Nursing homes (as opposed to care homes)

does she have a social worker.
if not, i suggest you contact adult social care to enquire about these issues.
it is wise to make arrangements in advance.

You'll need someone who knows more detail than I, but I do know your daughter will need to be assessed as to the levels of care she will be offered. Care homes and nursing homes are assessed at different levels.

You could ring local Adult Social Services for initial advice. hard to get through, but they will give you guidelines. Also find out at what levels of savings she would be expected to contribute herself?

There are specialist care homes which cater for people with complex physical disabilities Hellogirl, which as a younger adult (1 assume she is aged below 65) will probably be more suited to her needs than a nursing home, which caters for the very elderly in the main. Whether she needs a nursing home (if her condition requires frequent nursing or medical intervention) or not is for the professionals to determine, and the first step is for her needs to be assessed by them.

If she has no significant savings and is on benefits the cost will be borne by either the NHS or the Local Authority depending on her assessed needs. That will limit her choice of placement, because many homes require top up fees, which the NHS/LA do not pay, with families picking them up if they want that specific home.

As welbeck says, a social worker can start the ball rolling for her.

www.nhs.uk/conditions/social-care-and-support-guide/money-work-and-benefits/nhs-continuing-healthcare/

I wonder whether this link will help? I think she would be eligible for continuing health care.

It gives the name of an organisation that may help

Visit the Beacon website or call the free helpline on 0345 548 0300.

Hellogirl, I have no advice about this but an assessment of her needs should most certainly take place before any decisions are made. You must be so worried and I wish you and your daughter well.

It would be wise to put a plan of care now, just in case

Your daughter needs an assessment to decide what level of care would be appropriate, though if you are her carer it may be a whie until she needs care and her circumstances will probably be different by then.
However an assessment would to helpful for both you and your daughter as it will include having a benefit check to ensure she is getting her correct entitlement.
An assessment for you as her carer coukd provide respite fir you to have a break,
If you are under returement age you woukd be entitled to a carers allowance.
If your daughter has a care manager/sicialmworjer soeaknto them,motherwuse contact your local social services dept.

Ooops, typo. If your daughter has a care manager/social worker speak to them.,otherwise contact your local Ss dept. Adult services.

Please remember that Social Services work against you and not for you. They would probably suggest carers coming into the home. They don’t want to pay for nursing / care homes.

Casdon, my daughter will be 60 at the end of this year.
My query is regarding what will happen to her when I`m no longer here, I`m 80 next week, and not very fit or mobile myself. At the moment we have carers 4 times a day, plus once in the night, paid for by social services. When I die she won`t be able to live on her own, even with carers coming in, hence my other daughters thinking that she`ll need to be in a nursing home, rather than a care home.

Hellogirl It seems you are already getting help for your daughter, so perhaps a conversation with the care manager/social worker will help reassure you by clarifying the available options.
Happy birthday for next week.

Good advice on here. I don’t think I can add anything more but just didn’t want to scroll past

I think you should ask social services for a list of local homes that could cater for your daughter if anything happened to you. Presumably your other daughters would like to have her living close to them. When you have a list you could ask them to visit and look at what they are like and which ones they think would be best for their sister. You should then have somewhere suitable where you know she will be cared for. You might need this if you are ill and need to go into hospital as well. Most of these places have rooms they use for respite care where she could go if necessary. You are obviously worried about her I hope you find somewhere suitable.

You certainly need to speak to someone now about the continuing care for your daughter. Your GP may be a good place to start, or as others have said.

It will put your mind at rest to know exactly what will happen, and save your daughter from uncertainty.

I expect you would like her to remain at home with you for as long as possible, but it may be worth considering when the best time for a move would be so as not to distress her too much.

A big worry for you Hellogirl but I think if you already have carers coming in four times a day then you’re already in the system it’s just a matter of finding out what else can be done for your DD while you’re still here to organise it. Could your house be sold when you pass away or are you renting or in social housing? If you or your DD rely completely on benefits then she should be taken care of by your local authority, but good to find out now.

The house will be sold when I die, and the proceeds divided between all my children.
Thank you for all your replies, and the suggestions as to who I should talk to.

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How about getting an appointment to discuss this issue with someone at your localCitizen's Advice