Sorry to hear your news. My Mum was diagnosed at 92 and lived to nearly 97. She was on medication to slow it down and I believe it did. She was never aggressive or nasty but used to get very low (which is totally not her)and confused and anxious so it was a case of distracting her or playing some of her favourite music.
She was obsessed with going to the toilet and would literally get off the loo, sit in her chair and say “I must just nip to the loo”. I would remind her that she had just been but she would not believe me and off she went again. Each time she was in there about 20 minutes, lifting her clothes, trying to go, rearranging clothes, washing hands etc. so she was absolutely exhausting herself. It was very sad to witness.
We were still able to have a laugh together, she enjoyed us having meals together and I wrote down her memories and typed them up and when she was upset the staff read them to her and she was her happy self again!
She was also obsessed with anything paper …. Notepaper, newspaper, paper tissues and paper towels. No idea why, but she hoarded it all in her handbag.
I spent Monday afternoon with a lady who lost her husband to dementia the same time as I lost Mum, during the pandemic in 2020. We both agreed that once you get the diagnosis there is no help at all …. Not here anyway. She was given the number of Admiral Nurses and rang them and they took months to return her call. They asked her how they could help her and she said what she really wanted was for someone to sit with him for an hour now and then so she could pop to the shops but the nurse said they don’t do that.
I used to take my Mum to a dementia support group once a week which was nice and she enjoyed it but, again, once she passed away nobody ever contacted me.
You could try Carers UK site. That is people in a similar position. A great book to read is The Little Girl In The Radiator by Martin Slevin. True story of a son’s journey through dementia with his Mum. It is sad, happy, emotional, funny and a great read!!