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What the heck do I do?

(80 Posts)
Luckygirl3 Sat 01-Jun-24 19:41:48

I have atrial fibrillation and newly diagnosed coronary artery disease.

I have had chest pain all afternoon and just gone into AF - not fast as I am on a drug to keep the rate down and have taken an extra pill.

I don't feel great - in pain and slightly giddy. But I am wandering about OK, not clutching my chest and falling to the floor.

If I ring 111, they will send me in and the waiting time at present is 4.5 hours with 50 people waiting in A&E. To be honest I simply do not feel well enough to cope with that.

I have faced this dilemma several times - more often in the middle of the night. I simply have no concept of what might or might not be safe to do on any one occasion. So far I have recovered from it after between 6 to 12 hours.

What would you do?

kittylester Sun 02-Jun-24 06:30:57

Morning Lucky, how are you today?

Bonnybanko Sun 02-Jun-24 06:33:31

I too have AF and I’m on digoxin it’s great for slowing down the heart but if I was in severe pain I’d go straight to A & E please don’t hesitate even if you don’t feel well. On second thoughts it might be best to dial 999 the paramedics will fast track you into hospital. Take care, xxxxxx

Katyj Sun 02-Jun-24 06:37:00

Luckygirl3 Hope your okay flowers

BigBertha1 Sun 02-Jun-24 06:59:35

I hope you are ok Lucky and that you either called 999 or 111 and got yourself to hospital. I got DH there both times he had symptoms.

Marydoll Sun 02-Jun-24 09:59:39

I came back to see if there is any news from Luckygirl. I hope she is OK.

Luckygirl3 Sun 02-Jun-24 10:28:52

Than you all for your concern.

I took advice from a retired doctor friend and decided to stay put and see how it went, on the grounds that it was probably just angina plus AF. I was awake till nearly 3am, but have woken up and both the pain and the AF have subsided.

I am sorry to have loaded my anxiety on you all, but really appreciate your input. I am getting quite low about all this.

I am finding all this very hard indeed as this is a new diagnosis for me and, to be honest, it has rather pulled the rug from under my feet. This was not a diagnosis that I could have predicted as my lifestyle (no smoking, proper diet, daily walks) lulled me into a false sense of security that this was very unlikely for me.

It is exacerbated by the fact that I am now on my own and I have been used to having a doctor in the house. It feels very frightening to be confronted by all these new symptoms, and I have no way of gauging what is urgent and what is not. Part of me assumes that the cardiologist is not too worried, as he happily sent me home from the treadmill test with an AF rate of about 120 and with chest pain, and he knows the angiogram will not be for a few months. So .... maybe I just need to try and ignore it when the symptoms are bad..... not easy, I have to say.

It happens every few days and I could be in and out of A&E like a yo-yo if I rang every time. And I must admit that I am influenced by the fact that A&E here is a bear pit with long long waits and dozens of patients stacked up. Sometimes I simply do not feel well enough to face it.

I think yesterday's episode was precipitated by me walking up to the common, so maybe I just need to accept that I cannot go out walking till all this is sorted. It really is not a challenging walk and I went like a snail on the shallow slope up, stopping every few yards. I feel a bit trapped by fear of setting it off.

Tomorrow I am going to a few days stay by a beach - flat with no cliffs to climb and a flat walk from where I am staying - but a bit of me feels terrified that this is going to happen while I am away and in a strange place. My friend is staying about 100 yards from me so I will not be totally adrift.

Sorry to have loaded this on you all - it was not a good evening yesterday, and I am hoping for a reprieve today.

Aveline Sun 02-Jun-24 12:02:58

I'm so glad to hear that the AF subsided and you feel a bit better. Nevertheless it was very scary. Just not knowing what to do is awful. Take it very easy today. You'll be very tired after your stressful night.
I'm sure your holiday will be fine and it's good that your friend will be nearby. Best wishes.

Nandalot Sun 02-Jun-24 12:14:13

So pleased to hear you are feeling better. Look after yourself. Your upcoming break seems like the perfect tonic.

Cossy Sun 02-Jun-24 12:21:55

Thanks for updating us. Maybe you need to have meds adjusted or maybe, sadly, it’s just a reality check and you need to slow down.

Baggs Sun 02-Jun-24 13:08:22

Glad you are feeling better, Lucky, and I hope you enjoy your little holiday. One of the best uses of GN, I think, is to offload anxieties in the "problem shared is a problem halved" way. 🌹

Joseann Sun 02-Jun-24 13:46:16

👍 Luckygirl3.

hamster58 Sun 02-Jun-24 13:57:06

I'm seeing your message far too late to offer advice. so.... just wondering how you are Luckygirl and what you did. These things to process alone are extra frightening, but I do think you should go to A&E if it happens in future as I'm sure you wouldn't be left to fester

crazyH Sun 02-Jun-24 14:02:54

Luckygirl13 - 👍

Norah Sun 02-Jun-24 14:05:54

I'm glad you feel better. Perhaps take care to drink enough water, eat small meals, maybe a banana and apricots (potassium), gentle walks. flowers

BlueBelle Sun 02-Jun-24 14:26:01

Hamster read back and you’ll see there has been an update
It’s entirely up to you luckygirl but you wouldn’t be left in a bearpitif you arrived at A and E with a cardiac problem and you perhaps wouldn’t have to go backwards and forwards as they would be doing tests on the first visit to make sure it didn’t happen again but you did what you felt was right for you and that’s what we all have to do
Lets hope that was the last time you feel so bad but I do think your consultant needs updated about these episodes

Have a lovely break

fancyflowers Sun 02-Jun-24 14:28:46

I'm pleased to hear that you are feeling better today.

cornergran Sun 02-Jun-24 16:02:22

Good to know you’re in less pain luckygirl, also that there is a knowledgeable, supportive friend. I’m sure a few days away will help, quiet walks by the sea with no hills sound to be just right. You know there are hospitals everywhere. For a few months after Mr C’s surgery if we were going to be away from home I looked up the details of the hospital closest to our location and made a note - just in case. Never needed them but it did make me feel better. If needed an ambulance will always find you. Please try not to fret. X

Chestnut Sun 02-Jun-24 16:12:55

Just a reminder to download the what3words app to your phone before you go away, then an ambulance can find you wherever you are, even on a mountain! Not that you will be on a mountain, but maybe one day.
what3words.com/products/what3words-app

Iam64 Sun 02-Jun-24 16:18:17

Good to hear from you. I’ve been in permanent af for 9 years, other than about 4 weeks after a cardio version, I’m lucky. I don’t get palpitations but hills really challenge.
My mum had AF and did get awful palpitations. She was admitted a couple of times as a result but was advised not to over worry - she didn’t. We did
Get well lucky

Luckygirl3 Sun 02-Jun-24 18:04:37

Thank you for all your kind messages.

I do not worry too much about the bouts of AF now that I have the right meds to slow the rate down. I hated it when it was going at 150, but the meds keep it below 100.

The problem that worries me now is the knowledge that I also have ischaemic heart disease, and that the pain in my chest is not indigestion but angina. I am not really able to judge at what point I should seek help as it is all so new to me.

I am sure I will gradually adapt and that things will become a bit clearer when I have had the angiogram. Fingers crossed.

BlueBelle Sun 02-Jun-24 18:09:31

Good luck luckygirl

Grannybags Sun 02-Jun-24 18:52:02

Nice to hear from you for an update luckygirl You had us all worried!

I hope things calm down a bit for you and you enjoy your break

Iam64 Sun 02-Jun-24 19:01:35

Luckygirl - life isn’t fair is it. We do our best to look after ourselves and it happens anyway 💙💖

V3ra Sun 02-Jun-24 19:48:39

www.bhf.org.uk/informationsupport/our-online-community

Luckygirl3 the British Heart Foundation has an online forum, that might help you as well.
Glad you're feeling a bit better ax

V3ra Sun 02-Jun-24 19:54:21

(Ignore that rogue "a" 🙄)