It has been some week for us. Tuesday was the Consultant's Appointment when the big D word (Dementia) was finally spoken out loud, followed by the explanation of the RULES regarding Driving, basically 'return your licence voluntarily or have it taken from you forcibly'. Ian insisted on driving home, then flung his car keys at me, refused to discuss for the rest of the day. I am now officially his Carer not his wife - a job that I would never have undertaken voluntarily and to which I am temperamentally seriously unsuited.
Wednesday - Day Therapy as usual, 10.00 to 15,00 (I drove a silent Ian, there and back) only to be told that now that the Diagnosis has been confirmed Ian's 'case' will be transferred to Social Work rather than NHS Scotland and Day Therapy (which has given me my only bit of Me Time) will no longer be offered.
Also explained all the ins and outs of the changed status, including that I will have to insure the car in my name. I shall be a 70 year old 'new' driver so dreading how much that will cost. Also that we may be entitled to a Blue Badge and Attendance Allowance. Questioned about Power of Attorney, which thankfully we already have, as a Dementia diagnosis may be taken as proof that the sufferer is no longer able to understand and consent to setting one up. Told that I should attend carer's groups for support for myself as Dementia is a disease that is harder on the carer than the cared for. Also told that Ian should not be left 'Home Alone' at any time which negates the possibility of me attending any day-time groups.
Was too upset to do my planned shift at the Election Campaign Office so went home to find Ian's notice to complete a Tax Return, full of threats re non-compliance, through the letter box. Added Tax Accountant to the list of Carer's duties
Thursday, still all shook up, hear that May's Manifesto includes a 'Dementia Tax' which will hit us hard in terms of paying for care as we are already relying on cashing in our investments to balance the weekly budget. Cashing them in = less investment income so need to sell some more.
Someone on this thread pointed out that this is Dementia Awareness Week but it would seem that the Powers That Be either have no such awareness or, alternatively, deliberately rob the poor, the just making ends meet and the, vulnerable to help the Rich and Powerful. I am clinging on to the hope that the Scottish Government will be able to continue to provide Free Personal Care for the elderly (though this might prove impossible once these cuts in England mean a reduction via the Barnett formula in the Scottish Budget. Otherwise the only folk providing free personal care will be me - and the 1000s more in the same situation.