnosed at about age 9 I find my S easier to understand, not really cope with, but to have a reason for his manner.
I now feel my H was just at the edge and each generation is further along.
My GS is highly unlikely to have C so hopefully it will end with him in that strand of the family.

Marmite32 Wed 29-Dec-21 16:56:10

"We are all a little bit autistic please don’t worry about it."
*Silverlining" - Apart from when the word is misused, this is so true.
From my days as an Ed.Pdych.