Mystery condition

It does sound a lot like Shingles.

If anyone on here is over 70 and not yet had their anti-shingles shot, do go for it. Shingles can be so awful and debilitating.

Has it been diagnosed yet GagaJo ?
My DD had shingles on her face aged 9. I could hardly believe it. Blisters and pain. The doctor said it was relatively common in children.
I had a vaccine against it last year. I hope it works
Get better soon you and Blondiescot
Thank goodness for facemasks.

This is such an informative post and the information shared is very helpful. Thank you.

A lady I know was diagnosed with "Hand, Foot and mouth" recently - (see NHS website) . More common in children but can affect adults too.

My two year old granchild arrived for usual Tuesday care with hand,foot and mouth (see NHS website for info) - ulcers in mouth, little appetite, lumps/spots on face and bum/hand/toes, and not very happy at all. She slept most of the morning. she enjoyed lots of cold yoghurt and cold scrambled egg eventually. hope you find something which helps soon.

I’ve had shingles twice and both times it presented differently. First time it was a rash of sorts, itchy inner ear and my face dropped with palsy, so rushed to A&E at 7am in morning as thought I was having a stroke. I was given antibiotics and anti virals and diagnosed with Ramsay Hunt Palsy and shingles. Second time I came up in loads of spots on one side of my face, head and unfortunately both arms (weird, but I did pick as I was extremely stressed) again diagnosed with shingles and put on antibiotics and antiviral tablets but the spots looked awful and lasted a year, probably not helped because I couldn’t leave them alone. It’s a horrible feeling, itchy stinging and painful all at once so I do hope you get over it soon and feel better.

GagaJo

Shingles turn to blisters though don't they? And then scabs? I don't have that.

Yes, I had shingles years ago and it was more like cold sores than boils

Sounds like a autoimmune problem to me, trouble is when it's rare nobody has a clue!

mokryna my sister has asthma and other chronic conditions. Anti-virals were no problem to her.

Hi just listening to your symptoms not had these exactly but thinking of shingles. I fell a few years ago and broke my hip round about this time of the year! Anyway off to hospital a new hip next day home in a week then. I began to feel very unwell but couldn’t specifically say what was wrong a few days later pain in head took me to doctor. Diagnosis migraine. I told them it wasn’t migraine but four doctor visits later ran into three weeks pain quite horrendous Hubby phoned ambulance once in hospital found was shingles had attacked my optic nerve. No signs of anything on skin Now have some sight loss never fully recovered that was 9 years ago now have post herpatic neuralgia Also few years after still pain Had MRI scan had taken a stroke in head somewhere behind same eye! Had shingles vaccination. A bit too late but just to warn us oldies. I’m now 77 please insist on anti shingles jag as soon as you can will save a lot of distress hope you find an answer soon xx

My brother in law had shingles on his face, down his throat, up his nose and in one eye. It was an horrendous time for him. The nurse said you can get it again so he and my sister have now had the shingles jab.

DD had something similar a few years ago, with a bit of detective work she traced it back to a facial at a beauty salon. She was left with pock marks after the infection, needless to say she never visited the salon again.

My husband had shingles recently and from what I understand it's usually confined to one side of the body. His rash did blister and scab. It was very painful and still visible weeks later. Is it possibly related to a booster?

I do hope you are both feeling better soon GagaJo and Luckygirl23.

I have asked my doctor twice and she has refused. Is it bad to have it if you have asthma or thyroid problems? I must ask next time as to why.

My sister had shingles of the face and her GP gave her anti-virals even though it had been a while since the symptoms had first started. It took a while but did actually get better which is good because my Uncle was plagued with it for a long, long time. It might be worth asking your GP to give you the anti-virals.

It is worth noting that you can vaccinate against shingle.

GagaJo

Glorianny

I had shingles on my face when I had it. My then DIL, a dentist, was very interested because the nerves showed up clearly. There are three main ones in the face They come down the side of the face and have three branches, one to chin, one to mouth and one to nose. If the spots are following those lines it probably is shingles.
Here's a diagram

Yup Glorianny, aka Sherlock!

V3 area. Chin, bottom lip, up to my right ear. I think they were thrown because I had a cluster on my chin and they got infected and had to be drained.

Do your lymph nodes inflame with shingles? Because there is one under my chin that is swollen.

Oh I'm so pleased if this helped. I'd never heard of shingles on the face until I got it. DIL was absolutely certain about it (and delighted it was so clear!). I was lucky I got treatment really quickly. It was absolutely horrible, and I thought everyone was looking at my face.
You need to take good care of yourself. Lots of rest, lots of fluids eat well. Hope you feel better soon.

Well, after being on hold for what seemed like forever and a day, I did actually manage to get through to the doctors and got a phone consultation. The GP didn't think it sounded like shingles but agreed it sounded like some kind of neuralgia, so she's sending a prescription for amitriptyline to the chemist for me to collect tomorrow. Hopefully that will help with the pain. I've also to go for a blood test tomorrow.

Do your lymph nodes inflame with shingles? Because there is one under my chin that is swollen.

Your lymph nodes will swell when fighting the infection.

Glorianny

I had shingles on my face when I had it. My then DIL, a dentist, was very interested because the nerves showed up clearly. There are three main ones in the face They come down the side of the face and have three branches, one to chin, one to mouth and one to nose. If the spots are following those lines it probably is shingles.
Here's a diagram

Yup Glorianny, aka Sherlock!

V3 area. Chin, bottom lip, up to my right ear. I think they were thrown because I had a cluster on my chin and they got infected and had to be drained.

Do your lymph nodes inflame with shingles? Because there is one under my chin that is swollen.

Shingles isn't always diagnosed at first. DH spent a night in hospital years ago, hooked up to machines with a suspected heart attack. Next day we went to the GP, she didn't know what it was either. I did mutter that it was following a nerve path, could it be shingles?
She looked at me and said "I was thinking along those lines too".
Then rash came out later that day..

I had shingles on my face when I had it. My then DIL, a dentist, was very interested because the nerves showed up clearly. There are three main ones in the face They come down the side of the face and have three branches, one to chin, one to mouth and one to nose. If the spots are following those lines it probably is shingles.
Here's a diagram

Well, I've been doing a bit of reading up on 'shingles of the head', and I have to say, it does seem to fit my symptoms to a T. I'm going to attempt to contact my GP tomorrow - they do a telephone consultation first to see if they actually need to see you, and that's if you can actually manage to get through on the phone first. Wish me luck!

As Blondiescot says, getting a GP appointment is nigh on impossible. I was lucky to get in to see 2 locums. Was turned away from A&E after calling 111 when I had a raging infection and a swelling almost the size of a golf ball on my face. To their credit, the maxfax dr I saw the next day was horrified that I'd been turned away.

I THINK some of the lumps are reducing a bit. But whatever's going on in my ear is ramping up. Good old codeine, that's all I can say.

someone whom i knew had v bad shingles.
she had to take gabapentin for the nerve pain, but even that did not eliminate the pain.
could you try a different, maybe older GP ?
just a thought. i've been reading about the scarlet fever outbreak, not that yours is that, but the fact that so many younger docs have never seen it, so don't think of it.
hope something eases it.
what about a dentist, they often have wide knowledge of anything to do with the head.