Gransnet forums

Health

In despair with GP practice .....

(128 Posts)
Luckygirl3 Tue 23-Jul-24 21:19:18

I just do not know what to do. I am on my own here with serious recent heart problems - major artery blockage and stent inserted - and the support from the surgery is just hopeless. Sadly I am not alone in receiving appalling service from them. Everyone is giving up on them.

Here's an example - my high risk recent heart episode (artery was blocked to 94% in one place) is caused by my genetic hypercholesterolaemia. I am on a statin. I asked my GP ages ago if this would be monitored and she said there was no need as the statin works. Just been to the cardiology department this afternoon and brought it up with them. They said I am on a far too low dose given my condition, and that the situation needs monitoring, the dose needs increasing and combination therapy with another drug needs looking at in order to prevent a further heart attack.

I am on six monthly injections for osteoporosis. This requires regular blood tests to monitor kidney and liver function, checking of results, ordering of the injection, booking an appointment for the injection etc. etc. I do all this - if I didn't, none of it would happen.

It is a dispensing practice, and 2 of the drugs I need are hard to get. I am not allowed to order any drugs earlier than one week before due, but I know that this is insufficient time to have them ready when needed. If I order before one week the order is rejected. If I order at the dictated time, I know that at least 2 of my drugs will not be there in time. I am under strict instructions from the hospital not to stop these, even for a day.

The other day I had a further episode of chest pain - the cardiology nurse at the hospital told me I must ring the practice for an urgent ECG - I did this and the surgery refused. Said I must go to A&E. I rang back the cardiology nurse who said she would ring them. She got the same response. She asked to speak to a doctor, and was told one would ring back - they didn't. It's hopeless.

I feel as though I am banging my head against a brick wall. I hate ringing them - they are sometimes quite rude and I do not feel strong enough to deal with them at the moment.

I live in a rural area and practices are few and scattered.

Baggs Mon 29-Jul-24 08:05:48

MissAdventure

The ridiculous thing is, I'd imagine all this admin and rescheduling, and so on, probably cost more, in the long run, both in hours, and pounds.

Agreed.

Sparklefizz Mon 29-Jul-24 09:54:13

Luckygirl3
flowers I'm sorry to read your latest post.

dragonfly46 Mon 29-Jul-24 10:00:00

And now GP''s are talking about taking industrial action.

MissAdventure Mon 29-Jul-24 10:23:22

Meanwhile, I'm still struggling along with my swollen leg.

Unsurprisingly, putting moisturising cream on it hasn't worked.

Never mind, make ANOTHER appointment if it doesn't get better, the nurse practitioner told me.

I should have made my next appointment on the way out of the surgery.

Farzanah Mon 29-Jul-24 11:00:27

Cadenza123

I don't think that there's any GPs in our surgery. I think that generally they are on the phone elsewhere. In the actual building there are only nurses and now a physician assistant. Who was very nice but way out of her depth. It's all about money, the system needs an overhaul.

If the doctors are going to employ physician assistants I think it should be made clear to patients that it is not a doctor they are seeing, I don’t believe physician should even be in the title as it is misleading. The advanced practitioners in my surgery have had more training and experience, yet get paid less than PAs.

Farzanah Mon 29-Jul-24 11:04:48

I would try and get an appt soon MissA before they decide to strike. I hope you can see someone soon.

MissAdventure Mon 29-Jul-24 11:11:13

You're right, I should.
I had a letter from the company that deal with one of my meds, saying to make an urgent gp appointment because of blood test results though, and I'm only allowed to talk about one issue at a time.

Farzanah Mon 29-Jul-24 11:54:57

This one issue is a nonsense. Tell them you are concerned the two issues may be connected.

Whiff Mon 29-Jul-24 12:25:15

Miss A that's awful . At my GPs I can talk about whatever I need help with . Saw my GP the other week about my swollen legs so she gave me a form for heart blood test that wasn't covered in my normal blood tests. We discussed the results of those she was pleased with them all. Plus I asked her for a referral for a hearing test at Specsavers.

If you get a referral from your GP and need hearing aid you can get NHS ones for free plus free batteries and repairs . The cheapest one Specsavers sell is £400 no way am I spending that kind of money if I need one or both . Having my hearing test Friday morning. They had booked me an appointment for Sunday but I don't go out to places like that of a weekend as I think weekend appointments should be for people who work .

MissAdventure Mon 29-Jul-24 12:30:25

I have hearing aids, but I got them just before covid arrived, and was just getting used to them.
In the meantime the clinic (NHS) which dealt with them who had said to pop in for batteries or queries has shut.
So, I'll need another gp appointment for that!!

Humbley Mon 29-Jul-24 17:45:43

I went to my drs last week only to be told I'm not your secretary when I asked about blood tests and ct scan tests. I was told that it is down to me to follow through but when I said the hospital said I would get the results sent to gp she said again call my secretary for them I'm too busy with patients who need a real appointment and I just answered so why do you refer me and not follow up again she said I'm not your secretary I need to be more pro active I suffer memory loss and only 59 I'm too young to get a Dassett box made up for me but my ailments are that of an 80 year old I was so worried when I got home and spoke to my daughter and she doesn't have much luck with them anymore either

Luckygirl3 Mon 29-Jul-24 18:11:32

Humbley - that is disgraceful. But it sums up the way in which medicine is mechanised and compartmentalised.

One of my biggest gripes about my recent A&E episode and stay in hospital is that no-one seems to take responsibility for communicating with the patient in any meaningful or humane way.

In A&E a health care assistant came up to me after 3 hours and asked me to take 3 tablets of clopidogrel (which I now know to be an anti-platelet medication and that 3 is a loading dose for people have an acute cardiac event) - he could not tell me why. And at that point I had NOT EVEN BEEN SEEN BY A DOCTOR!! I just find that incredible. I was supposed to just neck these meds, having no idea why.

On the ward, I remained for a few days then was transferred for the day to a nearby hospital for an angiogram and stent installation (during which I now know something went wrong). I have seen the reports (so I now know that my right coronary artery was blocked to 94% at one place), but at no point did anyone explain this, tell me what went amiss during the procedure, talk to me about the implications/prognosis of all that has happened - indeed I was not even given a name for it - was it a heart attack or was it something else? I don't know ....... I still don't know for sure nearly a month later.

Trying to get answers on the ward from the doctors as they trolled round wheeling their laptops in front of them was impossible. Believe me I tried - very hard indeed.

It is all a bloody mess

I sympathise Humbley as I have had dexa scans, blood tests etc. via my GP - but no-one seems to think the results should be communicated to me - it's my body, my life, for god's sake!

Aveline Mon 29-Jul-24 18:48:56

If only GP practises could standardise their operation. eg my GP practice has a dedicated line for test results for 2 hours each day. There's also a specific line for repeat prescription requests for 2 hours. Calls asking for appointments go direct to an appointment co ordinator. They can be contacted at 8am and 2pm for possible afternoon appointments. Thus receptionists are just receptionists. Everyone is very pleasant and human (once you get through!) Feels efficient and effective to me.

Farzanah Tue 30-Jul-24 11:57:44

Why do GPs need a phone line for repeat prescriptions? Most I thought are ordered centrally, or on line to surgery or by post or on on prescription form if no on line access.

I look for my test results which are posted on line, then contact for appt if I need to discuss, or if abnormal they usually contact me.

The problem at my surgery is lack of appointments, particular with a doctor (a real one!).

MissAdventure Tue 30-Jul-24 12:06:13

We aren't allowed to order by phone.
(unless it's a problem they've caused, then they bend the rule "just this once")

Ladyleftfieldlover Tue 30-Jul-24 12:08:05

Some positive news about GPs!
I sent an engage consult message this morning at 7 am. I had an email confirming my request immediately. At around 8,39 am I had a message that a clinician would ring me soon. At 9.30 am a Dr rang and agreed I should have a face to face appointment. Would 10.30 am suit me? I saw her on time and she said the lump on the back of my head was fine and merely a cyst. She examined my left breast and thought the aching could be due to scar tissue from when I had a cancerous lump removed in 2017. She is sending me for a fast track mammogram and appointment at the hospital in Oxford. It was two weeks but more likely three weeks now.
Some GP practices do work well, and I’m pleased that mine does.

MissAdventure Tue 30-Jul-24 12:10:30

That's an excellent service.
And you got two problems for the price of one!

dragonfly46 Tue 30-Jul-24 12:10:40

We get a text from the GP if there is something amiss with our test results. It either says make an urgent or non-urgent appointment.

MissAdventure Tue 30-Jul-24 12:14:40

I've had a letter telling me to see my gp within 2 weeks, after a blood test done by some sort of outside agency.

It's probably platelet problems, as it was a couple of months ago, when he told me to "see how it goes".

Jane112 Tue 30-Jul-24 14:00:10

That's even worse than our GP surgery in NI and I thought that was bad!

Farzanah Tue 30-Jul-24 14:15:03

Ladyleftfieldlover

Some positive news about GPs!
I sent an engage consult message this morning at 7 am. I had an email confirming my request immediately. At around 8,39 am I had a message that a clinician would ring me soon. At 9.30 am a Dr rang and agreed I should have a face to face appointment. Would 10.30 am suit me? I saw her on time and she said the lump on the back of my head was fine and merely a cyst. She examined my left breast and thought the aching could be due to scar tissue from when I had a cancerous lump removed in 2017. She is sending me for a fast track mammogram and appointment at the hospital in Oxford. It was two weeks but more likely three weeks now.
Some GP practices do work well, and I’m pleased that mine does.

That’s how the e consult should work. I’m not sure all surgeries are using this, but I don’t see how GPs can fail to respond to red flags if you word it correctly, because they have it in writing. Not second hand via receptionist.

MissAdventure Tue 30-Jul-24 18:34:12

I don't think we have e consult.

growstuff Tue 30-Jul-24 19:04:52

Farzanah

Why do GPs need a phone line for repeat prescriptions? Most I thought are ordered centrally, or on line to surgery or by post or on on prescription form if no on line access.

I look for my test results which are posted on line, then contact for appt if I need to discuss, or if abnormal they usually contact me.

The problem at my surgery is lack of appointments, particular with a doctor (a real one!).

Same here Farzanah. All test results are online. Some standard blood test results are back within 12 hours. DEXA, Echo and MRI results take a little longer, but I receive them at the same time as my GP. I know enough about what the results mean to follow up, if necessary.

Addenbrooke's Hospital in Cambridge has a system called "My Chart", which means the results are all co-ordinated and I can send a message to a clinician when I want. I've always had a response within a day or so.

Ordering repeat prescriptions is easy - it's all done online and I pick the meds up from a local pharmacy within a couple of days. They're very good about letting me know by phone/text if there's a problem with anything.

As far as my heart attack was concerned, I've always maintained that if you have to have a heart attack, Cambridge must be one of the best places to have it. I was blue-lighted into Papworth Hospital, where the ambulance reversed straight into the cath lab, where a stent was fitted within an hour of my 999 call. I had a follow-up appointment a couple of weeks later and everything was explained to me.

I was told in the ambulance that I was having a heart attack and given aspirin. The hospital was prepared for me and, as I was conscious throughout the whole procedure, told me exactly what was going on. The only slight hiccough was with the transfer of care to Addenbrooke's because the two hospitals have different IT systems. I can't fault the hospitals' treatment in any way.

The GP surgery, on the other hand, was dreadful. I was told by the hospital to make an appointment within a few days, but was given an appointment five weeks later. I complained because I needed to set up repeat meds and couldn't wait five weeks. I also now know that my records weren't correctly entered into their system. I had the same problem with breast cancer surgery. The "follow up" recorded in my records was the GP asking me how I was when she was phoning me about something else. When I said "OKish but ..." she cut the conversation short and didn't want to know.

It really does seem to be a postcode lottery. Some hospitals and GPs seem to get it right, so why can't everybody follow best practice, so everybody gets it right?

RosesandLilac Tue 30-Jul-24 19:24:12

I found out yesterday from my friend on the Patient Participation Group that our two part-time GOs are further cutting their hours to avoid paying supertax 🤬- they actually told the PPG this at their meeting.
So goodness knows how long it will take to see a GP here.

Farzanah Tue 30-Jul-24 19:25:13

Gosh it’s a good job you have a decent hospital, you may not have made it where I live. You’ve certainly been through it, and do need ongoing GP support. I wonder if that’s possible anywhere now?

A member of my U3A group is moving back to Cambridge where she used to live because she knows her husband, recently diagnosed with Parkinson’s will get better treatment there.
It’s tempting to do the same but couldn’t afford house prices!