Getting a misdiagnosis officially changed

Have you thought of contacting PALS, M0nica?

www.nhs.uk/nhs-services/hospitals/what-is-pals-patient-advice-and-liaison-service/

My local hospital has a group that meets monthly to monitor what happens to cardiac patients in hospital. This is also open to the patients and members of the community to attend.. maybe your hospital has something similar..

I think in your position M0nica I'd ask for my medical records as you suggest.
I think they are allowed to charge an admin type fee for thus. My daughter paid £40 a few years ago.
I think that does have a 40 day window to provide them.

Good luck M0nica.

I would contact your local health board with regard to having your medical records changed they should be able to point you in the right direction.
With regard to the medication, I would definitely just stop taking the item you no longer require, especially if it is working against another medication.
Your GP can just remove them from your repeat prescription. They should also be able to put a note on file With regard to the miss diagnosis but I don't think they can remove it completely, also you would need it removed or amended on your hospital notes. I would have thought that the consultant would have written somewhere about his thoughts/diagnosis.

I cannot help with your main problem.
I hope the posts on here help you to get it sorted out.

As regards taking stroke medicine. I am pretty sure I have read somewhere, and a physio once said, they cannot make anyone do something/take medicine, that a person does not want to take.

Even my dentist says the dental treatment I have, is up to me. She cannot insist on anything.

I think it is going to be more difficult than people think as I first have to prove I have not had a stroke in the face of a young doctor who was determined to prove I had had a stroke and doctored everything I said to fit her diagnosis and will undoubtedly insist her diagnosis is right.

To be fair, I do not think she did it with malice aforethought, rather from an excess of enthusiasm and a desire to prove her worth.

Reading all your helpful comments above and using them to power my own cogitations, I am beginning to think that the way forward is, first, to get a copy of all my hospital notes, and read them through, then draw up a table of what symptoms I had and the two interpretations, stroke and non-stroke and then possible approach the Patients Advice and Liaison Service at the hospital and go from there.

It is all a bit complicated because all the stroke treatment assessment etc was done under the NHS and all the treatment for the condition I actually have has been done in the private sector because the Doctor I was seeing was so fixated on proving I had had strokes that she would not even admit I was having any other symptoms that needed taking into consideration.

I had NHS treatment, including surfery for the same problem when it affected my right arm and the symptoms in my left arm were/are almost identical.

Callistemon21 and Oldfrill I was told by email that they had "removed the incorrect data as requested".

Not a correction but a removal.
I haven't asked for further clarification. It could be sloppy language but I did just go back to check.

I had a "false" condition put on my medical notes at a major London teaching hospital.

It didn't get as far as me having medication but I did have to write to their data protection officer with a "formal request for rectification" I said it was their responsibility to rectify it in accordance with the GDPR requirement that data held is accurate.

I copied this to Patient Records and to Information Governance as I had spoken to numerous people and they were all useless.

I asked for confirmation that they had corrected the error and got it.
I then asked them to please alert my GP to the correction.

There's a time limit for them to correct (or at least decide if they need to) and if not say why not - I think they need to tell you if they won't. I can't remember how long they can take but think either 28 or 40 days.

I did this all by email.
I included my DOB and hospital number.

Good luck!

You have a legal right to have erroneous information corrected on your medical records. It won't be deleted, but struck through and a note added. Contact the relevant hospital and ask for their procedure to correct your medical records and what evidence you need to provide. Good luck.

I'm not sure if they can change your medical records retrospectively but surely the Consultant you saw will put it on record that the previous diagnosis was incorrect, why and log the correct diagnosis. This should then be sent in writing to your GP who should also update your records and also to you so you can present this to insurance companies..

I would speak to the Consultant's secretary in the first instance.

My husband was told the blood test conclusively confirmed he had a TIA.

I'm assuming you didn't have one M0nica, or that it was taken too late to be accurate?

It hasn’t happened to me but I presume you mean it should be deleted from your medical records? Surely a sit down with your GP to discuss this misdiagnosis will be enough, as you’ve set it out very clearly on here?
At the least the diagnosis in your records could record a query around the TIA?