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Worried

(15 Posts)
M0nica Sun 09-Feb-25 22:48:14

HowVeryDareYou2

MOnica Mine is the same - a meningioma on my petrous ridge. It was discovered after I'd had a stroke 3 years ago. Had 2 follow-up MRIs since, the last one being a year ago. Unless you've got any symptoms of dizziness, headaches, vision problems, etc., it's unlikely to be causing a problem. Could you perhaps ring the hospital and ask about it being monitored?

Thank you for that. Unfortunately the symptoms of the meningioma are much the same as ones that can be caused by a back problem.

HowVeryDareYou2 Sun 09-Feb-25 13:49:31

Charleygirl5 You've got the same type of tumour? It sounds as though perhaps yours has either grown or is pressing on something. I wish you the very best of luck in getting something done.

Charleygirl5 Sun 09-Feb-25 12:11:50

HowVeryDareYou2. I ditto, but I went to bed one night, got up to go to the loo, and nearly fell because of severe dizziness. Luckily, I have been on an OPD waiting list for nearly a year, so I will be seen next week. I cannot get out of my front door, so be warned.

HowVeryDareYou2 Sun 09-Feb-25 11:14:44

MOnica Mine is the same - a meningioma on my petrous ridge. It was discovered after I'd had a stroke 3 years ago. Had 2 follow-up MRIs since, the last one being a year ago. Unless you've got any symptoms of dizziness, headaches, vision problems, etc., it's unlikely to be causing a problem. Could you perhaps ring the hospital and ask about it being monitored?

FriedGreenTomatoes2 Sat 08-Feb-25 19:37:40

I too apparently have a cyst (probably benign) on one of my kidneys. Had a CT scan of my lungs in November and the consultant who saw me straight afterwards said “good news, you don’t have a dvt in your lung so you can fly tomorrow on your holiday. As an aside your kidneys showed up and showed a cyst on one. I’m only telling you about it because you’ll see it reported on the NHS app. But I have one too. Don’t worry about it”.
So I’m not.

Sikipoo Sat 08-Feb-25 19:31:49

Thank you for all your kind caring messages. Means a lot xx

M0nica Sat 08-Feb-25 13:53:24

I have a meningioma in my brain. Found during a MRI scan for something else. I was told, and confirmed that they rarely cause harm and most people with them die without ever knowing they had one. Shortly after I was diagnosed a friend had a simialr diagnosis.

My only concern, is that I was assured that this tumour would be monitored, and I have heard nothing from the hospital. I haven't chased them because we have been hoping to move for the past year and I was going to follow it up when we got to ournew location.

Retread Sat 08-Feb-25 12:42:45

I have several large haemangiomas on my liver, diagnosed years ago, and they don't bother me at all.

The consultant who first spotted them told me "I'm giving you this information so that if they are found in future medical checkups, it won't send you into overdrive. They are benign".

HowVeryDareYou2 Sat 08-Feb-25 09:45:47

Sikipoo I Google things I'm unsure about and Googled haemangioma on the kidney. As you've already been told, it's a benign (non-cancerous) tumour and doesn't usually need any treatment.

I've got a benign brain tumour and was terrified, initially, but understand more now.

Luckygirl3 Sat 08-Feb-25 08:38:07

It is good that the medics are on your case and doing all the tests and following up.
I had a haemangioma on my tongue ... of all places! .... it was very small but as it was tapping into a teeny artery it had to be removed as it kept bleeding. Entirely benign .... just a bleeding nuisance!

BlueBelle Sat 08-Feb-25 08:10:59

I think it sounds within the six weeks
So far you sound as if you ve had a lot of tests and checks so I think you should feel better that they are looking at everything although it’s really scary and I understand totally having been through a very rare cancer two years ago but they do seem to be on your case you haven’t been forgotten and I wish you every good luck and you can soon put it all behind you

M0nica Sat 08-Feb-25 07:54:07

A benign tumour is just that. You already have a rare tumour, which can, but rarely, become not so benign, but multiply rarely by rarely and the chances that this tumour is anything but benign are so etrememly rare, that you ould have to be very very unlucky for it to become so, so relax.

Luck is going your way. It has been found quickly and, without doing a cancer rush, they are seeing you promptly and you are getting all the tests.

I can understand your initial worries, but I think that you can now just let the doctors deal with it and I hope you are soon recovered.

Whitewavemark2 Sat 08-Feb-25 01:02:01

I have had blood in my urine (microscopic - cant see anything) for donkeys years.

Apparently it is not uncommon and in my case must mean nothing as 40 years later I’m still here!

MayBee70 Sat 08-Feb-25 00:50:26

Poor you. I remember how stressed I was a few years ago when I was having various tests for a post menopausal bleed. I think if they thought it was something really bad they’d be fast tracking you. It’s good that they’re being so thorough, though. x

Sikipoo Fri 07-Feb-25 21:45:31

Hi, posted a while back about microscopic blood in urine.
Long story short…saw gynae and they said that I had vaginal atrophy and there was a small tear that was bleeding, but all ok.
Then gp wanted me to have an ultrasound as I have had ongoing years of urine infections and last month had blood that I couldn’t see in the sample, hence the gynaecology appt
I also had an ultrasound on bladder, kidneys etc.
This was over 3 weeks ago and today had a message to have follow up appt with gp.
I can see they think it may be a rare , usually benign tumour on the kidney. I have to have a rescan and referral as the blood may be coming from there .
Got myself into one hell of a state as I thought this had all been sorted . It’s called a suspected haemangioma on the kidney.
Just needed to vent.
Surely if they thought it was cancer that I wou”d have been contacted urgently after the scan. This is almost a month down the line.