Aching legs, burning, feet and pins and needles..

This is cheering me up no end ☹

Ginnytonic5, yes, possibly. It seems likely that there's side effects (even long term damage) for some - but I'm just so glad the vaccines were available. What would the death toll be without them? It was horrendous and could have been far worse.

Callistemon21

I've had aches and pains, particularly painful legs, since I had an unspecified virus and was very ill in December and January 2019.
Of course, no-one knew about Covid then although there had been rumours of a nasty virus going around, including in Wuhan.

I've had Covid since with symptoms of terrible aches and pains and my thoughts are that it attacks your most vulnerable areas.

It attacks all parts of the body. It's known that Coronavirus enters the body by linking on to ACE-2 receptors, which are present throughout the body, so it makes sense that almost anywhere can be affected.

The connection with diabetes was suspected right at the start of the pandemic, before vaccines had even been developed.

I've had aches and pains, particularly painful legs, since I had an unspecified virus and was very ill in December and January 2019.
Of course, no-one knew about Covid then although there had been rumours of a nasty virus going around, including in Wuhan.

I've had Covid since with symptoms of terrible aches and pains and my thoughts are that it attacks your most vulnerable areas.

Ginnytonic5

Ok I know I will get shot down in flames! But so many people with the same / similar symptoms..have you thought it may be connected to the Vaccine rather than Covid itself ?

Why would you think that? Is there any evidence?

The symptoms might not even be connected with Covid at all.

Ok I know I will get shot down in flames! But so many people with the same / similar symptoms..have you thought it may be connected to the Vaccine rather than Covid itself ?

MadeInYorkshire

Shinamae

harrigran

These are the symptoms I had while on chemotherapy, took a long time before my feet were comfortable.
DS has long covid and suffers from pins and needles and shooting pains in legs, he was hospitalised with cardiac symptoms too.

I really don’t know how to identify long Covid, but I had Covid twice with no symptoms I would not of known I had it had I not tested so now I’m wondering if it is long Covid or would that just be something the doctor could fob me off with?I mean it’s quite easy isn’t it to say well that’s long Covid that’s an end of it, but I will see on the first when I have my appointment 😬

Exactly, don't let them fob you off with that, but please do mention the Small Fibre Neuropathy, as they likely wouldn't have tested that whilst doing your nerve conduction tests ....

Thank you, I will definitely small fibre neuropathy neuropathy..

When I went to see my doctor recently she said "we are seeing a lot of people with raised cholesterol levels since Covid (more than would be expected) and we don't know why"
That's interesting. My cholesterol level was always a very respectable 3.6, yet after covid last winter is now 5.2.

My legs ache and I take paracetamol to get to sleep and sometimes during the day. I reckoned I had classic 'rheumatism' due to sitting too long with cold legs and feet, so I have begun to wear long johns under my trousers to good effect.

When I went to see my doctor recently she said "we are seeing a lot of people with raised cholesterol levels since Covid (more than would be expected) and we don't know why"

It could of course be due to many factors, more people working from home and less active, snacking more or could this also be a legacy of covid?

Obviously the ongoing research will reveal more eventually but I do not think we should underestimate the longer term damage Covid might have done to our bodies.

MOnica There is a suspicion that Covid is triggering diabetes in some people:

www.ncbi.nlm.nih.gov/pmc/articles/PMC9033286/

There is ongoing research to discover if it's true and why it should be happening.

As you probably know, diabetes isn't just about having too much sugar in your blood. It affects your blood vessels, which can cause heart problems, causes fatigue and also affects nerves, which can cause neuropathy.

I hope your GP has given you some kind of plan.

M0nica

On the other side. I was in excellent health until I had COVID, mildly, although for a long time, when I was still recovering from a bacterial infection. Since then my blood pressure has shot up, I have jad 2 TIAs and have now been told I have hgih blood sugar, plus, of course the neuropathy. I had what I assumed was just feeling run down for three or four months after COVID.

Goodness MOnica. They are, I like to think, working behind the scenes on this. I hope they can give you something positive ASAP.

On the other side. I was in excellent health until I had COVID, mildly, although for a long time, when I was still recovering from a bacterial infection. Since then my blood pressure has shot up, I have jad 2 TIAs and have now been told I have hgih blood sugar, plus, of course the neuropathy. I had what I assumed was just feeling run down for three or four months after COVID.

Shinamae

harrigran

These are the symptoms I had while on chemotherapy, took a long time before my feet were comfortable.
DS has long covid and suffers from pins and needles and shooting pains in legs, he was hospitalised with cardiac symptoms too.

I really don’t know how to identify long Covid, but I had Covid twice with no symptoms I would not of known I had it had I not tested so now I’m wondering if it is long Covid or would that just be something the doctor could fob me off with?I mean it’s quite easy isn’t it to say well that’s long Covid that’s an end of it, but I will see on the first when I have my appointment 😬

Exactly, don't let them fob you off with that, but please do mention the Small Fibre Neuropathy, as they likely wouldn't have tested that whilst doing your nerve conduction tests ....

harrigran

These are the symptoms I had while on chemotherapy, took a long time before my feet were comfortable.
DS has long covid and suffers from pins and needles and shooting pains in legs, he was hospitalised with cardiac symptoms too.

I really don’t know how to identify long Covid, but I had Covid twice with no symptoms I would not of known I had it had I not tested so now I’m wondering if it is long Covid or would that just be something the doctor could fob me off with?I mean it’s quite easy isn’t it to say well that’s long Covid that’s an end of it, but I will see on the first when I have my appointment 😬

These are the symptoms I had while on chemotherapy, took a long time before my feet were comfortable.
DS has long covid and suffers from pins and needles and shooting pains in legs, he was hospitalised with cardiac symptoms too.

I am amazed at how many of you are suffering with the same symptoms I have. I finished chemotherapy for Non Hodgkins lymphoma 18 months ago and have had an all over strong tingling... more like an electrical current sine the beginning of chemo. The haematology consultant in chargenof my chemo and subsequent maintenance treatment of immunotherapy and the neurologist she sent me to seem to have never met this problem before. Which I really cant believe.
Because it was affecting my balance, U have now stopped the maintenance trearment of Rituxumab a year early. And after 16 weeks it is a little improved. I take high dose vitsmin D and a compound of vitamin B. I dont take pain killers apart from paracetamol, but was offered amitryptiline which made me feel too zombiefied to continue.
In a way it is a comfort to hear it is not unusual. I am reading this theead with interest.

PS your blood tests need to also include B12, and thyroid which could also have an effect

Poor you, I know how it feels!

I was tested many years ago as I had the symptoms of MS (tested 3 times since the age of 19, am now 61.

I have all of those things, I am diabetic now (since surgery number 16 I think it was) am not very mobile at all and I literally hurt all over, have burning pains in my feet (my middle toes will also cramp up if I try and exercise my legs/feet, which is very weird!). I get numbness in my hands just holding a knife and fork. Now the skin on my legs has become discoloured, due to the lack of blood flow, but my pulses in my feet are fine! The skin on my legs feels sore, and because I started to have restless legs on top of this and couldn't sleep, I have my carers rub my legs with cream - God it hurts! Which is worse though - it's the not sleeping! To aid with the cramp and restless legs I get I now take a high dose of magnesium, and touch wood, that is helping!

Did they look at Small Fibre Neuropathy? I reckon it may be that - medications like Pregabalin, Gabapentin do help.

*The nerve-conduction test is only sensitive to damage in the large fibre nerves. and does not detect abnormalities in the smallest-calibre nerves.

Small fibre neuropathy typically causes a painful and burning sensation, often in the feet, but also in other parts of the body including the arms, face and trunk.

The pain is usually constant but can vary throughout the day and it can be worse during rest or at night. The patients are sensitive to touch and may get pain from bed sheets touching their feet.

Patients may also report transient electric shock-like pain lasting for seconds but many times during the day. Cramps can also occur.

Patients also report: light-headedness, postural hypotension, presyncope, syncope (fainting), abnormal sweating,
gastrointestinal and sexual dysfunction.

Patients with small fibre neuropathy may be misdiagnosed as having a plantar fasciitis, fibromyalgia or psychosomatic syndrome.

Another thing it could be is a problem in your lower back? Because I have been effectively 8 months pregnant now for 15 years, my spine is degenerating, so that too is having an effect on it all.

On top of all that I also have a nasty little disease called Sjogrens Syndrome. is a long-term autoimmune disease that affects the body's moisture-producing glands (lacrimal and salivary), and often seriously affects other organ systems, such as the lungs, kidneys, and nervous system. It causes inflammation which leads to damage of the peripheral nerves.

I've no hope really - but I think that you should mention the Small Fibre Neuropathy and ask if that was tested for, which I doubt it was.

Best of luck and keep us posted!

I have similar symptoms and chronic pain which have been traced to disc and facet joint issues throughout my spine, most concern is about lumbar spine and neck. I’m always to be wary of the symptoms of Cauda equina as mentioned previously in the thread. A procedure called rhizolysis has helped pain from the lower back, nothing to be done about the neck. Pins and needles continue, they are caused by nerve impingement. It needed several MRI scans over two years to effect an accurate diagnosis. I was told only MRI will shows detail of nerves. I know not always easy to get. Think I was very fortunate as I do now understand the ‘why’ of it and some pain has lessened.

👍
Hope they find out.

Callistemon21

Shinamae

Callistemon21

Shinamae

Callistemon21

I might have missed this, but have you had blood tests at your GP surgery to check your levels of vitamins and minerals and other anomalies?

The last blood test I had was a couple of months ago and everything came back” normal”
I do take a multivitamin as well as the supplements mentioned above

But was it just a blood count or did they do more extensive, wide-ranging tests?

Could you have an imbalance of vitamins and minerals if you are taking certain supplements?

I think it was just a normal blood count..
Do you think I should ask for something more specific?

As Whiff suggested:

When you see your GP ask for a complete blood test and include a fasting cholesterol test
They can check for a lack of some vitamins, inflammatory markers and many other deficiencies and conditions.

Or it could be a trapped nerve in your neck, as someone else suggested.

Will do 🤓

Shinamae

Callistemon21

Shinamae

Callistemon21

I might have missed this, but have you had blood tests at your GP surgery to check your levels of vitamins and minerals and other anomalies?

The last blood test I had was a couple of months ago and everything came back” normal”
I do take a multivitamin as well as the supplements mentioned above

But was it just a blood count or did they do more extensive, wide-ranging tests?

Could you have an imbalance of vitamins and minerals if you are taking certain supplements?

I think it was just a normal blood count..
Do you think I should ask for something more specific?

As Whiff suggested:

When you see your GP ask for a complete blood test and include a fasting cholesterol test
They can check for a lack of some vitamins, inflammatory markers and many other deficiencies and conditions.

Or it could be a trapped nerve in your neck, as someone else suggested.

I'm wondering about long Covid .
It seems to be such an insidious illness affecting people in completely different ways .
A close friend had it at the height of the epidemic .
And how she's changed since then .
I used to really enjoy her company .
Now she makes me feel depressed and has reduced me to tears .