Gransnet forums

Health

In despair with GP practice .....

(128 Posts)
Luckygirl3 Tue 23-Jul-24 21:19:18

I just do not know what to do. I am on my own here with serious recent heart problems - major artery blockage and stent inserted - and the support from the surgery is just hopeless. Sadly I am not alone in receiving appalling service from them. Everyone is giving up on them.

Here's an example - my high risk recent heart episode (artery was blocked to 94% in one place) is caused by my genetic hypercholesterolaemia. I am on a statin. I asked my GP ages ago if this would be monitored and she said there was no need as the statin works. Just been to the cardiology department this afternoon and brought it up with them. They said I am on a far too low dose given my condition, and that the situation needs monitoring, the dose needs increasing and combination therapy with another drug needs looking at in order to prevent a further heart attack.

I am on six monthly injections for osteoporosis. This requires regular blood tests to monitor kidney and liver function, checking of results, ordering of the injection, booking an appointment for the injection etc. etc. I do all this - if I didn't, none of it would happen.

It is a dispensing practice, and 2 of the drugs I need are hard to get. I am not allowed to order any drugs earlier than one week before due, but I know that this is insufficient time to have them ready when needed. If I order before one week the order is rejected. If I order at the dictated time, I know that at least 2 of my drugs will not be there in time. I am under strict instructions from the hospital not to stop these, even for a day.

The other day I had a further episode of chest pain - the cardiology nurse at the hospital told me I must ring the practice for an urgent ECG - I did this and the surgery refused. Said I must go to A&E. I rang back the cardiology nurse who said she would ring them. She got the same response. She asked to speak to a doctor, and was told one would ring back - they didn't. It's hopeless.

I feel as though I am banging my head against a brick wall. I hate ringing them - they are sometimes quite rude and I do not feel strong enough to deal with them at the moment.

I live in a rural area and practices are few and scattered.

Bea65 Wed 24-Jul-24 10:20:14

[LUCKYGIRL3} feel your weariness and your frustration.. I also have genetic hyper cholesterolaemia for which I now take a statin - often thought how does this tiny 5mg tablet make me less vulnerable to another stroke as have also had an episode of tachycardia last year and ended up in A&E where I was seen and treated quickly…it’s dire when you feel at your lowest physically which affects you emotionally

{URMSTONGRAN} your post resonated with me and sure other GNs have had terrible ordeals .. I also now move slowly and carefully with every movement..limit myself to going out every other day unless its for medical/blow dry appts

Baggs Wed 24-Jul-24 10:59:55

This is an appalling situation for you, Lucky! Is there any way you could manage to go to the surgery and insist on speaking to the pharmacist and refuse to budge until you can? I know this sounds horrendous itself but it's as if you're banging your head against a brick wall already.

Ideally, having someone go with you would help. And taking a packed lunch.

Baggs Wed 24-Jul-24 11:01:39

A formal complaint, as others have suggested, also seems necessary. The ridiculous bureaucracy is making a bad situation worse.

MayBee70 Wed 24-Jul-24 12:03:20

Yes. A letter to the practice manager is needed outlining exactly what has happened and asking for an explanation.

pascal30 Wed 24-Jul-24 13:34:43

I know you live in a rural area but if you drive I would ask your friends and maybe Nextdoor for recommendations for a more amenable, flexible GP practice. Even if it means getting taxis it would be worth it for your peace of mind.. Can you get to your nearest town for example or would that be out of area? I would doubt that your own Practise is going to change from what you've written..

dalrymple23 Wed 24-Jul-24 15:17:10

The whole situation is utterly atrocious and very wrong. I do not need to see a GP (might be wasting their valuable time!) but need referrals to specialists in the local hospital.

Moved from Sussex to Norfolk in April. All notes from previous GP sent in a timely fashion to new GP. Never read. Yet they sign off my repeat prescription requests without wondering why this patient is taking that med! Are they professionals or not?

I had a heart attack and a stent as well. Have asked the surgery four times for a referral to cardiology at N & N. Nothing. Wrote to the practice manager stating that CQC would be my next move. He rang the same day! And had the audacity to wonder why I was cross. He hadn't read anything I had written. IQ of a park bench, frankly. And I enclosed a letter from cardiology in Sussex following their telephone consult two weeks ago.

How time-consuming can it possibly be to email the local hospital? This is my life that these people are dismissing/playing with.

Oh, I was also told that noone now has an allocated GP. You can have anyone or a locum. That will work well, then. Joined up care.

MayBee70 Wed 24-Jul-24 16:19:22

pascal30

I know you live in a rural area but if you drive I would ask your friends and maybe Nextdoor for recommendations for a more amenable, flexible GP practice. Even if it means getting taxis it would be worth it for your peace of mind.. Can you get to your nearest town for example or would that be out of area? I would doubt that your own Practise is going to change from what you've written..

But you can only register with a practice if you’re within the area of it? If you are outside the area a GP is not obliged to visit you if necessary. Mind you, I am going back a few years to a time when GP’s did visit patients.

pascal30 Wed 24-Jul-24 18:01:39

Yes MayBee I agree... which is why I asked if the nearest town, which would hopefully have a choice of GP practises, would be out of area.. It's difficult isn't it?

knspol Thu 25-Jul-24 11:24:26

So very sympathetic Luckygirl for your present situation. My late DH and I went through very similar circs. The sad truth is that if you're really ill nowadays you need someone healthy to be able to fight your corner and that is not always possible. I have just checked online with my surgery and the first available appt is in 4 weeks time and that is with one of the trainee GP's that are often working there for short periods. After a disastrous previous experience with a couple of these I would have to be paid to see another.
In spite of not being able to see a doc I have recently been invited for my annual asthma review with a nurse and also yesterday had my first ever health review again with a nurse. I understand surgeries get paid an extra £24 for each of these extra checks!!!

Milest0ne Thu 25-Jul-24 11:33:48

It is very difficult reading of all the problems GNs are receiving (or not) I am thankful that we have a brilliant health service in my area. I am looking to move house but am looking carefully at the health care provisions where I want to move to as my first priority..

Soniah Thu 25-Jul-24 11:46:27

Sorry so many of you are having such problems, I can't fault our surgery here in Wales or the pharmacy, recently our lovely pharmacist was concerned about my husband taking folic acid 6 days a week, she talked to his doctor who checked with the consultant and it's fine (because he's on methotrexate he needs it) and then phoned to let him know, all without being asked. I think we are just lucky

MissAdventure Thu 25-Jul-24 12:00:54

It makes you wonder how many people "fall through the net".

Mojack26 Thu 25-Jul-24 12:08:43

I feel your pain! We cannot make appt. to see a GP! They will phone you and if 'clinician' thinks you need to see a GP they will phone back. It's a complete disgrace. I too have a heart condition so I totally understand. Have you contacted your local councillor/MP? I would. Good luck

Whitelaw12 Thu 25-Jul-24 12:28:43

Where i live in South Wales we have a very good health centre. If you ring on the day you can usually see a GP. And one of our lady doctor's does a well woman clinic once a week, you can spend up to half an hour with her. All the GP's are very approachable and friendly. Something needs to be done about GP practises that are not offering the service they should. Any concerns you could contact your local health authority, and even your MP.

growstuff Thu 25-Jul-24 12:29:42

I know it won't help with your immediate personal issue, but has anybody ever reported any of these problems to these people:

www.healthwatch.co.uk/

I know they have just produced a report about the dangers of online-only "consultations".

It seems to me that the modern method of "triaging" is very hit and miss and I can't really see that it saves anybody anybody any time because patients end up having to explain the same problems multiple times - surely more clinical time is taken up listening to these problems over and over again.

My other big concern is the lack of continuity of care. In some ways I'm lucky because I have a diabetic nurse, who is very conscientious and does refer me directly to doctors if needed. However, I have the same problems as everybody else if I want to see anybody about anything not related to diabetes.

PS. I'm considering sending a report to Healthwatch and will see whether there's any response.

SaxonGrace Thu 25-Jul-24 12:34:20

I’d start with an email stating all your concerns to surgery’s Practice Manager, that way you have a record of what’s what rather than phone calls where advice and instructions can later be denied. If no luck with this you need to go higher and copy in the surgery , again via email so you always have a record.

chorisia Thu 25-Jul-24 12:35:23

I was removed from a GP practice in Ipswich that I live close to after decades on their books. A few days after I refused a covid vaccination second vaccination,in fact I never has a first. Explaining the situation to alternative practices I eventualy found a GP practice that accepted me.
I wonder how many GP practises are receiving annual payments for people who have left the country? My second wife years ago visited the GP and the doctor referred to the number of children she had,she did not have any,clearly looking at my first wife records even though they were promptly advised first wife had returned to Canada

Livingthedream Thu 25-Jul-24 12:45:49

I'm in a rural area too and our local surgery is beyond incompetent, I'm really sorry to hear all you're going through.

PamQS Thu 25-Jul-24 13:03:17

I feel as if our GP surgery totally lost the plot during Covid. It was all tele-appointments and phone consultations. I find these very unsatisfactory, as I usually miss out something that might be important. Then, to cap it all, the best GP in the practice had to take leave because of family illness, and announced he was leaving when he came back. The phone was clearly being ignored by reception staff, at one point I started off as ‘fifteenth in the queue’ and just hung up! A new GP ‘practice director’ has no been appointed, and it does feel as if she cares what sort of service patients are getting. She has appointed various para-medical staff who can issue prescriptions if needed.

I absolutely hate the online prescription system, I’m on so many different meds for diabetes and arthritis pain that the house looks like the back room at a pharmacy when my orders arrive! At one point, I ran out of a drug that I shouldn’t miss taking. I contacted NHS 111 online, who were able to provide an emergency prescription which O had to collect at the nearest Boot’s. After a lot of hanging around, they were able to dispense a week’s supply to tide me over.

My sympathies to everyone who’s caught up in GP difficulties - it’s obvious the system has broken down under too much pressure during Covid. Apparently there’s a large queue of people who are fed up of being put in a queue to speak to a human being!

MissAdventure Thu 25-Jul-24 13:11:52

The trouble is, when a person is at a really low ebb, feeling very unwell, and has no support, it all seems insurmountable.

I had an appointment at my GPS where I saidc"Look, cancel all my appointments and I'll just phone for an ambulance when I'm dying, because that is what's happening, I'M DYING, and nobody is helping me!!!"

So the gp prescribed antidepressants!!

cc Thu 25-Jul-24 13:27:10

I feel for you Luckygirl3, my husband has heart failure and takes a lot of medication but we are fortunate that he is properly monitored by our GP practice. I was concerned that when we moved he might not be monited so well by a new practice, but he was put under the care of the cardiac department at our new local hospital. He regularly saw a cardiac nurse who monitored him along with our new GP. The practice has several very competent practice nurses and employs good locums to provide enough appointments.
There are several practices sharing the facilities in the GP surgery building and it is quite noticeable that there are always queues of discontented people at the desks other than ours. One of the other practices has been declared to be inadequate and we know that patients there are very unhappy.
I really don't understand why practices (who presumably are receiving much the same money per patient) can operate at such different levels.
If I were you I would push to be put under the care of a the hospital, I would expect that there is a part of the department with a senior nurse who can keep track of you. I think that there are also often cardiac nurses who work in the community, this was certainly true where we previously lived and she kept track of my husband for the first few months until they were happy that we were managing his medication properly.
The suggestion that you speak to the practice pharmacist seems to be a good one. Most of the drugs that my husband takes for a condition that sounds very like yours are in common use and I've always understood that if you have a regular prescription they can anticipate you needing the drugs.
I would also consider changing practices if this is at all possible. We chose our practice after asking our local pharmacist which local GPs he would recommend.

pascal30 Thu 25-Jul-24 13:27:54

I am also lucky to have a really lovely GP practise with a named GP who I can see with an appointment made. the receptionists, nurses and on-site pharmacist are also helpful and friendly.. It seems that if staff have a good well run practice that they stay..
I am horrified at the majority of Grans seem to be having such poor and negligent experiences.. This thread really is an eye-opener...

Albangirl14 Thu 25-Jul-24 13:37:29

I would definately ring 111 and they will contact the GP or Paramedics . Our family has used this route to care several times.

missdeke Thu 25-Jul-24 13:37:38

It makes me so angry when I hear of surgeries that treat their patients so poorly. In a recent survey of surgeries in Essex my local surgery received 99% customer satisfaction. It is a very busy surgery with thousands of patients so if this surgry can do it why can't others.

cc Thu 25-Jul-24 13:38:38

Casdon

Unfortunately if it’s a poor practice the likelihood is that the practice manager is part of the problem. I suggested a formal complaint because I think you’ve had really shocking care Luckygirl, despite being proactive, and going formal is the best way of ensuring you are heard and action is taken.

This was certainly true at our last practice. The practice manager had no previous experience and, as he was also responsible for all the online services, he was a total disaster. He used to allocate password for their website but not save them, so most people had to visit the surgery to order prescriptions rather than do it online. This led to long queues and people missing appointments because they could not sign in for their appointments. Eventually he was removed from his post to somewhere where he could do less harm.
Being a practice manager can be a very stressful job and, dare I say it, many are defensive when they receive complaints are or asked for help.