Epilepsy

He sounds very much like my DIL’s sister. She’s now 35, but was a total nightmare for her parents in childhood/ adolescence.

She was eventually diagnosed with severe Aspergers alongside the epilepsy, which just two years ago, had surgery for. As far as I know...she is generally better, with intermittent episodes from the autistic side of things.

She’s had no more fits as such, but does still get the ‘auras’ which so far haven’t been a problem.

So sorry to hear of your loss downtoearth. This was attempted by this lady too....a few years ago, but she was found in time.

Her life does seem to be a series of highs and lows, and her poor parents are exhausted. She still lives with them.

I would keep pushing medically for your grandson. New treatments are coming along all the time, and he hopefully will benefit somewhere down the line.

Take care ?

I am so very sorry for your loss downtoearth. Thank you very
much for your honesty and bravery in sending me this information.

My daughter was diagnosed with severe petitMal at 15 with the start of her periods,also lip smacked,plucked and flapped,whilst totally unaware,this could happen whilst she was still able to walk,her friends also spoke how on several occasions she had to be restrained whilst crossing the roads.

The seizures where poorly controlled and where more frequent around her periods,she was taking maximum dosage of Epilim chrono.

K resented being controlled by the medication and the restrictions on her,and was a rebellious teenager,only settling down with an accidental pregnancy at just 18.

Pregnancy itself was complicated with the constant need for drug reviews and checking on baby,in fact on obstetrician stated that epileptics shouldnt be allowed to get pregnant.

Sadly she took her own life in 2004 due to the domestic violence,physical and mental of the childs father.
She was 23.

Drug side effects could certainly come into it and I think it my daughter would be advised to dig more deeply. It is my personal opinion that it’s sometimes difficult to get a straight answer from the medical profession for obvious reasons. Thank you so much for your input Barmeyoldbat it is very much appreciated.

Could even be a side effect of the drug he is taking, worth looking at

I have no medical training but would suggest that the epilepsy may have been a symptom of a neurological disorder which is now causing the current symptoms rather than their having been caused by epilepsy.

Good to hear your epilepsy is so well controlled GSM
As you know people are affected by symptoms of epilepsy in so many different ways and there are related problems which may cause some of the behaviours described in the OP.

Gr8dame has your grandson's blood been genetically tested? If not ask your daughter to get his neurologist to do it. I found out on Friday after 34 years of being ill with a neurological condition what it is because my new neurologist had my blood genetically tested and it's rare. And hereditary. I am now 63 got ill when I was 29.

I have had epilepsy since I was 17. After some years of experimenting with different dosages of drugs it was completely controlled and I have had no seizures since I was in my 30s though I must take the medication for life. At no time did I exhibit the type of behaviour that you describe.

Thanks Barmeyoldbat

Thanks Blossoming I’ll check that out.

I don’t think he is happy either Sodapop and I don’t think the rest of the family are either. I’ll look into brain activity and different kinds of seizures. Thanks for your thoughts.

I don’t have any medical qualifications but the ‘flapping hands’ is sometimes seen with autism.

sounds like it could be seizure related

My daughter had epilepsy from the age of 4, they started as petit mal type where she would just stand and stare for a minute or less and then carry on as normal. It progress to an arm waving about and then to full seizures, she was never really controlled until she around 20 and was on a cocktail of drugs. I will say she never ever behaved like your gs, my son who didn’t have epilepsy behaved quite a bit like your gs but at around 16 and did eventually grow out of it. It could just be part of growing up. He must still be having checkups so it would be worth mentioning.

This sounds like a bit more than the usual teenage angst Gr8dame has he had any medical checks since the seizures stopped. It may be that he is suffering from a different type of seizure or unusual brain activity. I hope you can help him, doesn't sound like he is happy either.