No point in trying to talk to GP about it. My guess is that when they get this report they will be looking it up to find out about it. Amazing that some junior doctor at the local hospital picked it up at all.
Obviously, the extra growth is not extreme. My hands have always been 'peasants' hands, and yes have got larger, I can only purchase for use Mens gloves - no Ladies fit me. My show size has gone from the 5 1/2 when Iwas younger to a wide 7EE. Have quite a large nose (but it runs in my Fathers Family), my lips would do good service to those companies that advertise their plumping work. At my mid-80's these should be getting thinner.
But it is the other symptons such as joint pain, return of night sweats, excessive tiredness, sleep apnoea problems, etc.étc. all of which I have been trying to report to GP's over past four or five years with little help from them.
Blood test taken at hospital came back positive, next state is for GP to refer me for MRA, etc. so I assume it will be quite a long waiting game.
Just came on here to find out how rare it is and am pleased other people have, at least heard of it.
My facial features are very similar to my Dads (who died just about the age I am now), and am therefore wondering how genetic this is.
