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In despair with GP practice .....

(128 Posts)
Luckygirl3 Tue 23-Jul-24 21:19:18

I just do not know what to do. I am on my own here with serious recent heart problems - major artery blockage and stent inserted - and the support from the surgery is just hopeless. Sadly I am not alone in receiving appalling service from them. Everyone is giving up on them.

Here's an example - my high risk recent heart episode (artery was blocked to 94% in one place) is caused by my genetic hypercholesterolaemia. I am on a statin. I asked my GP ages ago if this would be monitored and she said there was no need as the statin works. Just been to the cardiology department this afternoon and brought it up with them. They said I am on a far too low dose given my condition, and that the situation needs monitoring, the dose needs increasing and combination therapy with another drug needs looking at in order to prevent a further heart attack.

I am on six monthly injections for osteoporosis. This requires regular blood tests to monitor kidney and liver function, checking of results, ordering of the injection, booking an appointment for the injection etc. etc. I do all this - if I didn't, none of it would happen.

It is a dispensing practice, and 2 of the drugs I need are hard to get. I am not allowed to order any drugs earlier than one week before due, but I know that this is insufficient time to have them ready when needed. If I order before one week the order is rejected. If I order at the dictated time, I know that at least 2 of my drugs will not be there in time. I am under strict instructions from the hospital not to stop these, even for a day.

The other day I had a further episode of chest pain - the cardiology nurse at the hospital told me I must ring the practice for an urgent ECG - I did this and the surgery refused. Said I must go to A&E. I rang back the cardiology nurse who said she would ring them. She got the same response. She asked to speak to a doctor, and was told one would ring back - they didn't. It's hopeless.

I feel as though I am banging my head against a brick wall. I hate ringing them - they are sometimes quite rude and I do not feel strong enough to deal with them at the moment.

I live in a rural area and practices are few and scattered.

MissAdventure Sat 27-Jul-24 11:33:57

All of my medications have disappeared off my NHS app.
It happened yesterday, so I phoned and was assured it would be put right, but it hasn't been.

Aveline Sat 27-Jul-24 11:12:54

Work our not out!

Aveline Sat 27-Jul-24 11:12:27

I've recently worked out how to work out surgery. It's time consuming but with perseverance appointments by phone or in person are possible and repeat prescriptions are manageable. It's not like the old days though.

Joseann Sat 27-Jul-24 11:02:15

I'm sorry people are having such bad experiences with their GP surgeries. I need to praise excellent service where it's due.
I had a troublesome tummy pain that wouldn't go away after several weeks. Popped along to our surgery at 8 am Thursday, managed to get an appointment for 9.15 am, bloods taken. Doctor phoned me this morning, a Saturday!!, prescription for antibiotics sent to local Boots to collect in one hour.
I haven't visited our surgery in over 4 years when we moved here, so was prepared to have a long wait on my hands. Maybe I was lucky, but I'm giving it 10/10.

merlotgran Sat 27-Jul-24 10:19:33

My surgery seems to be going from bad to worse.

I know there were problems two weeks ago with computer systems going down but last Monday I was sent a reminder to go for blood tests the previous Friday. An appointment I knew nothing about. I ignored it rather than waste time trying to get through on the phone.

Yesterday I looked at Patient Access, checking for an update on my current health issues only to find results for my recent blood tests show that according to my records, I have congestive heart failure, an acute kidney trauma, type 2 diabetes and a recent stroke!! 😮

I find that very strange because I had no blood tests on that particular date because I wasn’t there and I think I would know if I’d had a stroke or kidney trauma!

Farzanah Sat 27-Jul-24 09:56:24

silverlining48

Econsult is Ok but our practice switches it off at 8.05 am, 5 minutes after it’s switched on at 8 am leaving little time for anyone to get through.

Really. Ours is on all day and you can post any time. Evenings also, unless of course it is an emergency.

crazyH Fri 26-Jul-24 19:40:54

Luckygirl - how are you ? Hope you have managed to get somewhere with your GP Practice. You should not be fobbed off at every turn and corner. You have serious heart problems, for Heaven’s sake. Do give us an update

silverlining48 Fri 26-Jul-24 19:07:58

Econsult is Ok but our practice switches it off at 8.05 am, 5 minutes after it’s switched on at 8 am leaving little time for anyone to get through.

MissAdventure Fri 26-Jul-24 15:44:59

I hope luckygirl has found an advocate for her, because that's what's needed to untangle the mess she finds herself in.

Farzanah Fri 26-Jul-24 14:20:39

I do hope you have now resolved some of your issues with your GP practice Luckygirl.
Unfortunately similar issues are affecting many of us, and it is worse with a chronic illness to cope with.

I found it became increasingly difficult to contact my surgery
but now they have introduced “e consult”. You fill in a form online and they guarantee to reply within 24 hours, which they do. Once you have submitted the request they cannot fail to respond, and if you word it carefully, cannot fail to offer an appointment. This overcomes triage by reception, and the request is down in black and white as it were.
Well it’s worked for me.

missdeke Thu 25-Jul-24 22:57:34

Growstuff More mid north really.

Lilyflower Thu 25-Jul-24 22:11:13

Make a formal complaint and be polite and persistent. Write letters and phone. Keep going and don’t give up. Make friends with the person who answers the phone and get her/him on your side.

This is how I went from agonising back pain to a spinal operation although it took ten long gruelling months of resilience in the face of resistance and indifference.

Good luck.

Casdon Thu 25-Jul-24 21:31:29

Seamus89

Sadly PALS doesn’t always help as they’re overwhelmed too . In my experience preserving the Trusts reputation is far more important to health service providers than the service standards we are enduring. If we die , well we can’t continue to complain can we? Lessons learned ?? Yeah right ….

That’s why I advised writing directly to the Medical Director responsible for GPs. You are more likely to get a proper investigation, quicker, if you go direct to them because they are medical and understand the seriousness of lack of care.

MissAdventure Thu 25-Jul-24 21:05:25

How has this all happened, though, since covid?
Surely surgeries should be getting back on their feet by now?

Although, I wouldn't rate the pre covid arrangements very highly where I am.

Seamus89 Thu 25-Jul-24 20:46:16

Sadly PALS doesn’t always help as they’re overwhelmed too . In my experience preserving the Trusts reputation is far more important to health service providers than the service standards we are enduring. If we die , well we can’t continue to complain can we? Lessons learned ?? Yeah right ….

HillyGirl Thu 25-Jul-24 19:44:43

Have you tried contacting your local PALS (Patients Advice and Liaison Service)? They are there to investigate issues with your local health authority. You can Google to find out how to email or call them.
My daughter and I have had protracted issues such as you describe and they have responded quickly. Failing that, my daughter has written to her MP who has helpfully sorted things out for her.
You are right - this constant fighting is tough, particularly when you are battling with poor health as well.
I wish you well.

growstuff Thu 25-Jul-24 18:59:20

Jess20

From personal experience, i would suggest always complain in writing, sticking to facts, with dates and where possible who you spoke to. For example, you might outline why having such narrow windows to request repeat prescriptions is a problem, detailing how or when you can miss doses of essential medication or be unable to use an opportunity to collect a day earlier so you don't have to make another journey. I personally would write (politely and unemotionally) to your own named GP, if you have one, copying in the practice manager and PALS and put it through their formal complaints procedure, perhaps even copy to the local MP. Too easy to be fobbed off face to face or get emotional, which probably won't help as they'll see you as the problem not themselves - although a meeting to discuss solutions following the written complaint might be useful if you are emotionally strong enough. Bear in mind there may be insufficient staff to provide the service and they are doing their best, but it's still not an acceptable service. They may be totally unaware of the difficulties patients are having, particularly with getting essential prescription items and it could help them improve the service to hear how difficult it is for you to manage your health properly using their system.

That's exactly what I do. I write to the Practice Manager and follow up with another letter if I don't receive a response within a week. Since my missed cancer diagnosis two years ago, which resulted in the cancer spreading, when I did have an interview with the Senior Partner and threatened to take the matter further, I suspect my record is marked and I do usually receive a response fairly quickly.

I agree that it appears sometimes they don't appreciate problems for the patients' side.

Whiff Thu 25-Jul-24 18:58:22

I live in the north west if I hadn't moved here 5 years ago I still wouldn't know the 2 things I was born with. Only took me 63 years to find out what my disability was and getting treatment that helps . Also found out I was born with a small hole in the side of my heart. My new GP sent me to see the neurologist and cardiologist. My old GP in the black country didn't send me to see a cardiologist and my old neurologist could have had my whole genome genetically tested and given me a tablet that stopped my limb jerks and seizures. But he didn't.

The GPs at my surgery are excellent and all the staff there plus the pharmacy I use deliveries my tablets.

And I only picked the surgery because the bus stops opposite.

I know my brother and sister in law have excellent health care after they moved from Birmingham to Lincolnshire.

Unfortunately health care is a post code lottery .

growstuff Thu 25-Jul-24 18:53:43

North Essex or North West Essex?

missdeke Thu 25-Jul-24 18:10:34

growstuff

missdeke

It makes me so angry when I hear of surgeries that treat their patients so poorly. In a recent survey of surgeries in Essex my local surgery received 99% customer satisfaction. It is a very busy surgery with thousands of patients so if this surgry can do it why can't others.

I'm in North West Essex. My surgery received 61% "Patients with good overall experience of the GP practice" - it's the worst in the area.

I'm in North Essex too, but I really can't fault our surgery, from the receptionists, the Doctors, the nurses or the pharmacy.

Jess20 Thu 25-Jul-24 17:43:56

From personal experience, i would suggest always complain in writing, sticking to facts, with dates and where possible who you spoke to. For example, you might outline why having such narrow windows to request repeat prescriptions is a problem, detailing how or when you can miss doses of essential medication or be unable to use an opportunity to collect a day earlier so you don't have to make another journey. I personally would write (politely and unemotionally) to your own named GP, if you have one, copying in the practice manager and PALS and put it through their formal complaints procedure, perhaps even copy to the local MP. Too easy to be fobbed off face to face or get emotional, which probably won't help as they'll see you as the problem not themselves - although a meeting to discuss solutions following the written complaint might be useful if you are emotionally strong enough. Bear in mind there may be insufficient staff to provide the service and they are doing their best, but it's still not an acceptable service. They may be totally unaware of the difficulties patients are having, particularly with getting essential prescription items and it could help them improve the service to hear how difficult it is for you to manage your health properly using their system.

MRGUDER Thu 25-Jul-24 16:34:48

Is it any wonder that those that can afford it are now turning to the Private Sector. Everyone moaned when the Tory Govt were supposedly trying to turn the NHS private but it does seem to me that the GPS/Management/Doctors/Administrators are doing a good job of doing this for them.

Mistymoocake Thu 25-Jul-24 14:48:08

I am so sorry for what you are going through. I order through Lloyds on line and order my three types every time on the same day this time the doctor would not allow on of my tablets now as they say they are not due why when I order all together is it not due. Also had a note as to why have a not ask for a repeat prescription on a tablet that I was taken off of over four years ago totally hopeless. It got so bad I brought some privately 18 months ago so I always have some in hand

Nannapat1 Thu 25-Jul-24 14:20:29

I'm so sorry to read this Luckygirl3. You have been through a great deal with little to no support from your GP. I have no further suggestions to make other than those here. I do feel you should make a formal complaint and perhaps escalate to your MP. I do hope that things improve for you, whatever you choose to do and wish you well for the future.

Farzanah Thu 25-Jul-24 13:57:00

My surgery is similar. Doctors work very part time and depend mainly on practice nurses, locums and a pseudo doctor (physician assistant) for the majority of consultations it seems to me.

When I have had a problem in the past I detail it on paper, or (email if available), with copy to practice manager and senior partner, and request a face to face meeting.

If you have no possibility of changing practice you need to try and get your current practice to take your concerns seriously and treat you accordingly once the problem is formally stated. An official complaint, if above fails would be my advice.