MissAdventure
Call me cynical, too.
Also, the home help service was a great one, too.
Age uk run one now, but it is pretty expensive.
My DM was diagnosed with Alzheimers aged 55, following a 2 week assessment at UCH in London. This was back in the 80s and they actually wanted to keep her in for longer but we said no. This was after we found out that they had taken her to the lecture theatre and talked to her on the stage in front of many people - students, researchers, whatever.
Through the local council we were allocated an home help who came in every week and tidied up and cooked her a meal. We had some disappointments with the home help. We bought a microwave and stocked up with M & S ready meals but the HH didn't approve of this and bought tinned potatoes which my mum and the rest of us had never eaten. The other problem that really bugged me was that one day I phoned Mum to say I would be down the next day. She was crying but I couldn't quite work out why. When I arrived she was out and she returned she was holding a dog's lead and was crying. It turned out that the dog, Tara had been out to sleep earlier in the week. The HH hadn't seen fit to inform us because "it was only a dog". Apart from that there were no problems and I would liked to have paid more for the service
but that wasn't possible.
One day when we were out walking, fell over and broke her thumb I think it was. She came to stay with me (in Brixton) for while. I contacted the local social services and they welcomed her into their day care centre, every week day. It wasn't possible for me to take the time off work.
It became that she could no longer live on her own so she went to live with my sister who wasn't working ( I thought that we could pay sister). It didn't work out because my sister had two young children at that time, plus a large dog and they didn't mix. Whilst my Mum was with my sister the latter applied to her local council for a railing to fitted alongside the sloping path to the front door. She also asked for a day care centre. The answer was that my mum would have to be assessed, despite the assessment from UCH. A day care centre would be available to her on day per fortnight.
The difference was the local authorities. The first two were Labour councils and the third ( my sister's) was Tory.
My sister found a nice home for her, with her own room. When I visited one day I found another person had been moved into the room and the fee had increased substantially. When we queried it we were told that we had known all along that it was a double room, which wasn't true.
After I moved to Suffolk I found a care home near me. The people were very nice and I was able to take my mum's dog, which I took on and my own. Most of the residents liked to see the dogs. I let them off their leads and they wandered around the sitting room, saying hello to everyone. The received a lot of cuddles.
The couple who ran this home were young - she was a mental health nurse, as was her MIL. One day, after a few years we received a phone call to say that the bailiffs had been to the home and we should go in for a meeting. It turned out that this particular home had been bought someone who had a few other homes but he'd decide to rent this one to the young couple. Apart from the initial rent they had paid nothing. The owner took over the running of the home and my mum stayed there until she died. The staff were very caring. I received a phone call one evening to say that my mum had pneumonia. The doctor had been and said she could stay there of it was OK because if she went into hospital they would only remove fluid from her lungs.
My sister and I stayed in the home with my mum for 1 week before she died. At night we slept in the day room and spent the days with her. The staff were exceptionally kind.
Alzheimer's is a funny illness I think. Some people turn quite nasty but others' like my mum, are quite docile. Even after she had forgotten most things and didn't know who I was, she could remember the hymns that she knew as a child and would sing along with them.