I am between a rock and a hard place......

I have AF and I am unable to tolerate any medication that is required daily, as I get migraines after a few days. I've tried many times to explain to the doctors that I can't live with daily migraines but they just don't believe me.
They are convinced a different tablet won't affect me. I know my body better than they do!
So, for 5 years I've just used beta blockers on the odd occasion when my heart has started racing.
I'm 79 and not prepared to spend the rest of my (maybe short) life, just existing with migraine pain. Doctors can't help me.
I do feel for you Lucky.

AF not AGF (whatever that is)

Lost my post!

If the pacemaker is keeping your heart rhythm steady because of AGF, could it be you might need a lower dose of the drugs or they need adjustment? Were they prescribed by the Cardiac Unit or your GP?

Have you been for a checkup on your pacemaker recently too?

Can you phone your GP and ask for an urgent review of pacemaker and an appointment with the cardiology department?

If you like, I'll be over with a couple of bottles later! 🍾🍾
And fish and chips.

I think that’s a good balanced decision Lathyrus3 and I know I would do the same.It’s not quantity of life when older, it’s all about the quality.

I decided to stop the drugs and just fibrilate.

It varies anyhow. Some days I’m normal 95% of the time and live an ordinary life (just been out for the day!). Something I couldn’t have done when I was on the drugs.

Other days my heart is all over the place. Fast, slow, irregular and I have to moderate myself. Book and pottering days.

I am aware that I’m probably shortening my life by straining my heart but
a) I’ve had a fairly long life anyway- certainly by my family’s standard
b) there really wasn’t much point in a life sitting on the sofa, feeling dreadful and unable to do anything except want to sleep.

I do sympathise with the dilemma. It’s hard to make anyone understand how awful the drugs make you feel. Jst thoughtbId tell you what I’ve decided.

Could you go on the BHF website? ( British Heart Foundation) they have a number to call I think to speak with a cardiac nurse.

Sorry you are feeling so unwell. Hope you can get some help soon. 💐

I'm sorry, I don't have any medical knowledge.

Could you go private and ask these questions?

Sorry for your dilemma and that it is impacting your life.

I think you should consult with someone on the cardiac team, but if your area is like mine, that will be a year from now, in June or July.

They gave my husband some tablets called cyclizine to ease his nausea, I believe the drug is used in lots of travel sickness remedies. Worth asking your GP?
He has atrial fibrillation and has had his heart stopped and re-started a couple of times to try to get the beats to synchronise, but it didn't last.

I'm laughing at your last sentence!
Life certainly seems so unfair at times.

It might mean taking more medicine but what about something to ease/stop the nausea?

I have no solutions but wanted to send you a virtual (((hug)))

That is kind of you. I have had several changes of medication and have had problems with all of them. The one that actually works to control the AF a bit renders me weak and nauseous.

And I have led a blameless non-smoking, non-drinking, healthy diet life. Wish I had just got pissed while tucking in to the chips!

I am so sorry you are experiencing all these problems.

Have you discussed this with your GP or heart specialist? Maybe they could suggest a different medication or even to take the medication at a different time of day.

I cannot help in anyway other than to say I'm thinking of you and hope you get some helpful, kind advice.

Peacemaker! - pacemaker!