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Polymyalgia Rheumatica anyone

(3 Posts)
kittylester Mon 12-Oct-26 10:45:40

DH is having a blood test tomorrow to check whether this is the cause of his weird aches and pains.

We have a friend who has it and, initially, refused the steroids. She is now taking them.

Anyone with experience of this with any tips or wisdom to impart?

Thank you.

Samsara1 Mon 12-Oct-26 10:49:00

I am sorry to hear that. I do know a number of people who have it and respond to treatment but other thing will be important like nutrition and physio of course. Can't escape it for anything really. I hope all will be well.

shysal Mon 12-Oct-26 12:27:39

I have had PMR and refused to take steroids as I was worried about taking them because of the side effects including weight gain. However, my condition progressed to Rheumatoid Arthritis which I now have for life rather than the shorter lived PMR. I asked my consultant if it was my fault for allowing my body to remain inflamed, but she couldn't be sure. I know several people who have taken the steroids and experienced immediate improvement. It took a while to ween themselves off, but after a couple of years all is well. Given the choice now, I would have taken them.
I understood that there wasn't a specific blood test to confirm PMR, but the immediate improvement with steroids was diagnostic. I am talking quite a long time ago, so perhaps there is now a test. I hope your husband will soon be helped.