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I have spots

(66 Posts)
fancythat Fri 05-Jul-24 13:04:31

Had them since mid January this year.

They started off looking a bit like ringworm.

First of all I went to a pharmacist.
Not their fault I dont think, but I was allergic to the cream she advised.

Then saw doctor 1 - thought it was something like ring worm. Something anti fungal. Got prescribed a cream. Limited effect.

Doctor 2 thought could be anti bacterial. Another cream Or was it tablets this time. From memory, spots got worse.
By this time there were more of them.

Doctor 3 thought something anti fungal and antibacterial combined. Another cream. Limited effect.

Oh, and I saw about 3 different nurses too.

Doctor 4 thought psoriasis. Cream. Did have some effect, but after more than two weeks advised to stop using, as should have cleared them by now. Which it hasnt.

Doctor 5 - gave up and had photos sent to hospital dermatologist.
Dermatologist thinks maybe excema.
To be fair, not finished the two week treatment yet, but spots appear worse.

So while I finish the two weeks[oh and i had to send in a specimen which came back clear, no action required], anyone any further ideas please?

fancythat Sat 24-May-25 16:13:42

Personally, I am not an expert at all.

I have previously been prescribed capasal[can be bought at a chemist, maybe behind the counter] for my psoriasis on my scalp.
It is smelly stuff[tar based] but does shift some scaly stuff.
It comes back with me though, after about 3 days,
A medium size bottle lasts for ages, as only need small amounts at a time as makes a lot of froth.

And the Enstilar I was prescribed yesterday, I am supposed to put that on my scalp as well. Yet to try it there.

MayBee70 Sat 24-May-25 15:22:00

My grandson ( exam stress) has psoriasis on his scalp. What’s the best remedy for that?

fancythat Sat 24-May-25 09:59:16

V3ra and MayBee70

parrafin - about the last 4 products prescribed including the latest, Enstilar foam, are all flammable.

Dont like all these products really.
But I am doing as I am told for now.

I dont think my skin has gone thin so far.
It does feel a bit baby soft on places.

Another thing DH and I discussed. What will my skin look like if there is an end to it all.

My Gp showed me her psoriasis. It is about the size of a builder's nail.

fancythat Sat 24-May-25 09:53:40

Is life stressful at the moment Fancythat?

No it isnt. But thanks for asking.
Me and DH were discussing that this morning.

The consultant reckons the psoriasis was caused by the bug or that caused diarrheo for a long time, then upset tummy for 3 months.
I also had to have 9 fillings because of bacteria.
The I started the spots. And my skin is not healing well in other areas as well.

He reckons the psoriasis was called by a long period of stress.
He asked if I had had a long bereavement. I said no. He asked about money troubles. I said no. So he has put it down to the stress caused to my body by the bug.

I did half joke to DH I could go away to a spa type place for 2 weeks and see if that improves things!

MayBee70 Sat 24-May-25 09:29:19

For quite a while now I’ve had what seems like acne on my shoulders and it’s actually caused scarring. It’s only on my shoulders. I’ve tried everything; got so many different creams. I’ve used hydrocortisone, Stinky Stuff, Sudocrem etcJust when I think it’s gone another red bump appears and it starts all over again. The latest thing I’ve bought, which looks quite promising, is Hydromol. I do think it’s down to ageing, thinning skin. My skin and my hands have been my only vanities throughout my life so it’s a bit depressing, especially as I can remember my mum having dry, scaly patches that never seemed to heal.

M0nica Fri 23-May-25 22:18:04

Is life stressful at the moment Fancythat? If it is it could be eczema caused by stress. In my late teens and twentie I could work out how stressed I was by consulting the rash on my left arm.

Two small patches, life was relaxed. Going above the elbow, life was getting more difficult, whole arm, red light, both arms, neck and creeping onto face, Degree finals.

Throughout, I never really felt stressed, just my body reacted. No creams did any good, once finals were over it more or less cleared up.

V3ra Fri 23-May-25 19:18:16

Still using the Epimax for now. Disliking it, but persevering.

I've just looked it up and it's made with paraffin products, which I found I couldn't tolerate at all.

fancythat Fri 23-May-25 18:51:29

Thanks.
Have written down the recommendation.

Still using the Epimax for now. Disliking it, but persevering.
Me and someone I know call it lard.
Has the same looks, consistency, and maybe smell.

V3ra Fri 23-May-25 18:38:41

amzn.eu/d/5fuGAlW

fancythat if you do still need a good all-over moisturiser I can recommend this one.

I had dreadful allergic skin problems after two of the Covid boosters, tried absolutely everything including steroids from the doctor.

Finally found this cream and used it every day.
It's recommended for psoriasis as well.

fancythat Fri 23-May-25 15:46:07

I finally had a Consultant Dermatology appointment today.
Adding all this in case anyone at some point rereads this thread.

He says I have plaque psoriasis.

I will get light treatment. Though he is doubtful it will work as going out in the sunshine does not. But we are going to give the light treatment a try.
He said he has marked me down as urgent for treatment[my legs for instance are 80% covered in psoriasis]. But it will still take months before I get the light treatment.

If it doesnt work[they will stop treartment halfway through if it doesnt], I will get put on an immunosuppressant called Methotrexate. If that one doesnt work, the Consultant says there are lots of other immunosuppressants to try instead.

Meanwhile I stop the current two creams I am prescribed, and use Enstillar. In my scalp as well[it is bad in there]. And carry on using Capasal for my hair/scalp.
And carry on using Epimax.

He said it all likely started from the bug I talked about earlier in the thread.

There are more details to all this, but that is the basics.

fancythat Tue 07-Jan-25 21:15:53

No. Though thanks for posting that.

petra Tue 07-Jan-25 20:04:43

Fancythat
Do your spots look anything like this ?

fancythat Tue 07-Jan-25 19:14:54

petra

Fancythat
I poster earlier on this thread that you should go private.
After reading the incident with the noodles I think it’s more imperative that you do.
The NHS wouldn’t spend the time it’s going to take ( a myriad of tests) to get to the bottom of it.

Yes. I think that would have been better[gone private].

I hadnt apreciated until you wrote this, that I may need lots of tests.

fancythat Tue 07-Jan-25 19:13:10

Thank you.

I too am beginning to wonder if the dermatologist will be able to do anything.

I would like the referral to the light treatment. It has seemed to help some people locally, And it is done at a more local hospital[I am thinking wait times may not be as bad].

Georgesgran Tue 07-Jan-25 17:24:36

fancythat As my GA isn’t an allergy to anything, luckily I can use any moisturizer. Basic ones like E45 and Nivea are great, or I’ll use a body butter or scented lotions to match my perfume. In the beginning, when I was first seen at hospital and diagnosed, it was stressed to moisturize with ‘anything’.
I had 2 appointments with dermatology and decided not to make any more - I felt (knew) I was wasting their time and the condition could possibly go, as mysteriously as it came. So far, I’ve still got it, but on lower torso, upper legs and arms.

petra Tue 07-Jan-25 16:37:54

Fancythat
I poster earlier on this thread that you should go private.
After reading the incident with the noodles I think it’s more imperative that you do.
The NHS wouldn’t spend the time it’s going to take ( a myriad of tests) to get to the bottom of it.

fancythat Tue 07-Jan-25 10:28:05

Which leads me to petra's post.

That was when my problems may have started.
In my opinion.
Didnt want to write all this, as didnt want to out myself, and didnt want to be graphic, but here goes.

18 months ago, I came back from Northern France[I rarely go abroad].
On the journey back home, i bought some noodles from a motorway service station.I did not eat them all.
I live 4 hours from that service station.
Stupidly, the next evening I reheated the leftovers and ate them.
I know, looking back, that I heated them to warm, and not sizzling hot.
The next morning[and here people will need to excuse the graphics], my tummy felt like Mount Vesuvius. I woke up thinking, what on earth is wrong?
I then had diarrheoa for 3 weeks.
[I went to the doctor after 1 week}.

We decided between us, I had eeither caught a bug on the way home from holiday or it was the noodles.
On balance she thought it was a bug from France.
I did tell her I thought I might have been bitten once over there, but I didnt know for sure.

After the diarrheoa stopped[even the doctor was relieved], my tummy did not feel properly right for 3 months.
Then I started to have problems with my teeth.
My dentist told me I needed 9 fillings.
She said I had bacteria which had caused decay.
She thought the bug may have been the culprit.

The next month, or was it that same month[again exzcuse the graphics], I had a bottom crack that was dry skin, and wouldnt clear up with Savlon or whatever I tried at home. [it did eventually when I swapped toilet paper].

The next month my spots started.

Is it all related to the "bug"? I have no idea.

fancythat Tue 07-Jan-25 10:15:25

I am not on any other medications except for what I am being prescribed for the spots.
Spots is a bit of a silly word now, as I have clumps of affected skin.
The spots joined up with each other.

Previous to all this, I rarely went to the doctor.
Every two years or so, about something or other.

I amy have written before, I have never had any skin problem up to now. And there are no skin problems in my family history.

it has all "come out of the blue".

fancythat Tue 07-Jan-25 10:12:31

Georgesgran I am struggling with moisturiser.
I can see the sense.
For me, it makes my skin too hard and stiff and uncomfortable.
I would like a soft one.
Have just recontacted the doctor and asked if I can try a different sort.
What sort do you use please?

fancythat Tue 07-Jan-25 10:10:53

Allsorts - I got long covid. Months before there was even a word for it.
No idea if that changed me biologically, or changed my DNA?
I dont know much about that sort of thing.

I feel for what you are going through.

Personally, I do get relief at night.
I changed my clothes and bedclothes to synthetic ones, as cotton and linen make my skin too cold.
I also make sure I do not get too hot or too cold at night.
I have moved my bed away from the radiator and any heat source as that aggrevates things.
I have a strange thing where my hands need to keep warm at night and in the evenings. No idea why.

fancythat Tue 07-Jan-25 10:06:49

Monica thanks for that. I never thought about a manufacturer reformulating something.

A couple of people have told me[including someone medical, well actually thinking about it, they both are] that we can become allergic to something later in life.

I sway between thinking I am allergic to something, and that I am not.

I am struggling to understand why it is all taking so long for me to get any form of definitive answer as to what I have.

M0nica Tue 07-Jan-25 08:22:04

fancythat. You may not have changed any of the products you use, but a manufacturer maay have reformulated them without announcing that.

I used a specific body lotion for years without any problems, then it began making my skin itch - it had been reformulated and I was allergic to one of the chemicals now being used in it.

You can also develop allergies - and many do, as you age. I had to stop wearing contact lens because I became allergic to the preservatives used in all the liquids neccessary to clean and moisterise them.

You problem does not sound like an allergy, but do not rule it out.

petra Tue 07-Jan-25 07:48:29

Fancythat
I’m fascinated how you remember that you didnt reheat noodles 6 months before the spots started.

Allsorts Tue 07-Jan-25 07:32:19

Never had a problem with my skin until Covid. I has spots appear both sides of mouth, diagnosed eventually asAngular Chelitus, nothing works on it though, them I got excema rash back and legs again nothing seemed to help, then had blotches appear, one removed, told it was Planctar Lichen, can't keep up with them all. I feel a nuisance trying to see a doctor as nothing gets sorted. I take a anti histamine each night if I can't stop itching.

Georgesgran Tue 07-Jan-25 01:05:46

I have GA rubysong. I’ve had it 20 years. Cortisone cream when it’s bad, otherwise dry thoroughly after bathing and keep the skin moisturized. Lots online about it.