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Migraine misery

(91 Posts)
Grandyma Sat 18-Jun-22 21:25:07

I’ve been suffering from migraine’s for over 50years and get the flashing lights/zig zags, numbness in arms, hands & face, headache, difficulty finding my words. I’ve always had to wait it out and it can last for days. The problem is that over the past year the attacks are not only becoming more frequent but causing the most crippling sickness & diarrhoea. It’s getting so bad that I can’t make plans. Dr. has given me cyclizine for the sickness but it doesn’t help. Does anyone else suffer this awful sickness/nausea and has anything helped? I’m mid attack and feel absolutely awful.

Grandyma Thu 23-Jun-22 17:13:53

GagaJo I am going to try that ?

Grandyma Thu 23-Jun-22 17:12:39

MissAdventure that’s brilliant thank you so much, I will certainly check these out. I’ve got about 4 weeks to get myself sorted before the holiday. I’m sure the anxiety of that is making things worse. Thanks again ?

GagaJo Thu 23-Jun-22 14:44:49

The full fat coke/pepsi thing sounds like it's worth a try.

MissAdventure Thu 23-Jun-22 14:27:05

This one is a spoken, self hypnosis and sounds pretty good.
youtu.be/K64ATPQazzc

MissAdventure Thu 23-Jun-22 14:23:55

youtu.be/g9txY442qmo

MissAdventure Thu 23-Jun-22 14:23:22

youtu.be/cQcd1LOmzas

MissAdventure Thu 23-Jun-22 14:21:27

My "go to" is youtube.
I'll have a look.

MissAdventure Thu 23-Jun-22 14:20:16

I think there are phone apps that are supposed to be pretty good.

How long until your holiday?

Perhaps you could find a private therapist to teach you some relaxation techniques?

Hopefully someone will know a bit more about it all, but there is certainly a few apps that teach mindfulness; one in particular, but I can't remember what it's called!

Grandyma Thu 23-Jun-22 13:57:29

MissAdventure I’ve been wondering about that but no idea where to start! A therapist, book, phone App?? ??‍♀️

MissAdventure Thu 23-Jun-22 13:18:14

I used to feel like that as a child.
It always seemed to happen if there was something I was looking forward to.

I wonder if some mindfulness would help you?

Grandyma Thu 23-Jun-22 13:12:30

*GP

Grandyma Thu 23-Jun-22 13:11:16

Thank you all for your good wishes and shared experiences. Now on day 6 of feeling nauseous and getting so depressed and desperate. I spoke to GO again on Tuesday and he advised to stop the sumatriptan and antibiotics. I’m just taking my regular meds now and paracetamol. The dr said to take cyclizine for the nausea but it’s not helping. Headache not the worst thing is the nausea, vomiting, etc. I’ve got to phone GP again next Tuesday. Panicking about the upcoming “once in a lifetime family holiday” feeling like this I can’t face it ?

Sunnysideup Wed 22-Jun-22 20:02:05

So very sorry Grandyma, hope things are improving a bit. I’ve suffered with migraine since the age of eight and I’m now 72. They have fluctuated over the years. They started with aura, dreadful sickness and terrible pain in the head when I was a kid. Knew what it was as mum and sisters suffered as well. I also started later in life with three day headaches interspersed with aura type ones. To cut a long story short last Christmas I suffered a seven day long migraine with aura occurring two or three times a day. Ended up in A&E for a head scan which was negative. My regime now is 20mg Amitryptline and a small aspirin, plus 400mg magnesium at night. This has done the trick and although I’ve had a few 3-day heads I haven’t had an aura one for six months now. I can’t tell you how happy I am. Having said that, knowing how unpredictable they can be I’m not counting my chickens! I really hope you find relief.x

MarinaL Wed 22-Jun-22 00:10:01

The strangest thing.........
I haven't had a migraine since I started taking Statins . GP said it can help
some people.

MissAdventure Tue 21-Jun-22 23:50:27

I used to get absolutely terrible migraines as a child.
Paralysis on one side, sickness, that awful aura about half an hour before one started, then the visual disturbances.

I have just started getting the aura and visual problems again in the last few years, but the headaches are thankfully, nowhere near as bad.

LadyWee Tue 21-Jun-22 23:36:53

dogsmother

Ladywee Sorry to disagree but having suffered since childhood and eventually a referral in my 50s to a neurologist before I saw any respite in migraine. Then yes sometimes it is necessary.

Yes…… as I said it is reserved for refractory migraines. Some people do need referring, the vast majority do not as all
The usual measures can be worked through by the GP ( it’s very common but refractory migraine much less so) .Plus if she is waiting 2 years for a referral it’s not much help to her now.
When posters write ‘get a referral
To xyz’ it can promote unrealistic expectations and actually be unhelpful to the OP.
Triptan is first line treatment so she has started on the right treatment course.

Sara1954 Tue 21-Jun-22 20:26:50

Grannyactivist
I had exactly the same experience with propranolol, it did put on weight, although the doctor said it was more a matter of increased appetite, but frankly it changed my life, liberated me, what’s a few pounds?

grannyactivist Tue 21-Jun-22 18:44:06

I suffered dreadfully from migraine from my early teens until about ten years ago when I finally agreed to try Pizotifen, a prophylactic drug that was recommended by my GP. It literally gave me my life back!

I can count on one hand the few migraine attacks I’ve had since starting Pizotifen whereas before I was having two a week! The major downside is weight gain as a side effect, but for me it’s totally worth it. There is a newer prophylactic drug that doesn’t have the same side effects, but I’m afraid to upset the apple cart.

SueDonim Tue 21-Jun-22 18:31:40

So did my dh, when he was younger, Maybee! I wonder if it was due to ‘decompressing’ from the working week or something.

MayBee70 Tue 21-Jun-22 18:14:01

I know someone that had Botox for migraines. Orange juice used to trigger mine. And sleeping late at weekends. I always had one on a Saturday.

SueDonim Tue 21-Jun-22 18:07:29

Yes, the intensity of a migraine can vary wildly. Many of mine are just a bit of a nuisance but others make me want to tear my head off. No rhyme nor reason to it and I’ve never been able to identify triggers, except sometimes it’s missing a meal.

My friend has them so badly that she is paralysed down one side of her body, which is very frightening. She’s been given Botox treatment which has been a marvel for her and allowed her to go back to work again. smile

Ladyleftfieldlover Tue 21-Jun-22 14:11:52

I remember my mum taking me to the GP when I was Primary School age. She and dad both suffered with migraines too. All the GP could say was to go to bed in a darkened room! Panadol or aspirin never worked. It wasn’t until I was in my 40s and sumatriptan came on the scene that I could finally control them a bit.

M0nica Tue 21-Jun-22 14:03:20

The main reason I haven't seen a doctor is because for most of my life my migraines, though severe, have not been that frequent and OTC remedies dealt with it.

Had I had the very frequent and severe migraine attacks many have, I would been down at the surgery like a shot.

SueDonim Tue 21-Jun-22 13:36:23

I didn’t see a doctor about migraines until one of my DC started getting them at the age of seven. By the time he was a teenager he could have as many as five a week and it was severely affecting his - and everyone’s - life. I joined the Migraine Trust and that’s when I realised there are things available to help so why wouldn’t you avail yourself of them, and went to the doctor.

Migraine is a drain on the workplace, apart from anything else, and there are many more remedies nowadays, so there’s no need to suffer as much as there used to be.

Katyj Tue 21-Jun-22 08:56:08

Oh no that’s sounds terrible. Ask him for something for the nausea. Hope you feel better soon . flowers