CKD stage 3 - no support only leaflets.

Jrose

Cossy, I was just browsing through the NHS app on my phone when I spotted a heading called Conditions. Not sure why I clicked on it but was shocked to see Sept 25th Chronic Kidney Disease stage 3. Thought it must be a mistake. The surgery hadn’t mentioned it to me so I’ve been merrily going about life as if nothing wrong.for past 8 months. Rang the surgery and have since had a call with doctor who is quite relaxed about it. Received a pack of 20 or so pamphlets and have had lots of questions answered by ChatGPT. Problem I’m finding is the contradictions in what to eat and not to eat. Many of the articles I’ve read say check with your kidney team, which I don’t have.
Thank you for your replies above, perhaps I’m taking this all too seriously and should relax a bit, just terrified of getting to stage 4 and dialysis.

Thank you for responding.

I am so sorry you discovered this condition in this way.

I discovered my mother’s CKD stage 3 by browsing her GP records, she has huge issues with keeping well hydrated, but had a fairly healthy diet but did test a few times with low potassium levels. Both my daughter and I encouraged her to drink more water, it was a struggle for her.

I’ve just checked on my latest blood tests (from last December) and found I had borderline kidney results. I too struggle to drink enough, I too have a bottle with marks on it and fail most days. I do use fruit squashes, weakly diluted and drink fruit tea.

Last week I started to have pain in my right side lower back, sometime radiating around to my bladder, then about 2 hours of constant vomiting a couple of days later. Pain still here but now a dull ache. Do have a GP appt this Thursday so hopefully will get some answers.

I would urge you to talk to your GP and wish you the best

Retread, many thanks for your good wishes and I wish the same to you. Must say I had never even given my kidneys a second thought before, now they dominate my every waking moment!
Yes found out by stumbling on it on the app, 8 months after diagnosis.
Have the water pretty much under control as you have. I’ve marked a water jug at 2 litres and get through it but need to take less at night as I’m getting up more.
Thanks again.

Rafichagran, I think I should do more of your regime, I might be taking it all to the extreme.,

Greenfinch, I’ve had a call with my GP who said pretty much the same as yours, don’t worry and drink lots of water. Problem is, once I started researching it seems to be more serious than that. I’ve been sticking to all the new rules, no salt in any foods, no dairy, no bananas, tomatoes or avocados. Tonight I buckled and ate an ice cream!

This is the first time on this forum, hope I’m doing it correctly,.

Maremia, I don’t think my practice has a dietician but will definitely ask, thanks .

I thought I had a healthy diet but can no longer eat avocados, sweet potatoes, bananas, tomatoes and many other weekly staples. Too high in potassium. Or can I??

Cossy, I was just browsing through the NHS app on my phone when I spotted a heading called Conditions. Not sure why I clicked on it but was shocked to see Sept 25th Chronic Kidney Disease stage 3. Thought it must be a mistake. The surgery hadn’t mentioned it to me so I’ve been merrily going about life as if nothing wrong.for past 8 months. Rang the surgery and have since had a call with doctor who is quite relaxed about it. Received a pack of 20 or so pamphlets and have had lots of questions answered by ChatGPT. Problem I’m finding is the contradictions in what to eat and not to eat. Many of the articles I’ve read say check with your kidney team, which I don’t have.
Thank you for your replies above, perhaps I’m taking this all too seriously and should relax a bit, just terrified of getting to stage 4 and dialysis.

Have you discussed this with your GP? My DH has it and the GP was very re-assuring. He was told not to worry and just ensure he drank plenty of water.

Would your practice Dietician be able to advise?

I have stage 3 CKD. I drink water and and try, not successfully at times to eat healthily. I carry on as normal.

I understand that you discovered it by seeing it recorded on your NHS app, is that right?

I don’t know about CKD but have had kidney stones more than once, latest bout as recently as last year so I aim to drink 2 litres of water a day. I have a 1L bottle marked in 200 ml sections and I find that helps keep me on track and acts as a reminder throughout the day. I drink water on waking and then throughout the day.

All the best in your endeavour to look after your kidneys.

Oh dear.

Just out of interest how did you discover this and did you experience pain in her lower back?